User Reviews for Sutent oral

My wife (49) was diagnosed with kidney cancer in december of 2010, she had a partial nephrectomy for the tumor. About 8 months later i noticed a lump right on her scar line towards her back, she had a ct scan done and it was confirmed as cancer. She was referred to cancer and kidney specialists and was set up to take sutent 50mg. She was on her third week of taking the pills and started to experience mouth sores, vomiting, no apetite and general weakness. At this point i took her to the ER to have them help with the nausea and mouth sores. She was admitted at her own request. The next day she had been seen by a nutritionist and a kidney DR, also an infectious disease DR. He in formed her that she had a UTI. I spoke with her on the phone that night and she seemed ok and said that she was able to drink a can of ensure thanks to the oral medication for her mouth sores. The next morning i received a call from her doctor who said that she was having trouble breathing and they had to intubate her per her permission, he asked if she had any asthma problems or allergies and i said no. The doctor called me back about 20 min later and said that her heart had stopped 3 times. I was at the hospital by now and saw her in ICU and basicly on life support. He said she had fluid in her lungs and fluid around her heart and here organs were being compromised due to the lack of oxygen. Her pupils were unresponsive and to make a long story short, she passed away several days later after 3 more heart failures, nothing else could be done. WHAT HAPPEND? What happened overnight in such a short time, this was a nightmare! I feel the sutent compromised her immune system which caused her UTI to become septic and therefore kill her!Read More Read Less

Medication causes blisters on my fingers and feet, which are very painful to grip anything or walk with out any pain. it seems to attack bunians on every toes where their is one and on the bottom of my feet.

Three years ago my father was diagnosed with Stage IV renal cancer that had metastasized to his lungs. Without any treatment, he was given 6 months to live. He was too ill to tolerate surgery so we decided to try Sutent. He was initially given 50mg daily and became deathly ill. The Sutent was then decreased to 25mg which he tolerated fairly well. He has experienced all the side effect (fatigue, diarrhea, swollen ankles, hair turning gray, hypertension, watery eyes, etc) plus some. The cancer shrunk significantly and is now basically in a "hibernation" mode. Currently, he is doing fairly well and we feel blessed to have him here. Here's the new problem. The Sutent appears to be damaging his kidney function. Dad's kidney function tests went from 58% in 2008 to 44% in 2009, to 21% in 2011 (for some reason it was missed in 2010). If Dad drops to 15% we will need to start dialysis 3 times a week. Not a great option. We are now torn between trying a new medication or spreading out the time between dosage breaks. So, watch your kidney function closely. Controlling cancer is one thing but killing your kidneys in the process is not good either. Read More Read Less

Had rcc in lungs about 5 years. On Sutent about 4 years. Minimal growth each cat-scan. Tired heavy feeling legs,loss of appetite, heart burn, sensitive mouth, some diaherra & fatige, watery, puffy eyes are the main side effects experienced. As time goes by, feeling more tired,less energy. Overall has been keeping the tumors small with minimal growth.

Had my left kidney removed in 1999 due to rc cancer. No problems until 2004 where it had metastised to my right lung. Radiation successful, except for scarring of the lung. In 2006, it had metastised to the tail of my pancreas. Radiation shrunk it, but did not remove it. Later scans showed it had gone back to my lung. The last scan showed it had gone to my liver. Am now on Sutent. It's too early to judge the effectiveness. Side effects have been mild, so far.

My husband, had right kidney removed for RCC, 6/07. Also effected several lymphnodes. Sutent was the first oral chemo he go. It lasted/worked for 22 months until it failed and he moved to another chemo (next was Afinator which lasted 11 months). He now is on Votrient. It has been over three years now, and he's still alive and active (thank our Lord!), but Sutent had the worst side effects of any chemo. His feet were so sore (bottoms) and hands, that especially his feet, he said when he walked, it felt like walking on shards of glass. Also diareaha, but it worked ALOT longer than the average person, and he is only now slowing down on work (fatigue from lastest chemo) and it's been three years. He's stage 4, and still works on his FEET (in retail) all of this time with oral chemo, so it's been a real blessing. That's been our expeience. Thanks for listening/reading. ~~A greatful Wife in ILRead More Read Less

Great med worse symptom extreme fatigue I'm taking med for thyroid problems due to sutent will ask. My Dr next office visit to reevaluate correct dosage or refer to an endocrinologist will post something Future if I see any results

Just finished 3 months of treamtment, had a positive result on my scans, the kidney and vena cave were full of cancer and surgically removed in December, at that time I had 6 or 7 nodules in my right lung with the largest one about 2 cemtimeters. The first set of scans after taking the drug showed the largest one of these nodules had shrunk to about 1 centimeter and the others were shrinking as well. Side effects minimal and well worth the results. Worst thing was occasional diahrea but controlled with Immodium very easy. This drug has let me continue to lead a normal life so far. Hope we seee the same positive results on my next set of scansRead More Read Less

After il-2 did not work , started sutent march 2009 so far side effects cracked elbows and feet muscle spams ,always suffered back pain which makes it worse burn easy in the sun , fatigue, stomach problems otherwise cells are stable hopes continous to work

this treatment is awsome. I love drugs.

i have been on sutent know for 17 months,i have liver metz, the tumours have turned to cysts, which is great news for me, i am coping with the side effects, hand and foot syndrome, diarraha, my hair turning white,(everyone says it looks great), have now got an underactive thyroid,so im on medication for that,but they do get easier, and as long as the sutent is working i can cope with any side effect.

My husband was diagnosed with esphageal cancer on september 18 2009. Went on Sutent and Taxol in october. Developed a rash on his buttocks was told that it was shingles and that the sutent could not have caused it. By november the rash was worse. Then diagnosed with a staph infection. Still according to the doctors not caused by the sutent. By the end of november the rash was oozing and the skin was turning black. He was admitted to the hospital december 2nd. Where we were told that the staph infection he had was acctually MRSA. The cancer treatment center never informed us that he had MRSA when they knew about it back in november. Needless to say they still recomended he stay on the chemo and sutent as he was part of a trial. The hospital immediately stopped all cancer treatments and started him on antibiotics. As a result of his weakened immune system the antibiotics caused his kidneys to fail. By december 8th his lungs had started to fill with fluid as he was bleeding internally. At that time he was placed into Hospice Care as there was no hope for any kind of recovery. He was allowed to come home where I could take care of him until he died December 20 This was after the doctors assured him if he went on the sutent trial he would have a life expectancy of a year or more instead of the 3 to 6 months without the treatment. At the time of his death he wished that he had never gone on the sutent. So anyone out there on Sutent please pay attention to anything that just does not seem right especially rashes. I read that this had also happened in France in another Sutent trial for the same thing my husband had. Read More Read Less

Almost 2 yrs on drug. Qtrly CAT scans show no added growth in tumors. Side effects: diarreah, lethargic, very tired, no taste, even mild foods burn (use Biotene instead of reg toothpaste), high blood preassure, elevated thyroid counts. All side effects controllable with drugs or OTC medications. On balance, a good drug for RCC.

Side effects are rough include loss of appitiie, Sore hands and feet, diahrea,sore mouth. this goes away when on the 2 week off period

my mother has been on this drug for less than a year. At first the side affects were awful and she was removed from it. Then they lowered the dosage, now for the most wonderful news of all. This drug only helps 30% of people, she was told this drug would not save her life only prolong it. Well, she started with tumors in her lungs, her glands and in her liver. Now she has NO tumors in her lungs, no glandular cancer and only a small amount of tumor left in her live. A drug that we were told might prolong her life has saved it. The doctors have actually mentioned the "r" word. After this next dosage the cancer in her liver may be gone completely and we can say she is in remission. I cried when I heard the news.. Thank gods for this drug. Yes it only helps 30% but those 30% it could be a life saver for!!Read More Read Less

Gas Diarrhea Stomach Cramps Feeling Weak Feel Like Throwing Up Decreased Blood Platelets Decreased Number of Lymphocytes in the Blood Excessive Watery Eyes Sore Tongue Muscle Pain

Last 3 days of use during 4 wk duration felt very lethargic with sore feet and hands. Forced myself to go walking every day, this helped with my healing process.Loose stool and high blood pressure last week of medication. Easily corrected with drugs.

Like mustangRZ I too have been taking Sutent for two years. I started taking 50mg, but like so many others, I had horrible side effects. My doctor kept a close eye on the effects and decided to change the dose to 35.5 mg. I still get side effects, but not so severe. I take 1 pill a day for 28 days then off for 14 days. I still work every day and for the most part feel pretty darn good.

I was diagnosed 6/17/09 with Stage 4 metastasized renal cell carcinoma that manifested in my right lung. I started Sutent 50 mg on July 3rd. Had to discontiue on July 20th due to having ALL the side effects. I was prepared for one or two, but not all of them piling on between the 2nd and 3rd week. Just as they all piled on, my wife fell and shattered her knee cap and broke her wrist. She was in the hospital recovering from the surgery and I was home too sick with Sutent side effects to go see her in the hospital. I had the sore mouth, bleeding gums, a huge ulcer formed on my tongue, incredible nausea that exceeded the nausea drug's ability, fever approaching 102, painful swallowing, extreme fatigue, more than normal shortness of breath (I also have CHF & COPD which produce shortness), diarrhea, sore and stiff neck and back, blood pressure dropped as low as 69/35 (nearly called an ambulance, but it came back up some). I quit the Sutent. After a month off of it, I'm normal again and have restarted this week at 2 12.5 Sutent per day. In 2 weeks we will increase to 3 per day and finally 4 per day in hopes to avoid the side effects. No cat scans yet so I haven't a clue if it's actually working yet.Read More Read Less

I am a caregiver of a stage 4 Renal Cell Carcinoma patient which has spread to his pelvis, bones, lymph nodes, lungs, and more. His doctor recommended Sutent. She gave him 1 year or less to live. He was on Sutent for a total of 5 weeks. Two weeks on and then off because of complications the Sutent caused. In and out of the hospital we were with 2 operations because of the affect that Sutent had on other functions. Sutent was killing him faster than the cancer. He stated that his insides felt as though they were disolving. Sutent made his sugar level rise to nearly 200 which made for an emergency trip to the hospital which was a nightmare. Sutent gave him gout in both feet. The exhaustion and lack of appetite was overwhelming. He lost 10 pounds in four days. He could not taste most food and what food he could taste was horrific tasting. Smells made him ill. His quality of life was far worse on it than not being on it. Since going off the Sutent he has gained 16 pounds, eats like a lumberjack, has planted a 70' x 30' garden, a 40' wildflower garden and is taking supplements and poly-mva. He has stopped eating meat and cut out all sugar. He looks great and is regaining his muscle back. We have taken the Holistic way of health which includes mind, body and spirit. It is eight months later and we are convinced that if he had stayed on the Sutent he would not be with us today. Perhaps you should restrict your useage of Sutent on further testing of labratory animals. Read More Read Less