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3.3 Overall Rating

Effectiveness

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Ease of Use

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Most voted positive review

8 People found this comment helpful

After a very close encounter with death last summer, I have been taking Soliris every two weeks since. I have been able to arrange a local provider for the infusions, and have reduced the time spent from the entire day to about three hours. My golf game has improved and I got my first hole in one this fall. I have not experienced any side effects from the drug yet.

Most voted negative review

3 People found this comment helpful

Don't like the fact that it doesn't always arrive on time .Hate the fact i take one of my days off to go for treatment.Yes only 35 infusion yet between the driving time , treatment, labs, etc. It's an all day thing for us.Leave at 11;45 a.m. arrive home at 4:30 or later

Shared reviews and ratings

Anonymous | 45-54 | Female | On medication for 1 to 6 months | Patient
5/1/2020
Condition: neuromyelitis optica spectrum disorder with anti-aquaporin-4 (AQP4) antibodies
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I get tired day of infusion. I have pain in bilateral wrist n shoulders a little. I’ve been on it 3 months and I like it.

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Smith | 45-54 | Female | On medication for 6 months to less than 1 year | Patient
2/22/2020
Condition: Myasthenia Gravis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

Solaris helped significantly when nothing else did. I tried mestinon, prednisone, azathioprine, cell cept, and cyclosporine alone and those did next to nothing. My Thymectomy did not improve my symptoms. I had been taking IVIG for years and it makes me 50 % better. I was taking Cyclosporine and monthly IVIG for a year and that helped (mostly the IVIG helped) but I still had significant symptoms. A few months after i added Solaris to this regimen, my symptoms are 95% gone! It is an infusion so I get some infusion symptoms the day of the infusion (headache, fatigue, brain fog), but no other side effects. Read More Read Less

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Papaw | 75 or over | On medication for 1 to 6 months | Patient
12/26/2019
Condition: Myasthenia Gravis
Overall rating 1.3
Effectiveness
Ease of Use
Satisfaction

I have been taking the infusions for about 5 months. I do have more energy than before. This past week I did develop a blood clot in my lung and am awaiting a call from my Dr to see if I continue or stop the treatments.

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Mechelle | 35-44 | Female | On medication for 1 to 6 months | Patient
7/28/2019
Condition: Myasthenia Gravis
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

The medication causes a side effect of thick mucus production. It has been impossible to rid the mucus. I was advised to take both benadryl and mucinex at night. However, the mucus is still thick and present. I have to sleep with many pillows propped us so I do not choke on the mucus.

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RAM | 65-74 | Male | On medication for 6 months to less than 1 year | Patient
1/8/2015
Condition: Atypical Hemolytic Uremic Syndrome
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

After a very close encounter with death last summer, I have been taking Soliris every two weeks since. I have been able to arrange a local provider for the infusions, and have reduced the time spent from the entire day to about three hours. My golf game has improved and I got my first hole in one this fall. I have not experienced any side effects from the drug yet.

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me | 45-54 | Female | On medication for 2 to less than 5 years | Caregiver
5/8/2011
Condition: Dark Urine in the Morning Caused by Blood Disorder
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

Don't like the fact that it doesn't always arrive on time .Hate the fact i take one of my days off to go for treatment.Yes only 35 infusion yet between the driving time , treatment, labs, etc. It's an all day thing for us.Leave at 11;45 a.m. arrive home at 4:30 or later

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