I'm 28, was diagnosed with Narcolepsy and EDS 3 years ago. I have tried nearly every stimulant prescribed and finally got to this. I take 3.75x2 and it works great. I have done tons of research on this drug. FYI, this drug was used by weightlifters in the 80's as 90's as a fat burner. It boosts your metabolism while on it which is why some people get crazy hungry when on it. To alleviate...
This medication landed me in the hospital. I almost died and was in a coma like stage. I had to spend a week in a psych unit because I had such bad memory loss, confusion and aggitation. This drug is not safe. From now on I have to go to therapy, take daily medication, and am unable to work, drive and do anything without the help of my husband. I was a healthy 28 year old female with insomnia ...
donna | 35-44 | Female | On medication for 6 months to less than 1 year | Patient
3/12/2008
Condition: Other
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
i have fibromyalgia. I could never get to sleep, stay asleep, or wake up rested prior to this drug. Now I am a co-director for a large deveoper, very busy daily schedule, and i can honestly say finally i can keep up. And more important "get up" in the morning. Donna
22
1
Report this post
djoylong | 45-54 | Female | On medication for less than 1 month | Patient
11/29/2007
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
I am currently participating in a study using this medication for Fibromyalgia. I take 2.25ml when I go to bed and 2.25ml 2.5 hours after I go to sleep. To date, this is the only medicine that truly helps me with my sleeping problem and relief from muscle weakness and fatigue.
32
1
Report this post
Anonymous |
11/8/2007
Condition: Muscle Weakness associated with Sleeping Disease
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction
5
3
Report this post
Montego | 45-54 | Female | On medication for 1 to less than 2 years | Patient
10/30/2007
Condition: Recurring Sleep Episodes During the Day
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction
I have narcolepsy and have found that this drug, along with short scheduled naps during the day, has changed my life. However, the larger the dose, the more effective the results.
25
Report this post
kogeliz | 25-34 | Female | On medication for 1 to less than 2 years | Patient
10/28/2007
Condition: Recurring Sleep Episodes During the Day
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction
I have narcolepsy. Xyrem helps me get my real deep sleep and I can actually wake up on time to my alarms. This is amazing for me since I have never really felt how normal people do (ie: well rested). It IS a pain to get used to waking up in the middle of the night for the second dose... but worth it.
28
1
Report this post
72627262 | 25-34 | Male | On medication for 6 months to less than 1 year | Patient
10/17/2007
Condition: Recurring Sleep Episodes During the Day
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
I am very satisfied with the drug; in fact I can say it has changed my life. The issue is I can not live without it. I am not physically addicted to the medicine but if I don't take it, I can't sleep. I work for myself and if I ever get dropped from my idividual carrier it could be disasterious.
26
3
Report this post
Anonymous | 35-44 | Female | On medication for 6 months to less than 1 year | Patient
10/15/2007
Condition: Other
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
I have been on the medication since late April 2007 and felt that it was a God-send, however every 6-8 weeks, I need to call the doctor for an increase in dosage as I begin waking up in the middle of the night unable to fall back asleep. I am now past the maxium recommended dose and not feeling any effects any longer. I fear that I will need to stop the medication and possible switch to a sleeping pill, which may or may not have the same positive effects that I started with the Xyrem. For the few months that it was effective, it worked VERY well and was a positive in my life. Read More Read Less
IMPORTANT INFORMATION ABOUT USER-GENERATED CONTENT ON WEBMD
The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions.