User Reviews for Revlimid oral

Caused my skin color to change darker especially in the palms of my hands. My red and white counts elevated. My platelets did decrease, but my energy level is not what it is now since I am no longer taking the highest dose available wich I think may have been the problem.

My Dad started taking Revlimid three months ago, 21 days on, 7 days off. He took it for three months. It did not work for him at all. In fact we believe it caused him to have a mini stroke which then made him bedridden. My dad passed away on 1/22/09.

I had stage 2b/3 CLL at age 48. I have been on Revlimid (clinical trial in Canada) for 24 cycles. I am currently taking 20 mg. My counts have been in normal range for six months. I have few side effects; certainly nothing compared to what chemo would give. I am fatigued; the doctor doesn't know if this is a side-effect of Revlimid or lingering CLL. I have my follow-up CT scan and Bone marrow aspiration in two months to determine the extend of remission. I am so thankful for this drug; particularly that I am receiving it through a clinical trial at no cost to me. Everyone has a different story, but mine is a good one. Thank God for Revlimid and for Princess Margaret Hospital; Toronto. Both have been life-savers. Read More Read Less

My father has been on revlimid for 11 months. 21 days with 7 days rest. Last month he developed Shingles and a blood infection. His doctor said its from the revlimid that lowered his white bc. He passed away on 10/01/2009 due to a heart attack. I strong believe he developed a blood clot or pulmonary embolism and that killed him. He had never had any issues with his heart.

This is my second time on Revlimid - I have had a couple rough weeks, and realized that caffeine and revlimid do not mix! My hands and feet were tingling, my face was numb, my chest hurt, I was dizzy, my vision was blurred. I decided to try no caffeine and I feel 100 percent better!

My husband was on Thalomid. Went into remission and numbers were good until last month. Dr. put him on Revlimid and he is so darn sick. Just two days and he is exhausted and can't sleep and rash and itching all over. I'm trying to talk him into going back to the Thalomid.

various side effect, including stroke and extremely low platelets

Before I started taking revilmid,I slept sitting on a computer chair for five montor hs.After being on the revilmid for two days, I felt 70% better.

My counts have gone way down but other than being tired some times, the drug seems to have worked. I am 7 years out from two stem cell transplants.

Took once a day 5mg.tab. broke out in a rash , felt really tired, had trouble breathing, fluid build up, discontinued treatment

Great stuff! Only on drug for 5 mo. due to blood clot and then hemmorage from resulting coumiden treatment. However have had complete remission for 3 1/2 yrs based on 5 mo. treatment. Started with 25% MM cells,pain and many bone lesions.Side effects:loss of taste,blood clot,weakness,constipation,NO MORE PAIN,STOPPAGE OF BONE LOSS.

Revlimid side effects completely debilitated my physical condition, constant buzzing headache, nausea, tingling in lower arms and fingers, constipation, diahhrea, and worst of all severe and constant spasms in back and lower back, bone pain in ribs, spine, and lower hip, muscle cramps, could hardly walk, couldn't sleep, I felt like everything in my chest was swollen and irritated. All this on only the first cycle, after which my doctor took me off Revlimid. More than a month later still have the chest, rib, and back pain. I'm in fairly early myeloma and they started me on the highest dosage, maybe that was a problem.Read More Read Less

I took Revlimid for relapsed, transformed NHL.Good response at 3 mos. Discontinued at 8 mos due to gradual disease progression. Initially horrible back pain, then chronic diarrhea. Still, it had fewer side effects than most chemo. No flu-like symptoms, mouth sores, or infections. Sorry it stopped working.

Has been a lifesaving drug for my Myeloma.Have developed Blood Counts Issues.

Have been on since Oct. counts have dropped significatly. Only side effect is that I get tired maybe 1 or 2 days during 21 day cycle.

I've been taking Revlimid for 18 months and have no significant side effects. Hemoglobin counts went from 6.8 to 12.2. Feel like a new person.

I have experienced severe swelling in my feet, legs and the left arm. Also swelling in the groin area. I have experienced very itchy skin in most parts of my body. I gained 20 pounds in two weeks using Revlimid Oral. I have also experienced a sore mouth and throat with this drug