User Reviews for Hizentra subcutaneous

I have to infuse 2 times a week. I have been on this med for about a year. I forgot what I infused with before that, but whatever it was, I could eat anything and never gain a pound. With Hyzentra I have gained 20 pounds over the last year. Other than that, I really havent had and side effects from this med. I hate the soreness that comes after I infuse. Doing it twice a week is hard. I have to look for NON bruised areas to inject.

Have been on Hizentra for 1 yr. No infections, however severe migrains, chills, fatigue, dizziness. Wasn't aware other people are having problems w/headaches too. Does anyone else take something for these migrains, or do we just suffer? Plan on speaking w/my primary after reading all the reviews that confirm it is not "all in my head".

Much healthier with this medicine. I love it. Just wish it weren't so expensive!

I have been infusing for 3 months. The day after I have stomach upset and seem to have more arthritic symptoms... hip and knees. Anyone one else having problems?

Since I have started Hizentra I have had weight gain. Just wondered if anyone has had a similar experience. I really haven't changed my eating pattern.

I have been on this med for 2 yrs. Each time there is a new side effect. I would say taking this med or dying I would pick taking this med.

I had an easier time when I used this in an infusion clinic. I found I had less frequent headaches when I drank lots more liquids 24 hours before and after infusing. I am now infusing at home with minimal support....very challenging, but a lot more flexible way of infusing. I had 8-10 months of infection/antibiotics before starting treatment. Now I have 2-3 infections a year that usually respond to one course of one rx.

Easy to administer and only takes approx from start to finish 2 hrs.

My son 3yo is using this medication. He is unable to take monthly IV's. His health and IGG levels are better, but there are days he just cries and he can't tell me what is wrong, but he just feels bad. He is clearly sick and doesn't feel good. Some days he seems to get a boost of energy then crashes by 5-6 days after treatment. Thanks to other reviews it better tells me what he is feeling and just can't express it to me. God bless the users of this medication and hope you have better health soon. It has been a challenge for me as a mom to inject the skin and I have a medical degree. I have wound care trainning, and it is hard for me to do it for my son.Read More Read Less

I have been on hizentra since April. The last two months I have had joint aches, pain, so tired, fogginess. I'm assuming it is from the drug.

Migraine headaches, fever, and vomiting 3-4 days after infusion for my 11 year old son with an immune deficiency. It has been horrible!

I have using using it since it came out and I been giving myself injections for over two years . I do get head aches but take something before I start . The site does stay soar between injections . No major difficulties . Takes about one hour and twenty minutes and I hav to use longer needles because I have gone an excercise and diet rountine so the hizentra was running back out of the sites . So far my health is better than a couple of years ago when I was having back to back pneumonia .

this medicine hizentra, never been on anything else , been on it for 7 months, been the WORST 7 months of my life,....its easy to do, price sky high, fatique i agree is like being in a coma, aches, pains, all my teeth started decaying, i barely can move till my next infusion, idk,....im bought to give up, now i need major teeth work, im 45 yrs old, side effects for me are horrible, just being honest............., have pid, hypogamaglobulinemia, thanks ang1965

I had every side effect possible with fatigue that is like being in a comma. I could not move until the next treatment. The stomach site was horrible. I had lumps, bloated ect. bruised. you name it I got it. No thanks.... crae1966