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3.8 Overall Rating

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Most voted positive review

80 People found this comment helpful

I take 500mg once a day for Essential thrombocytosis, I have been on it for four months and my platlets have gone from 1,200 to 404 I have sore joints but that is about it.

Most voted negative review

8 People found this comment helpful

none

Shared reviews and ratings

Anonymous | 55-64 | Female | On medication for less than 1 month | Patient
9/2/2010
Condition: Having Several Acute Conditions with Sickle-Cell Disease
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

This medication had severe side effects for me... nausea, violent vomiting, diarrhea skin rash, black fingernails,some hair loss; and I only took three (3) doses. Bad drug...bad drug. I would not recommend it to anyone.

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Down2Ride4U | 19-24 | Female | On medication for less than 1 month | Patient
8/17/2010
Condition: Having Several Acute Conditions with Sickle-Cell Disease
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

I am on here for my boyfriend who has sickle cell. He has not decided to take the medication yet. But I am looking into thing for him. Just to look out for him,. I need some suggestions on the pill. Does it work? What are some of the side affects? Are they long-term or short-term affects. I need answers Please.

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Joe Sr | 75 or over | Male | On medication for 5 to less than 10 years | Patient
8/16/2010
Condition: Spontaneous Hemorrhages and Increase in Blood Platelets
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

I have been taking medication for several years. As I reported before, the platelet count bounces back and forth but the white blood count stays low. Now, my wbc stays in the normal range while the platelet count stays elevated (600,000). I am concerned that the condition may have advanced to another stage or to leukemia which I am told could happen if taken for a long period of time. My hematologist has taken a wait and see attitude but it would be interesting to know if anyone else has had this experience.Read More Read Less

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Anonymous | 55-64 | Male | On medication for 6 months to less than 1 year | Patient
6/28/2010
Condition: Spontaneous Hemorrhages and Increase in Blood Platelets
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

58 year old Male No noticeable side effects after 10 months of use. 900,000 platelet count is down to 359,000. I take 2 500 mg capsules a day. My wife some times has itching after relations. We wonder if this drug passes thru semen like it says for breast milk. Does any one else have this problem?

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worried | 55-64 | Male | On medication for 1 to 6 months | Patient
6/9/2010
Condition: Other
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

Have been taking for about two months. Platelet count is down from 1.8 million 10 146,000. Only problem is my white count dropped. Last lab showed no new white cells being produced. Have been off medicine for two weeks. No change. Doctor has no idea what to do. He is hoping white count will return to normal on its own. If it doesn't I do not know.

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Chronic | 65-74 | Female | On medication for 10 years or more | Patient
5/22/2010
Condition: Type of Leukemia - Chronic Myelogenous Leukemia
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

Treated for Essential Thrombocythemia since 1995. 500mg every day in the am on an empty stomach. My platlet count was over 2million before treatment and has been steady at about 600,000 with the hydrea. Have had no serious or long term side effects. I have several other chronic diseases with many other medications and the hydrea has never been a problem as far as drug interaction. Also have had several surgical procedures with no problems. I will be on this medication for life and have no problem with that Read More Read Less

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letitia | 35-44 | Female | On medication for 2 to less than 5 years | Caregiver
5/18/2010
Condition: Having Several Acute Conditions with Sickle-Cell Disease
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I am a mother of a 5year old with Sickle Cell Disease.He was put on this medication at the age of 1yr.At that time in his life he was hospialized 10 times with severe crisis.After he was placed on Hrdroxyurea,his crisis went to once a year.

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gatekeeper | 7-12 | Female | On medication for 2 to less than 5 years |
5/13/2010
Condition: Having Several Acute Conditions with Sickle-Cell Disease
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

before taking this medication i spent 12 to 18 days in the hospital a month, but i worry about having to take something this strong for the rest of my life,and i am only 11yrs.old

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7wrpb7 | 55-64 | Female | On medication for 2 to less than 5 years | Patient
4/4/2010
Condition: Increased Red Blood Cells
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

brusing

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Anonymous | 75 or over | Male | On medication for 5 to less than 10 years | Patient
3/24/2010
Condition: Increased Red Blood Cells
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

Have been taking over 5 yrs. Had problems adjusting platelet production with immune system. Platelets up, immune system down. Recently started taking Resveratrol, a supplement. Believe it or not, on my next checkup, my platelet prodution stabilized, though slightly high, but the amazing part was my immune system was well within the normal range which I had not seen since being diagnosed. Perhaps it may have been coincidence, but for my last 3 checks the results remained the same. I now take 5 capsules a week. My hemotologist is pleased with the results but will not comment on the use of Resveratrol.Read More Read Less

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zammack | 65-74 | Male | On medication for 2 to less than 5 years | Patient
2/5/2010
Condition: Spontaneous Hemorrhages and Increase in Blood Platelets
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction

I haev severe Constipation

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Anonymous | 65-74 | On medication for 5 to less than 10 years | Patient
1/26/2010
Condition: Increased Red Blood Cells
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
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marrakesh | 65-74 | Male | On medication for 1 to less than 2 years | Patient
12/9/2009
Condition: Other
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

none

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cksickle_cd | 19-24 | Female | On medication for 6 months to less than 1 year | Patient
8/6/2009
Condition: Having Several Acute Conditions with Sickle-Cell Disease
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction

My hematologist tried hydroxyurea on me several times to raise the fetal hemoglobin level in my blood. Each time, not only did it not help, but it cut down my white blood cells a lot. It also has terrible side effects like nausea and stomach pain, and hair loss

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Anonymous | 45-54 | Female | On medication for 1 to 6 months | Patient
7/26/2009
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I've been on the drug for 3 months with little or no side effects. It has been very effective in the treatment of polycythemia vera

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poly71 | 35-44 | Female | On medication for 5 to less than 10 years | Patient
7/16/2009
Condition: Other
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

Diagnosed with Polycythemia (a very rare disorder where the bone marrow produces too much blood - red cells.) in 2000 at age of 29 I have been on this medications generic form. Since beginning this drug to suppress my bone marrow, my counts have remained in normal range. I initially had stomach upset and hair thinning, but that went away after a few months on the med. I took the medication for my entire pregnancy with my 2nd child who is now 3 years old after consulting several physicians. They all agreed that the benefit outweighed any risk of stopping the medication. The only down side to this mediation that I can speak of is that it's been very difficult for me to overcome a chronic sinus infection. Read More Read Less

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Anonymous | 45-54 | Female | On medication for 2 to less than 5 years | Patient
6/21/2009
Condition: Other
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

I take 500mg four times per week. Have been taking it with various doses since 2004. I have ET--essential thrombocythemia. The med makes me have loose bowels and I have to eat it with food or it makes me sick to my stomach. It is scary that there is no alternative and no known cause to my disease. I also take 80mg "baby aspirin" once per day. HAve to see the hematologist once every six months now.

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Anonymous | 45-54 | Female | On medication for 2 to less than 5 years | Patient
6/3/2009
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

This medication really helped me & continues to help me.

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Elifritz | 65-74 | Male | On medication for 1 to 6 months | Patient
5/13/2009
Condition: Increased Red Blood Cells
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

seemed to give me a faster heart beat and just not right feeling at first but settled down after a day or so

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Try4Excellence | 55-64 | Male | On medication for 1 to less than 2 years | Patient
4/12/2009
Condition: Other
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I am being treated for high blood counts. Platelets-1.3m, and both WBC and RBC were way out of range (polycythemiavera) Started this drug in Oct '07, 1500 mg x 3 daily. Since Feb '08 those counts have been all within range. Downside is nausea, loss of appetite and strength/stamina seemed to have decreased. Not sure of long range side effects but some reported ones are not too good. For now, this is the best drug to get me to "long range".

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