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3.8 Overall Rating

Effectiveness

Ease of Use

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Most voted positive review

62 People found this comment helpful

I came out of remission on Tysabri after 4 yrs, so went to Tecfidera. I was thrilled to have an oral and was determined to stick through the side effects and I did. The flushing and stomach problems bothered me for about 2 months but I kept reading forums to see how other people were handling the drug. Unfortunately Tecfidera is not strong enough to put me back in remission so I have mini relapses...

Most voted negative review

10 People found this comment helpful

it is very expensive. My insurance will cover it now, but down the road it may stop due to Obama care, then what

Shared reviews and ratings

Zuli | 45-54 | Female | On medication for 1 to 6 months | Patient
12/20/2013
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

On it for 3 months - have all the known side effects of flushing, gastro intestinal gurgling and nausea but was wondering if anyone had experienced increased/irregular heart beat? Its been going on for about a week now. I need to see the doc about it.

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camlee71 | 35-44 | Female | On medication for 1 to 6 months | Patient
12/15/2013
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

getting Tecfidera oral has been easy. taking Tecfidera oral has been easy. copay assistance is excellent and much appreciated! my reaction to the drug is minimal. the only draw-back is having to remember to take it.

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bill86404 | 45-54 | Male | On medication for 6 months to less than 1 year | Patient
12/11/2013
Condition: Other
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

I was on Tysabri. No issues, but JC+. After 26 infusions shifted to Tecfidera. Positives: I don't loose a day every month. No worry about Tysabri (no more infusions and no worry of PML). Negative: as a 2xdaily I am always making sure I take on schedule. Been great as I have been on this for about 7 months and never missed a dose. No major issues - some minor flushing after the initial dose (major flushing). Some minor GI - mostly discomfort early on. Overall I have had a small MS issue, but no major flair to date. The only one was worrisome but proved very short lived at 24 hours. I would recommend this to others with RRMS. To date, seems effective - better than jabbing yourself and mostly easy to deal with. Stay healthy!Read More Read Less

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Badger | 55-64 | Female | On medication for 1 to 6 months | Patient
12/11/2013
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

I have been on Tecfidera for 5 months. I was so excited to get something that I didn't have to inject. 3 months after taking it I found a spot on my back. It turned out to be squamous carcinoma. I then found that in their print out that this is one of the conditions that showed up in the trials. Also, my nails were always pretty. Now they curve over the end of my fingers. I am still taking the meds but am seriously thinking of quitting. Too many strange things happening. Was hoping someone else would have same symptoms. I still get the flushing sometimes. And nausea, probably because I do not eat with the meds. Can anybody help?? Read More Read Less

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Kallei.lily | 25-34 | Female | On medication for less than 1 month | Patient
12/5/2013
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

Was excited to start this med. starter dose (120 2x daily) I was ok. No flushing, mild gi issues. As soon as I started full dose I experienced severe diarrhea. I took with food and it didn't help. I lost almost all my energy, would get migraines that my migraine meds did nothing to help. Overall felt like I had the worse flu of my life. Stopped taking it and within a couple days I was completely fine. Very disappointing as I've been through many other ms meds.

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DEK | 45-54 | Male | On medication for 6 months to less than 1 year | Patient
11/27/2013
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I have been taking Tecfidera for about seven months, the first week I had an upset stomach most of the time, its not bad now. I think the heat of summer didn't help. Also I found taking it after eating is best.

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Babs | 55-64 | Female | On medication for 1 to 6 months | Patient
11/22/2013
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I've been on Tecfidera for three weeks. No flushing but swelling in my lips, mild GI distress, headache. Having used shots for Betaseron and Avonex, the pills are a welcome alternative.

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franko 147 | 35-44 | Male | On medication for 1 to 6 months | Patient
11/19/2013
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

I have been on bg-12 for 5 months now. The starter week, and half of the second week I had no side effects at all. Then it hit me hard and i had a week of vomiting, diarrhea, nausea, and the worst stomach cramps I've ever experienced. The diarrhea, cramps, and nausea, lasted a month and a half, and i still occasionally have issues. I have found greasy McDonalds food to work best when taking bg-12 (which really sucks)! I also was drinking ginger tea, pepto bismal, and smoking a small amount(1-2 puffs) cannabis about 1/2 hour before meals. Now, I can eat pretty much whatever, but the bg-12 has to be take with a hearty meal! Four months in I had a flair up(my eyes,which has never happened before), followed by a never ending ear infection(2 different antibiotics),and now i have the flu. In the last 6 months I've had 2 flair ups and missed more time at work than ever befor. The reason I am still taking this med. is that I don't want to go through the adjustment period again, and I have hope for relief, and a stop to the progression. hope this helps! Read More Read Less

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Anonymous | 35-44 | Female | On medication for 1 to 6 months | Patient
11/13/2013
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I was concerned about side effects before taking this, but have not had any! I have been taking this for 4 months and I have always taken it with food.

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Cramden | 35-44 | Male | On medication for 1 to 6 months | Patient
11/13/2013
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I'm am newly diagnosed but with symptoms present for the past decade. For various reasons, my neuro and I decided on Tecfidera, despite the "newness" of this drug (which does make me a little nervous). My experience has been nothing but positive: a little flushing on the arms the first day, since then no major side effects. I do experience slight constipation and runny nose, but those are manageable. So far, so good!

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Robin | 35-44 | Female | On medication for 1 to 6 months | Patient
11/11/2013
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

Aside from the flushing which includes a red, sunburn looked face and a burning head I am very happy with this medication. The flushing doesn't always happen and it is not always right away. It lasts anywhere from 5 to 10 minutes for me. It is so much easier than daily shots or monthly infusions.

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Ocean | 35-44 | Male | On medication for 1 to 6 months | Patient
11/8/2013
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I have been on Tecfidera for 5 months. Flushing lasts 20 minutes. Probably get it every 5 times I take the pill. No GI problems ever. Runny nose for about 2 minutes after taking the pill. Energy increased. Appetite increased. MS symptoms have subsided. For me this pill is 1000X better than Rebif and Copaxone. Also the psychological benefits from not injecting myself are great!

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Christyn | 35-44 | Female | On medication for 1 to 6 months | Patient
11/7/2013
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

I had the flushing around 30 minutes after taking the med and it looked like I had a sunburn and I was on it about 5 months and it didn't subside. I had a sore throat which started after starting the med that wouldn't go away which lead to me having to have an EGD. I am on 2 stomach meds already. I was then referred to ENT for a laryngoscopy to further evaluate my throat. Sore throat isn't listed as a side effect but I was told it could be related to the GI side effects. I had itching and increased fatigue. My WBC count also dropped. I went through 2 flare ups in the 5 months of being on it. I am sensitive to meds and also had side effects to Rebif and Copaxone. I liked the fact of the oral treatment though. I reported the constant sore throat to my neurologist and pharmacist. I was instructed to stop the med.Read More Read Less

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Anonymous | 35-44 | Male | On medication for 1 to 6 months | Patient
11/6/2013
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

overall experience has been fabulous, only occasional nauscia and flushing of the skin. only bad side effect was bad headaches when it's almost time to take second dose.

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Anonymous | 55-64 | Female | On medication for 1 to 6 months | Patient
11/5/2013
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
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PghMan | 45-54 | Male | On medication for 1 to 6 months | Patient
11/5/2013
Condition: Other
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

Is effective??? Time will tell. On month 3 now and had the initial stomach issues and flushing but went away in 3-4 weeks. Just had a nasty relapse 1 week ago though, but back to normal. I read someone else had the good side effect of increased libido. Something to be said for that.

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Anonymous | 45-54 | Female | On medication for 1 to 6 months | Patient
10/31/2013
Condition: Multiple Sclerosis Symptoms Return then Become Less Severe
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I have been taking the pill for about 3 months and is very happy with it'

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lenajean | 45-54 | Female | Patient
10/20/2013
Condition: Other
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

Previously posted about concern with SLS/SDS inactive ingredient. Pharmacist said miniscule amount (.01). Still, don't like that it's in there. Don't want to ingest even a miniscule amount.

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iiwii | 45-54 | Female | On medication for 1 to 6 months | Patient
10/10/2013
Condition: Other
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

On my 4th month, had severe abdominal pain for first 2 weeks but toughed it out and things have eased up. No nausea or diarrhea. I always get flushing and a burning and tingling of the skin about 1hour after my morning dose. things are going well except my lymphocytes are getting low, hope that they will stabilize. overall things are good so far.

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sonnie71768 | 35-44 | Female | On medication for less than 1 month | Patient
10/1/2013
Condition: Other
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I'm recently diagnosed, and this is my first med. the first day I had bad flushing and itching 1 hr after taking both pills, that I actually stopped and told doctor no way. Then my doctor told me to try with food and an Advil. Well, i did about 2 was later and again flushing and itching, but a little less severe. Next day, ...nothing! No more of either!inwas so happy! The second week I began the 240mg 1 time a day. So far I'm on day 2 , and the first day I had little itching, and tonight I just got over extreme itching I thought I was going to scratch through my skin, again on my neck, face, arms, legs and chest. I wonder if it has anything to do with they white blood cell count? But either way, I'm going to try and hold out and hopefully side effects will go away again.Read More Read Less

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