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3.9 Overall Rating

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Most voted positive review

12 People found this comment helpful

I took this for complex partial seizure. After taking Tegretol (general) for about 2 years, I still have blank stare sometimes, so Doc. switched me to Tegretol XR(extended release). I am taking 200mg X3 per day. It is more effective in controlling the blank starring and gradually the zombie, lost of words and out of reality feeling were all gone by now (it's been more than 2 year now on extended r...

Most voted negative review

4 People found this comment helpful

I was on this drug for 19 years. It was of no benefit to me at all. Even though the seizures wasn't so frequent, i still had very bad side effects which included depression, hypothyroidism, agression, irritability and hullucinations. I thought i was going mad. When i came off the drug and went on to another, i very much improved. The side effects have gone. My new drug is leaving me seizure free. ...

Shared reviews and ratings

James | 55-64 | On medication for 10 years or more | Patient
10/17/2016
Condition: Epileptic Seizure
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

This drug was interacting with two other drugs, (zonegran

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Joan | 35-44 | Male | On medication for less than 1 month | Patient
9/26/2014
Condition: Epileptic Seizure
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

My Dr. ,a sleep neurologist prescribed this drug for "Nocturnal frontal lobe epilepsy". She started me on a dose of 800mg, but she forgot to titrate the dose. I took the drug for 2 days (AM & PM). I experienced extreme dizziness, severe nausea and a loud buzzing in my head. I ended up dehydrated and went to the ER. I changed Dr. and switched to lamictal. I am now much more cautious about drugs and I use the old adage " trust but verify" for any medication prescribed by a DR. or dispensed by a pharmacist.

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Phyllis | 55-64 | Female | On medication for 1 to 6 months | Patient
3/28/2014
Condition: Facial Nerve Pain
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

Trigeminal neuralgia since 2008. This is my 4th anticonvulsant. Had good results almost immediately. Controlled the stabbing pain in my head. Still have medium flare ups where it hurts to brush my teeth and eat and swallow but in so much better shape than I have been in last 3 yrs. Does make you tired and a little slower thinking but I will take that over awful pain that controlled my life.

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Anonymous | 35-44 | Female | On medication for 1 to 6 months | Patient
10/6/2013
Condition: Convulsive Seizures
Overall rating 1.7
Effectiveness
Ease of Use
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I do not like the side effects; drowsiness, decreased appetite, anxiety.

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VAgirl | 55-64 | Female | On medication for 5 to less than 10 years | Patient
9/20/2013
Condition: Facial Nerve Pain
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

Trigeminal neuralgia - first arose 2005 and took Tegretol which worked very well & win minimal side effects (except for dry mouth)but needed to gradually titrate up to 1200 mg/day to be completely pain free (taken in 4 doses of 300 mg every 8 hrs). After 2 1/2 years developed leukopenia so had to change to other meds, but fortunately it turned out that TN was in remission. But in spring 2013 TN flared up with a vengeance - worse pain than before, constant pain 24 hrs per day (couldn't even blink my eye). Ended up having to take 60 mg Cymbalta 2xday, 100 mg Topamax 4xday, and 100 mg Lamictal 2xday. Side effects extremely dry mouth, dry eyes and dry all mucous membranes; feel extremely confused with word loss, loss of short term and long term memory, loss of ability to think logically (bad for me as a business person), loss of creative ability (bad for me as an artist), in short unable to function - everything takes twice as long to do. BUT the advice that I have for every body being treated here and that no MD ever told me before my recent desparate trip to the Mayo Clinic: since you are being treated with meds that work by suppressing the Central Nervous System, anything you consume that stimulates the CNS works against your meds. So quit drinking all colas (Coke, Pepsi, Mountain Dew, etc), coffee, tea, chocolate, etc. and sugar. Also, as is noted on your meds, unless you want to go to sleep and perhaps never wake up again, don't consume alcohol. Cutting out caffeine really DOES make a difference in the effectiveness of your meds - I discovered this the hard way.

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