User Reviews for Sprycel oral

Started on Gleevec, caused severe bone pain, stopped working, switched to Sprycel, can only tolerate lowest dose, 50mg, still have severe bone pain as well as quite a few other side effects. In remission for the last year or so. On disability, not able to function well due to pain and pain meds.

Compared to Tasigna, (Nilotonib), which has a 3 hour food window twice a day, this has been so much easier, and I am able to maintain my weight. Since I have been on Sprycel, my CML has gone from 27% of my blood, to 1/10th of one percent. I am currently in both molecular, and cyber genetic remission. I should remain this way, as long as I take Sprycel everyday, for the rest of my life.

At first like any medication you need to give your body time to adjust. For those that complain of yest infections wash you self with water every time you use the bathroom and dry with toilet paper. Don't just wipe with toilet paper. I went to MD Anderson for a second opinion. I needed to know if i was taking all i need to take and if I could push my self or just lay back and stay tired. After being told that I vould push my self I went back to the gym and started off as someone that just started working out. It takes time to get your body back to a normal routine. I did what I could and worked my way up. After a couple of weeks I was back to normal. Now I'm able to take two classes back to back and feel great. I do step, Total body wheight lifting, yoga, treadmill, eleptical, my oncologist homogoligest doctor put me on a dieratic for my water retention. You have to see a hemotioligest no just oncoligest. If you could find on that is both even better I am not letting this control my life. I am trying to take control of it. I have my bad days, but very few. I was diagnosed in mid January of 2012. My white count was back to normal within 3 months after taking the Sprycil . I have been in remition for 2 months now. I'm scheduled for another bone narrow on the 16th of this month in MD Anderson. No one should ever give up. You can turn your self around. After all it could be worse. I am very thankful to god that Sprycil is available for our condition. I sometime forget that I have CML. Read More Read Less

after taking this med for 5 yrs i just recently started having severe joint and bone pain.

Started on Gleevec when diagnosed 6 years ago. 1.5 years in, switched to Sprycel, could barely function on Gleevec from extreme nausea. Minimal side effects on Sprycel. Full remission for 6 months now. Minor side effects: occasional nausea, heat intolerant. Able to fully function. This drug saved me :)

Diagnosed Ph+ CML 04/07 when 67. On Gleevec until 10/2007 with good results, but with strong side effects (skin sore, cramps). Changed to Sprycel 11/2007 with very good results up to date 04/2011 (major cytogenetic remission, Bcr-Abl/Gus < 0.1 %). No side effects at all. I live as if I had no illness. Only have to take 2 x 50 mg pills daily. I feel very fortunate.

Achieved PR undetectable in five months on Sprycel and maintained PCRu at 8 mos after developing severe hepatotoxicity to Gleevec afer five months of its use. Mild side effects noted mostly skin issues and fatigue but I am fully functional.

I started this medication as a "last" alternative to a BM transplant. Since taking Sprycel my CML is in complete remission. No side effects worth mentioning at all. I was given the "6 months" to live talk almost 2 years ago. With 2 small kids, a wife and under 30 things looked ugly but im still around! THANKS SPRYCEL!!!!!!!!!

I have severe headaches, joint pain, and fatigue with this drug.

Having many side effects from Gleevec 400mg (tried less and vacations from it, too), after 8 mos. was switched to Sprycel. Four months later (11 mos. from diagnosis) there was no trace of CML left (PCRu). Some fatigue is main side effect, slight edema. Mainly, within two days of starting Sprycel, the brain fog lifted. Am very happy with Sprycel.

this treatment is awsome. I love drugs.

I need this medication the AARP cut me off JANUARY 2010 I am starting to have headach again whe I went to fill my perscription the phamisist wanted $4554.86 I do not have any money for these meds I make 11.00 per hour when I can work i any one know of an agency that can help call me 50mg 412-378-1454

after 10 months of use I have Pericardial Tamponade, and Plurel Effusion. I cannot take Gleevec or Tasigna due to severe reactions. Now its a waiting game to see what happens.

I was switched to Sprycel after developing both resistance to Gleevec and intolerance of the highest dose. My first few months on the drug (at 140mg) were very unpleasant, with severe headaches, enlarged and tender breasts, and constant bouts of mild to moderate fever. I also developed anemia and mild heart problems. After resting from it several times and going down to 100mg/day, I now tolerate it well, and while my PH+ number tends to rise in Winter I have generally low numbers of PH+ cells. I have been using it for more than 3 years now and am still stable. I have had CML for over 15 years.Read More Read Less

My father has been on this for 1 year, has extream weight loss. Continuous fluid in bothlungs requiring draining per aspiration several times and this week,chest tubes.

In 9/08 I was diagnosed w/ Philadelphia chromosome positive CML. I have a long history of migraines, that, w/ daily medication, have been under control since 2001.When I 1st started Sprycel, I had an almost constant mild migraine (yeah - an oxymoron) for 8 days. On the 9th day no migraine & I've been migraine free since. I've had no other side-effects. At my diagnosis, 88% of the cells in my bone marrow were leukemic. At my last biospy in 12/08, only 6.5% of my bone marrow cells were leukemic. So the Sprycel is working!Read More Read Less

I was diagnosed 3 years ago with CML, I was put on Gleevec which after one year my body rejected it. I was put on Sprycel 140mg. I was Philiidelphia Chromazone positive with CML. After one year I was reduced to 100 mg, now there is no PH positive in my blood, my leukemia is holding it's own on just 50 mg. I have had no side effects while on this drug like I did with Gleevac. My hair has grown back in, my potassium levels never drop out of the normal range now like it did on the Gleevac. I am extremely satisfied with this drug, and because it's less expensive then the Gleevac, it should be the first offered when first diagnosed. PatientRead More Read Less

Went into respiratory failure within 7 days of taking this medicine