I'am on my 14th cycle,5 days consecutive hip injections (200 mg.) daily,then 4 weeks no injections.Side effects can be tolerated.I was diagnosed with MDS in 1998,low red blood cell counts is my main problem at present.I have had approximately 50 units of red packed cells.I have been transfusion independent for 12 mths.on Vidazza.
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4 People found this comment helpful
Having cramps, frequently, and gaining weight. Is this from the Vidaza?
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Rita | 55-64 | Female | On medication for 1 to 6 months | Caregiver
1/17/2009
Condition: Bone Marrow Disorders Occurring Before Leukemia
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
the patient has had extreme fatigue, weakness and constipation.
8
2
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Anonymous | 45-54 | Male | On medication for 10 years or more | Patient
10/21/2008
Condition: Bone Marrow Disorders Occurring Before Leukemia
Overall rating 1.7
Effectiveness
Ease of Use
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6
1
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[email protected] 7iow0i | 65-74 | Male | On medication for 6 months to less than 1 year | Patient
10/12/2008
Condition: Other
Overall rating 4.0
Effectiveness
Ease of Use
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1ST&2ND TREATMENT BLOOD EVERY 2 WEEKS 3RD &4TH TREATMENT BLOOD EVERY 3 TO4 WEEKS 5TH AND 6TH TREATMENT BLOOD EVERY 4 TO 6 WEEKS 8TH TREATMENT BLOOD 13 WEEKS TREATMENT 1 THRU6 7 DAYS TREATMENT 8 TO PRESENT 5 DAYS PER MONTH FEELING PRETTY GOOD WITH TREATMENT
4
2
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Anonymous | 65-74 | Female | On medication for 6 months to less than 1 year | Patient
7/8/2008
Condition: Bone Marrow Disorders Occurring Before Leukemia
Overall rating 3.3
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10
1
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tuna54321 | 65-74 | Male | On medication for 1 to 6 months | Patient
7/8/2008
Condition: Bone Marrow Disorders Occurring Before Leukemia
Overall rating 3.7
Effectiveness
Ease of Use
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10
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Butterfly | 65-74 | Female | On medication for 6 months to less than 1 year | Patient
5/1/2008
Condition: Bone Marrow Disorders Occurring Before Leukemia
Overall rating 3.0
Effectiveness
Ease of Use
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I get Vidaza by an I.V. I have gotten a reaction from the sun. Is that usual? I don't seem to be getting anywhere. I get an IV for 3 days every month, and my blood gets worse, then by the next iv, is better.
7
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Anonymous | 65-74 | Male | On medication for 1 to less than 2 years | Patient
4/15/2008
Condition: Bone Marrow Disorders Occurring Before Leukemia
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