Show ratings & reviews for

4.3 Overall Rating

Effectiveness

Ease of Use

Satisfaction

Most voted positive review

45 People found this comment helpful

Extremely tired first few days after each monthly infusion. Followed by significant improvement of most aspects of my MS. Have had MS for 23 years, and Tysabri has proven to be the most effective treatment I have received thus far.

Most voted negative review

7 People found this comment helpful

stoach pain,diarea,increased joint pain"hips".low energy.loss of appitite.

Shared reviews and ratings

Colt Albrecht | 19-24 | Male | On medication for 2 to less than 5 years | Patient
8/22/2012
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

When I moved up North to Ohio, the Mellen Center took me in and my Doctor recommended Tysabri. My 26th infusion is next week and I will have to rate it very high because I've had no relapses at all or signs of M.S. note though that I am 20 years old and have had a major relapse and minor relapse so my walking and touch are still operable. Overall this is a great drug taken once a month.

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Anonymous | 65-74 | Female | On medication for 2 to less than 5 years | Patient
8/5/2012
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I haven't felt any side effects from Tysabri other than a couple days of fatigue.

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Mswoman | 45-54 | Female | On medication for 5 to less than 10 years | Patient
6/29/2012
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

I have been taking this for over five years. It is better than Avonex, whose side effects were terrible. It has really done nothing in general for me. My MS still progresses.

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suzie Q | 45-54 | Female | On medication for 2 to less than 5 years | Patient
6/21/2012
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

In July 2010 I had yet my second MS fair up in my vision. My Neurologist switched me from Copaxone to Tysabri. I started the infusion in Sept. 2010 and found myself extremely fatigued after, so following month took the day off at work (so I could go home to rest/sleep. They had taken a blood sample in Oct 2010 to test for JCV Virus for the TOUCH program for Biogen. In Jan 2012 my neurologist fianlly told me I was positive for the JCV Virus that can cause PML. Well, I promptly changed my Neurologist and Infusion Center! To continue exposure every month for possible Brain Infection should have been MY CHOICE not the greedy facility & doctors choice! My new neurologist is keeping my infusion to every other month to keep the risk of PML down. He wants me try BG12 once it is approved (also a Biogen Product). Tysabri has worked well for my RRMS, but I am looking forward to BG12 in Dec 2012 or Jan 2013.Read More Read Less

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Anonymous | 35-44 | Male | On medication for 1 to less than 2 years | Patient
6/18/2012
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

I was diagnosed with PPMS 8/10 and started Tysabri therapy 11/10. The once a month infusion takes four hours and I have had no extraordinary side effects or increase in symptomatology.

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JennB | 35-44 | Female | On medication for 1 to less than 2 years | Patient
6/17/2012
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

Tysabri is the drug for me. I teach school and work 1/2 a day and then go take it and am fine the rest of the day. I don't even have to worry about taking anything for the next 28 days. Before I would dread the shot I had to give myself the whole day. I also had one medication make me feel like I had the flu everytime I took it and that was no fun. Tysabri might not be for you but is right for me. I have had a headache the day before on some occasions but that might just be a headache. Nothing to complain about.Read More Read Less

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Brian | 25-34 | Male | On medication for 2 to less than 5 years | Patient
6/15/2012
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I have been on Tysabri for 2 1/2 years. I am very pleased with the results thus far. I do get tired after my treatment and sometimes into the next day, but it is nothing like the side effects of the medication I was on before, which did not work for me. Usually, as long as I do not over-exert myself the day before my treatment, I do not feel as tired after my treatment (I have noticed a correlation there). I have had no new lesions since being on Tysabri. MS affects everyone different and the disease progresses differently for everyone, but Tysabri has worked for me thus far. Read More Read Less

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eileen | 35-44 | Female | On medication for less than 1 month | Patient
6/4/2012
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

Had first infusion today! Very easy. Treatment took 3 hours total for paperwork & treatment. I feel just fine and went back to work/lunch same day.

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ginabeth | 25-34 | Female | On medication for 1 to less than 2 years | Patient
5/22/2012
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

has stopped my progression i beleave.

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Anonymous | 55-64 | Female | On medication for 1 to less than 2 years | Caregiver
2/15/2012
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction
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Anonymous | 55-64 | Female | On medication for 5 to less than 10 years | Patient
1/19/2012
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

For me Tysabri has been a great MS medicine for me because I do not have any side effects like I had with the other meds I have taken. After the infusion process, I am able to function fine. With all of the others I had the flu-like symtoms and felt bad for the first 2 to 3 days after the injections. Needless to say, I will stay with Tysabri until my doctor changes my MS therapy or there is a cure.

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Giny | 65-74 | Female | On medication for 2 to less than 5 years | Patient
1/11/2012
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I was in a wheelchair before Tysabri. I have been on it almost 3 years. It has made a difference in my life. My husband agrees.

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Anonymous | 25-34 | Female | On medication for 6 months to less than 1 year | Patient
12/26/2011
Condition: Other
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

I am 28 years old and I have been living with ms for 3 years finally getting dignosed in 2010! This drug has did anything but made my situation worser!

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Niquo1 | 35-44 | Female | On medication for 1 to less than 2 years | Patient
12/11/2011
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I took Tysabri for 19 months, and stopped because my JC virus test came back positive. I am now trying Gilenya and am finding that I'm having yeast infections just like I did on Tysabri, so I guess that's my body's way of dealing with an immunosuppressant, but I thought it would have been nice to hear that others are like me so I'm sharing. With the Tysabri, the yeast infections occurred 4 out of the first 6 months, so my infusion nurse gave me low dose oral yeast infection treatment with the infusion and that worked to prevent them for the next few months, then I stopped needing to do that. I also moved the infusion to after my period which might have helped. Other than that adjustment time to get the yeast infections under control, I had absolutely no side effects and had great MS control - I actually felt normal for the first time in 15 years! I'd had no idea how awful the CRAB drugs made me feel until I stopped using them. When I went off the Tysabri for the holiday before Gilenya, I felt more fatigued, more spastic, and more cognitively challenged...so I know Tysabri had been helping in addition to preventing flareups. Wish I'd been JCV-negative!!Read More Read Less

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tikadawn | 35-44 | Female | On medication for 1 to 6 months | Patient
11/8/2011
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I was diagnosed in March 2010, started Copaxone and was satisfied. New Neuro didnt like that they found two new lesions on latest MRI, suggested Tysabri. 1st infusion was October 2011, which went well except I have very hard to find veins, and nurse had to "poke" me 4 times. No side effects, except I did have a almost faint spell while taking shower and wasnt sure it Tysabri caused this or not?? Im looking forward to the 2nd infusion November 17, 2011. One thing is I have not felt "foggy" and afraid to drive as used to feel all the time. I hope this drug continues working its magic.. Read More Read Less

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Anonymous | 45-54 | Male | On medication for 5 to less than 10 years | Patient
11/3/2011
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I was using a wheelchair for four years before Tysabri came on the market. Now I walk several miles each day.

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lentra | 55-64 | Male | On medication for 1 to less than 2 years | Patient
10/7/2011
Condition: Severe Type of Inflammatory Bowel Disease-Crohn's Disease
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

Have had Crohns for 40 years, multiple resections, only 100cm of small bowel left, cannot afford any further resections. Tried Remicade, Humira and Cimzia to no avail. Been on Tysabri for 18 mos and in remission all this time. Also had leaking fistula which closed up on Tysabri. Has been a lifesaver for me, feeling good, put on weight and no major side effects.

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LD Wear | Male | On medication for 2 to less than 5 years | Patient
9/26/2011
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I have been on Tysabri for 4 years now.Due to PML threat recently went to every 5 weeks.Noticed decreased effectiveness.Had JV avtivirus test.Now back on 4 week sch.I had been on all 3 ABC`S at var times,this one is the best! Least side effects(other than Copax)

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Dori | 35-44 | Female | On medication for 2 to less than 5 years | Patient
8/19/2011
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

Tysabri has been a life saver for me. I was still continuing to slowly worsen and I've tried all of the ABC drugs. I've been on it for 2 years with no major exacerbation.

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Amanda224 | 25-34 | Female | On medication for 2 to less than 5 years | Patient
8/16/2011
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

This has been the best medication ever! I don't have to give myself daily or weekly shots with a ton of side effects. I have zero side effects with Tysabri, and have been on it since it first became available. I have only had one MS relapse since beginning this treatment, and my neurologist says I am one of the healthiest MS patients she has ever had.

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