Paroxysmal nocturnal hemoglobinuria (PNH) brings challenges that impact work and relationships, like fatigue. Here’s what to know and how to manage.
Bug Voss couldn’t explain her fatigue and pain, so she turned to art as an outlet. Then, she was finally diagnosed with PNH, a rare blood disorder.
Learn what to expect when you have PNH, including symptoms, treatment and its side effects, lifestyle considerations, and more.
Learn the lifestyle tips you can follow to care for your physical and mental health when you have paroxysmal nocturnal hemoglobinuria (PNH).
If you have PNH, it’s important to take charge of your health to ensure better outcomes and a better quality of life. Here’s how.
Receiving treatment for paroxysmal nocturnal hemoglobinuria can be hard. When you’re struggling to stay motivated, these strategies can help.
PNH treatments are better than ever before, and there’s hope they’ll continue to improve. Find out what’s in the works and how you can help.
Treatments for paroxysmal nocturnal hemoglobinuria (PNH) have evolved, offering hope for people who live with the blood disorder.
If you have PNH, it is very important that you connect with others who experience the same rare disease. Here’s how to find them.
If you’re Black or Hispanic and have paroxysmal nocturnal hemoglobinuria, you might be at a higher risk for a serious complication.
If a loved one has been recently diagnosed with PNH, you may feel uncertain and wonder what’s the best way to support them. Here are some tips.
