Reviewer: caradootdoot, Female on Treatment for 1 to less than 2 years (Patient)

Comment:
I have been taking Xyrem nightly for a year now twice (4.5) a night, along with Nuvigil during the day. I was at first trying to survive daily with the Nuvigil & when I started taking Xyrem at night, all of a sudden, my life has changed. I no am able to work & take care of my daughter & before I was diagnosed & treated, I was being accused of being on drugs, or being unfit as a pa ... Show Full Comment

Comment:
I have been taking Xyrem nightly for a year now twice (4.5) a night, along with Nuvigil during the day. I was at first trying to survive daily with the Nuvigil & when I started taking Xyrem at night, all of a sudden, my life has changed. I no am able to work & take care of my daughter & before I was diagnosed & treated, I was being accused of being on drugs, or being unfit as a parent because I would fall asleep literally anywhere at anytime. Narcolepsy + Cataplexy can be controlled almost 100% with Xyrem. The downfall is that without health insurance, it is very expensive...several thousand $$ monthly. The other downfall is the sleepwalking & not dreaming anymore. Other than that, I am all about Xyrem for treatment of Narcolepsy & Cataplexy.
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Reviewer: Sir-Sleeps-a-lot, 25-34 Male on Treatment for 6 months to less than 1 year (Patient)

Comment:
I'm 28, was diagnosed with Narcolepsy and EDS 3 years ago. I have tried nearly every stimulant prescribed and finally got to this. I take 3.75x2 and it works great. I have done tons of research on this drug. FYI, this drug was used by weightlifters in the 80's as 90's as a fat burner. It boosts your metabolism while on it which is why some people get crazy hungry when on it. To alleviate ... Show Full Comment

Comment:
I'm 28, was diagnosed with Narcolepsy and EDS 3 years ago. I have tried nearly every stimulant prescribed and finally got to this. I take 3.75x2 and it works great. I have done tons of research on this drug. FYI, this drug was used by weightlifters in the 80's as 90's as a fat burner. It boosts your metabolism while on it which is why some people get crazy hungry when on it. To alleviate that I just go to sleep immediately otherwise I'm stuffing my face with junk food. Also, the boosted metabolism causes overheating and sweats during the night. Doesn't happen every night but it does once or twice a week for me. Another important tid-bit. It really has the tendency to reduce inhibitions, hence the "date-rape" abuse. One girl mentioned really wanting sex after taking it, I get that too. It's best just to take this medicine and immediately go to sleep. MOST IMPORTANT: This medicine does NOT give me energy. HOWEVER, it forces me to maintain a repeatable sleep schedule even on weekends. That itself has been the greatest help. I still take two 30min naps daily, at 12:30 and 5:30. I set an alarm so I don't sleep longer. At night I sleep 6-6.5 hours. Any more and I am sleepier during the day, it's odd but true. Too much sleep makes my EDS worse. So all in all, medicine helps maintain quality nights sleep and a consistent sleep schedule. Combined with 2 daily naps my quality of life is as close to "normal" as it ever was. Only downside? Having to maintain that sleep schedule. One wild night out and I am extra tired for the next 4 days, even if I go right back on the schedule. Hope this is helpful
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Reviewer: 25-34 Male on Treatment for less than 1 month (Patient)

Comment:
male, 28 yrs old. 2'nd week, up to 3gr a dose. so far i only stay asleep 2 1/2 hours per dose. I was recently diagnosed with Narcolepsy, after a couple yrs. of fighting with sleep apnea machine for prior mild sleep apnea diagnosis. I actually have both, but CPAP was useless till xyrem. I constantly woke up throughout the night and couldn't stand the machine. After being encouraged by my wi ... Show Full Comment

Comment:
male, 28 yrs old. 2'nd week, up to 3gr a dose. so far i only stay asleep 2 1/2 hours per dose. I was recently diagnosed with Narcolepsy, after a couple yrs. of fighting with sleep apnea machine for prior mild sleep apnea diagnosis. I actually have both, but CPAP was useless till xyrem. I constantly woke up throughout the night and couldn't stand the machine. After being encouraged by my wife I went to different docs at a sleep specialized center. Thank God, the PCP doc completely missed Narcolepsy (granted, cataplexia hadnt set in just yet). Cataplexia was the give away, but i thought nothing of it. I'm a laugher, so i just thought things had become more funny... anyways, xyrem has been amazing for me. Time flies at night. Its almost kinda sad that the night seems to dissapear so quickly, as i've gotton used to it being longer. taste is pretty bad, but its still a great deal compared to the narco. Use a little Mio in the water, it helps. Ive read all these reviews a couple times, and they can scare you a bit. Don't let them. If you got the Narco, there is no other option. other sleep meds will not help, they are diff. You'll have to change a few habits, but if you came this far, your probably willing to do it. In the end, just before trying it, i was hesitant because of some of these reviews, and fear of not affording this drug as long as i will need it. DO NOT LET THESE STOP YOU. You will never know how it works for you if you don't try, and thats a nasty regret just waiting to happen yrs. later, wondering what could have been. Second, not gonna lie, its stupid exspensive and you need insurance. saw a bill around 5000, and i paid 12 bucks. Thats jacked up, but thats another post. To the point, I might not always be able to get it, but who knows? The Docs themselves told me that with such upheavel in the insurance/healthcare situation, you just can't really know. So why short yourself now for what hasn't even happened, and may not ever? It worked for me.
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Reviewer: peggyrohaley2@aol.com, 55-64 Female on Treatment for 1 to 6 months (Patient)

Comment:
I am taking 3 grams twice a night, but now I am reducing my second dose at night due to I do not want to get up in the morning even with 2.25 grams and then I still feel tired in the Am. I have not worked due to this. When I increase 3.75 grams, I have to do it slowly then in the am no matter what dose It takes me a while to get going, I have this feeling of nervousness and I feel like I want to ... Show Full Comment

Comment:
I am taking 3 grams twice a night, but now I am reducing my second dose at night due to I do not want to get up in the morning even with 2.25 grams and then I still feel tired in the Am. I have not worked due to this. When I increase 3.75 grams, I have to do it slowly then in the am no matter what dose It takes me a while to get going, I have this feeling of nervousness and I feel like I want to stretch my legs, wierd feeling then it goes away, but my doctor suggested klonopin for the nerveousness. I have been on this for three months, I sleep so sound but I am having trouble regulating my doses so I feel fresh as soon as I wake up and I would like to wake up at 7am. But I never wake up feeling like I am ready to go. It takes me a couple hours to get going. Plus after 45 years of constipation, I finally get up every am and no more problems. My legs feel tingly when I increase my doses also. Does this ever go away. any suggestions? please email me at peggyrohaley2@aol.com or call me 941-201-4847. I feel like a need someone for support to talk to for this medication. Really appreciate your help.
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Reviewer: 19-24 Male on Treatment for 1 to 6 months (Patient)

Comment:
shit is wicked good. whoa!

Comment:
shit is wicked good. whoa!
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