Reviewer: Zicontideguy, 45-54 Male on Treatment for 5 to less than 10 years (Patient)

Comment:
Ziconotide (Prialt) patient since 2008. Diagnosed with CRPS in 2005, left leg amputated 2007 after work accident in 1999. When they 1st started with the pump, I encouraged them to increase it as fast as possible. Mistake, a few months into it, they had to cut it in half. That was down to 4ug per day,I am up to 17.291 as of March. Before this drug I was in horrible, horrible pain and strung out on ... Show Full Comment

Comment:
Ziconotide (Prialt) patient since 2008. Diagnosed with CRPS in 2005, left leg amputated 2007 after work accident in 1999. When they 1st started with the pump, I encouraged them to increase it as fast as possible. Mistake, a few months into it, they had to cut it in half. That was down to 4ug per day,I am up to 17.291 as of March. Before this drug I was in horrible, horrible pain and strung out on oxicontin and percs, huge doses every day and suffered not only with pain but withdrawals running out too soon etc., you've heard those stories. I've only been getting 1/2 mic increase per day recently and close to having to stop increases. They say you don't acclimate to the drug, but you do acclimate to the side effects to a point, take it slow enough and you can avoid side effects entirely.Any of you thinking about having a pump installed and trying this, especially those strung out on opiates,GET ONE at all costs. Suboxone will detox U WITHOUT any side effects what so ever. You have to be under psyc care for this prescript but well worth it. Y'all suffering for no reason, while not(and never will be)totally pain free, not by a long shot, it is tolerable. The burning pain was worst, like pouring boiling grease on your legs and just sitting there, trying to think, or do any thing at all. I was thinking of ways to off myself, now just regret all the living I could have been doing. No ones fault,this is a Great drug, no high's, no drunken feeling, just some pain relieving miracle, brought to you by a little cone snail in the Philippines, and an intrathecal pump. And that big needle every 2-3 months for refills.
Hide Full Comment

Reviewer: chronicpainggrl, 35-44 Female on Treatment for less than 1 month (Patient)

Comment:
I have not tried this BUT PLEASE report these side effects to the FDA at 1-800-FDA-1088. Unless you do this nothing will be done with this drug, nothing will get done just by posting on here but helping others, you want it off the market, tell the FDA!!!!!!

Comment:
I have not tried this BUT PLEASE report these side effects to the FDA at 1-800-FDA-1088. Unless you do this nothing will be done with this drug, nothing will get done just by posting on here but helping others, you want it off the market, tell the FDA!!!!!!
Hide Full Comment

Reviewer: carrriej, 25-34 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
This medication was a nightmare. It not only caused mental health issues, but caused neurological issues and increased pain. I had adhesive arachnoiditis and the side effects that Prialt was causing was believed to be my diagnosis until I went off Prialt. Caused nereve pain, loss of function from waist down(including bladder, bowel, and loss of feeling in leggs). I am now doing great with anot ... Show Full Comment

Comment:
This medication was a nightmare. It not only caused mental health issues, but caused neurological issues and increased pain. I had adhesive arachnoiditis and the side effects that Prialt was causing was believed to be my diagnosis until I went off Prialt. Caused nereve pain, loss of function from waist down(including bladder, bowel, and loss of feeling in leggs). I am now doing great with another medication and feel that I lost 3 years of my life do to this drug. I curious if there has been any studies to the effects of Prialt on dental and eye health. Both have severely been affected in a short time, and I suspect Prialt may be connected.
Hide Full Comment

Reviewer: Rnomore, 45-54 Male on Treatment for 6 months to less than 1 year (Patient)

Comment:
This medicine should be taken off the market! You can go psychotic while on it. Also, it seems most of the reviews from this and prialt (the same thing )many people have side effects of going crazy, severe memory loss, mania and suicidal thoughts... in which I wonder if there has been death related suicide due to this horrible stuff. I will never recommend or go on this medication again and I hope ... Show Full Comment

Comment:
This medicine should be taken off the market! You can go psychotic while on it. Also, it seems most of the reviews from this and prialt (the same thing )many people have side effects of going crazy, severe memory loss, mania and suicidal thoughts... in which I wonder if there has been death related suicide due to this horrible stuff. I will never recommend or go on this medication again and I hope I don't have permanent memory loss from it! I'm sure a class action law suit is in effect because of this medication.
Hide Full Comment

Reviewer: rsds2hrd4me, 35-44 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
Currently receiving Prialt(ziconotide) in implant pump for RSD/CRPS full body. I can not distinguish the effectiveness of this medication because of my RSD progression and sensitivities to opoids given for breakthrough pain. The mental changes have been most tramatic/dramatic since initial dosing. While I am funtional I suffer great memory loss, confusion, anger and depression.. For this reason I ... Show Full Comment

Comment:
Currently receiving Prialt(ziconotide) in implant pump for RSD/CRPS full body. I can not distinguish the effectiveness of this medication because of my RSD progression and sensitivities to opoids given for breakthrough pain. The mental changes have been most tramatic/dramatic since initial dosing. While I am funtional I suffer great memory loss, confusion, anger and depression.. For this reason I DO NOT recommend use of this med without strict discplinary psychiatric evaluations and intervention. I was told of the symptomatic paralysis in case of overdosing and that it would wear off. I was told jokingly that prialt could make me crazy..I smiled confusingly and commented, "it can't be as bad as RSD" and the PM laughed that day. Today I cried. My miracle snail has poisoned my mind and that doesn't go away.
Hide Full Comment