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    Read user comments about the side effects, benefits, and effectiveness of Benlysta intravenous.

    Overall User Ratings

    47 Total User Reviews

    User Reviews

    1-5 of 47 Next»
    Condition: Systemic Lupus Erythematosus
    3/20/2019 8:34:29 AM

    Reviewer: cccccasssss, 19-24 Female on Treatment for 6 months to less than 1 year (Patient)

    Effectiveness

    Current Rating: 5

    Ease of Use

    Current Rating: 5

    Satisfaction

    Current Rating: 5

    Comment:
    I have had severe lupus for about 4-5 years now. I just started benlysta about 6 months ago. This has been the only thing that has actually helped me! The first few months were rough. I would feel bad the day after I got the infusion but now that I am on my 6th month, I hardly ever feel bad. I have so much energy and my joints never hurt! If you stick with benlysta it works! Like I said the first ... Show Full Comment

    Condition: Systemic Lupus Erythematosus
    12/2/2018 1:43:02 PM

    Reviewer: Mamajude, 45-54 on Treatment for less than 1 month (Patient)

    Effectiveness

    Current Rating: 3

    Ease of Use

    Current Rating: 3

    Satisfaction

    Current Rating: 4

    Comment:
    I hesitate to review, as I have only had 1 treatment. I am hopeful that this med will change my quality of life. My main discomfort with the infusion was I could feel a burning up my vein and my arm ached. I believe they are going to dilute and give it slower next time. After the infusion, I was exhausted. I slept for 2-3 days. I'm back to my lupusy self now. I'm cautiously optimistic tha ... Show Full Comment

    Condition: Systemic Lupus Erythematosus
    2/26/2018 12:26:28 PM

    Reviewer: Frawlsco, 45-54 on Treatment for less than 1 month (Patient)

    Effectiveness

    Current Rating: 1

    Ease of Use

    Current Rating: 1

    Satisfaction

    Current Rating: 1

    Comment:
    Immediately following my first infusion I had extreme fatigue and couldn't stay awake. I literally slept for 3 days.. woken by family in between to eat. Then terrible pain in my thigh which spread to all of bones and joints. Agonizing pain .. pain meds took edge off but it was terrible. Blood test revealed elevated SED and was started on solomedrol which helped with bone pain. Then came severe ... Show Full Comment

    Condition: Systemic Lupus Erythematosus
    1/31/2017 1:30:01 PM

    Reviewer: 45-54 on Treatment for 2 to less than 5 years (Patient)

    Effectiveness

    Current Rating: 5

    Ease of Use

    Current Rating: 5

    Satisfaction

    Current Rating: 4

    Comment:
    After 1 year I was able to wean of steroids. Joint pain is almost totally gone. Quality of life is greatly improved. Only side effect has been occasional migraine after infusion however slowing the drip rate of infusion and extra fluid with treatment seems to have that under control. It took a year for Benlysta to really kick in for me.

    Condition: Systemic Lupus Erythematosus
    5/29/2016 12:00:18 PM

    Reviewer: JF, 75 or over Female on Treatment for less than 1 month (Patient)

    Effectiveness

    Current Rating: 1

    Ease of Use

    Current Rating: 1

    Satisfaction

    Current Rating: 1

    Comment:
    I have had one treatment with intolerable side effects including high blood pressure and muscle pain. I am 78 years old and have had active lupus more than 35 years. Maybe the drug should not be given to elderly patients.

    1-5 of 47 Next»

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