User Reviews for Tysabri intravenous

I was dx 6 years ago and immediately started on Avonex. I had easily managed flu-like side effects but I was getting resentful of the weekly injections I had to give myself. I never had any "big relapses" but lesions kept showing up on my MRI's. Started Tysabri 10 months ago, and I LOVE IT!!! I work a half day, drive into Boston, get a nice lunch and visit everyone while I get my drugs.. Better living thru pharmaceuticals.... Reading these reviews however are making me put some pieces together that I did not think were MS or Tysabri related, like the achey hips and sleepless nights. Hmmm I will have to check into that. I am not an "exerciser" but wish I could, I get too overheated and extreme fatigue comes visiting. Overall, I hope Tysabri stays on the market for as long as we need it - until a cure baby....Read More Read Less

I was diagnosed with relapsing remitting ms in 2006.My first injection was copaxon.After 3 mo. I began to experience msny different site reactions and swelling in my throat that would last about 10 min. My Dr. reccomended stopping the copaxon.I'm glad I did !In Jan.2007 I started the Tysabri study program.I recieved 9 infusions with no side effects of any kind.My insurance has since picked up the monthly infusions.I am on my 18 infusion and think it has helped me a great deal.The infusion takes about 2 hrs,so bring a good book and get to know others around you. I am happy with my results so far. Read More Read Less

overall its been very good know side effects yet.

After having MS for over 10 years, Avonex was no longer working. I am in my early 30s and am now able to do things I couldn't before. (Shovel snow, go on walks, clean entire house....) Not liking the weekly IM injection with Avonex, I feel less smothered by my MS.

I had my first infusion on good Friday March 21st of this year. I have been diagnosed w/MS for about 7 years now. I started on Avonex for a year then after a bad relapse changed to Copaxone worked great for the first year then I devoloped antibodies. We then switched to Rebief had another relapes and went back to Copaxone.I am in my very early 30's and can't afford to keep changing a band-aid. So far I have had the most energy in years I feel 5 years yonger and great. I hope this medication continies to make me feel so good.Read More Read Less

I am a newly diagnosed person with MS. I had tremors, major fatigue, depression, etc.. I started out trying Rebif which had very negative side effects, and the MRI showed extremely increased area's with lesions. After that MRI I swtiched to Tysabri. I have done 8 infusions and my energy level has gone up to almost pre-MS levels. I can actually work full time now with no calling out sick! I also work out at the gym 4 times a week, and go out with my husband. I am extremely happy that I switched to this medication, only worried that because the medicine is still so new we don't know how long I can safely take it. Read More Read Less

I was diagnosed w/MS 21 years ago-spent 13 yrs. doing every-other-day self-injections of Beta Seron, which worked well for that time, but then developed anti-bodies and went into a severe downward spiral in all aspects of this disease. Started Tysabri 14 months ago and it is working well for me. I have some very ugly side effects, but I can deal with them better than the dibilitating effects of MS. I have found that keeping a daily journal has been extremely beneficial-helpful for me and for my doc and infusion RN. I started my journal the day of my first infusion and have kept it going since. It has enabled me to prepare for the side effects that I know are coming - extreme fatigue and achy joints day after infusion for 2-3 days; noticable spike in energy level by day 4; yeast infection 7 days post infusion; sleeplessness days 10-12; shingles across both hips and up tailbone day 3. These things are annoying, but by knowing when to expect them, I deal with it, and my over all health has been really good, and my energy level is almost what it was when I was disagnosed 21 years ago!!Read More Read Less

I love having to treat my MS once a month, with no headaches from Rybif.

I was diagnosised two years ago with MS at which I was put on Avonex for year and half I took wkly inj and had all the side effects, they never seem to go away. Plus had lots of relapses. I since change to a new doctor that beleives in tysabri and just received my third dose and starting see the effect it is taking on me, I walk better, I'm able to stand to make dinner for my family and most of all not moody.

This treatment has been very expensive for my family, our insurance is a coin-insurance plan so after the insurance company pays 1,840.00.00 each month for the Tysabri, we pay an additional $460.00 plus another $174.00 per month for the infusion cost. I feel that the drug company should except what insurance companies pay so their victims can stay on their drugs that are helping them. Tysabri,YES is a good drug for multiple sclerosis but it should be made affordable for everyone to have the opportunity to try. The drug company tells you they have many assistance programs however it turns out that if you have a dime in your pocket there is no assistance for you! I have been on Tysabri for 14 months and I have not had a relapse in that time. I just want to say that PRIOR to going on Tysabri check your insurance information because this drug is one that you should stay on once you start providing you have no adverse reactions. Read More Read Less

THIS HAS BEEN MUCH BETTER THAN MULTIPLE WEEKLY INJECTIONS BUT I HAVENT SEEN ANY CHANGE IN DISEASE ACTIVITY.

works very well. No relapes in 13 months.

Other than making me a "junkie" for the treatment I am extremely happy with how my body responds to the infusions ever 30 days usually after about 25 days I feel the need to get infused by the 30th day I am so fatiqed,memory loss.etc....I wised I did not have to wait the full 30 days

I recently received my first infusion on Dec17 and will be looking forward to getting my 2nd on Jan14, other than feeling very tired all the time, the medication I believe will begin to show some difference as the infusions increase...

Was on rebif (2-3 relapses per yr), then Copaxone(7 relapes in 8 mo). Didn't know about 6 mth period of waiting for Copaxone to kick in. Put on Tysabri, 0 relapes in 10 months so far. Works immediately, safe to use. Other than regular numbness I've always had, I feel the same I did before my MS diagnosis.

I have been on Tysabri for 15 months. I get no side effects( as I did for 8 years on avonex) I had been hospitilized two times in three months prior to my infusions. I am not dancing in the street but I have not gotten worse. Something avonex could not do for me.