User Reviews for Tysabri intravenous

This treatment has improved my condition greatly. Works greatly to give me a better quality of life. I am looking forward to doing more with my daughter. She is seven years old and for much of her younger years I could not walk and lost my sight for a year. I am very happy with this drug and thank God that it helps and works.

ihave had 53 injections, and am doing pretty good, excet that i have now tested positve for jv antibodies, what do you guys think?

I was immune to Betaseron so my Dr put me on Tysabri. For the last 37 months it has been great then in March my liver enzymes shot up and my Dr took me off. I am looking at Copaxone and Gilenya now but I really miss my Tysabri. It was like I didn't have MS.

3.5 years without any difficulties or negative side effects

I have had MS for five years. I started taking Rebif when I was first diagnosed (for the first 2yrs) which seemed to work until I developed drug resistent antibodies to the drug and had a full blown attack with quite a bit of permanent damage. I then started taking Tysabri and have been on it for 3 yrs. I have not had any MS attacks since. I haven't had any side effects from Tysabri and my MRIs have all been good...no new "white spots"! I've just started taking Ampyra as well (to help with my walking and balance)....I hope that with these two drugs I can live an almost "normal" life!! I am very optimistic! I would highly recommend Tysabri, it's worth the risks/possible side effects that are very rare. Please give it a try.Read More Read Less

Been on Tysabri almost 3 years and going strong. No new lesions, and it appears to be preventing relapses as I have had none. Used to be on Betaseron for 2 years and although it was working, the side effects of the interferon was crushing flu like symptoms, and had injection site issues. I had a port implanted about a year ago which helps tremendously with the Tysabri infusions. It was slow but have felt an increase in energy and the worst side effect I've had is a very mild headache/fatige the day of the infusion. I think this is the best drug out there efficacy-wise and I will remain on it.Read More Read Less

Diagnosed with MS in 2007. Started on Copaxone, then Betaseron. Developed more lesions and had a series of 3 relapses and moved to Tysabri. Took it for 8 months and health stayed constant with no more relapses but developed an allergic reaction (skin rash spreading). Overall this drug seemed to have helped me the most. Now on to step 4 (N/A)?

VERY GOOD

Tysabri has given me my life back. I was scared of using it at first, because I did read up on the PML cases. There have been many more of us using Tysabri now and no new cases among us. the drug has had no side effects for me. I no longer feel every day as if I am losing my mind, and my energy is so much higher. The infusions are painless and give me a lovely time to rest once each month. Then I can just live and not constantly focus on MS. This drug has changed the quality of my life for the better.Read More Read Less

This is my second time on this drug; have had MS for 13+ years; neg reactions to other MS drugs. Everybody gets their own version of MS, but this drug does the best for me! MD keeps tabs on markers for PML as I had 22 infusions before stopped for 1yr. (Rebif+Solumedrol..yuk!) Am now on 2nd infusion; it seems that most of my symptoms either go away or are minimized; I am still dealing with other health issues, but ok..MRI done upon change or every 6 mos, bloodwork every 3...

After taking the ABC drugs and having my 3rd child at 37 and unusual worsening during the pregnancy and after, I have been relapse free for 2 & 1/2 years on Tysabri.

I been on this for 13 months

Got diagnosed with MS in 2010. Immediately started with Tysabri because of severe progression (spams, eyesight, hand, legs problems and terrible pain). It takes about 3-6 months to see if it's working. Last MRI showed that my brain now is free from inflammation. And symtoms have dramatically improved for me. :-)Happy this drug is on the market. Easy to use..only once every 4 weeks. Usually get nautious some time afterwards, but I don't get too bothered about that seen the advantages it has given me. Read More Read Less

monthly infusion x 1 no side effects other than brief fatigue during treatment. and a hot flash x2 i feel it has changed my quality of life dramatically. i cannot imagine my life without it, as it has kept me symptom free for 2 and 1/2 years. it has been a Godsend for me.

Diagnosed Jan. 1999. My symptoms were my balance and numbness in legs and feet. Started Avonex in 2000 until the trial started for Tysabri. Been on the drug minus the time it was off the market. Have not had any side effects from the drug. Only felt better with every dose. All symptoms were gone by 3rd treatment. No changes in my ms since. I am back to bowling. As for the PML, we were tested to see if we have it when they pulled the drug. It is a concern, but the benefits of this drug far out way the worry. Ask your doctor if you can be tested for PML. Your immune system has to be totally compromised for you to get PML. If your doctor does the Touch Program, you should have no problem. Just make sure to report any new symptoms. Read More Read Less

I've had ms 45 yrs now. No drugs available until 1994, started betaseron for 12 yrs, started as rrms, after 25 yrs or so started worsening daily, betaseron came into play 2 yrs after worsening to spms, so after 12 yrs on beta, I couldn't wait for tysabri availabiity. I did take novantrone 2002-4 stabilizing sx, tysabri started 9/06 + has kept me level since then, no worsening, no side effects. I'm not walking at all since 2002 after 5 severe falls fracturing many bones, much safer in wheelchair, have no balance at all, I do NOT expect tysabri to get me out of wheelchair. I have NO FATIGUE, big plus in my life. I want demyelinating repair in my lifetime, I want the tight spasticity in left hamstring relieved so can get 2nd foot to floor. I have true hope in an additional treatment of sx like CCSVI possibilities, also the GIFT15 in Montreal research looks promising as well as a similar mice research in N Caroina showing injections of two proteins removed all ms sx in mice. I'm hopeful in my lifetime I'll see major options for improvement NOONE can take away our HOPE. Read More Read Less

I was extremely satified with Tysabri until I started getting major dizzy spells and feeling like I was going to pass out! I don't know if it's the Tysabri but it seems to be in conjunction with my infiltrations. I was sent to ER last week for it so I guess I need to find another medicine. Any ideas???

Have been on the drug ever since it came out minus the amount of time that it was taken off the market. I was in the beginning having issues with vision and being dizzy. Have not had another episode that I can account for since September 2004. This last month Had an MRI with no new lessions can not wait for the next one...