User Reviews for Remicade intravenous

I have Behchet's disease and had swollen knees for over a year. Steroids would bring the swelling down until I was off them and swelling again. After Remicaide infusions I have had no swelling in knees and other symptions are gone for over a year now!

It worked so well for the Crohns about ten yrs ago so I went back on it recently. First infusion I was fine 2nd after 15 minutes chest tightened couldn't breathe, and 3 rd infusions They gave me extra premedication so I wouldn't get reaction I got a reaction an hour into infusion they could only keep the infusion at base rate otherwise I would start having reaction again. So now the dr has to decide what to do with me

I've been on Remicade for 13 years. The medication has been a life saver for me. I started at 8 week intervals but I'm now at 6 weeks. I've had some minor side effects but have been worth the trade off. It's truly a miracle drug, I only wish there was an easier method to self administer the medication. Having to visit the infusion center every 6 weeks can be inconvenient with work schedule.

Have had Remicade infusions for 1.5 years. Felt somewhat better at times but don't know if it was the infusions or just the way RA comes and goes. During this time I have had numerous melanomas and two squamous cell skin cancers removed. Dr. is taking me off Remicade.

I have been on this for 12+ years. Only side effects that I have are lowered blood pressure, but mine runs high, and my immune system is very compromised. In the past year I have had pneumonia and severe case of strep throat. The pneumonia led to a case of blood clots in left leg & left lung. Very scary, but on the mend. I am able to mostly maintain a full time job and stay active.

I was diagnosed 5 years ago. I have tried several different meds. I had an allergic reaction Humira. My Doctor put me on Remicade every 6 wks and it helped but my symptoms return after 4wks. Now I get infused every 4wks and I am getting my life back. To reduce symptoms after I take zofran, benadryl, and tylenol before treatment it helps and then allows to sleep after so I recover quicker.

Was on Remicade for a total of 8 infusions. The 5th infusion I had a severe reaction, difficulty breathing, pain starting at the base of my skull and when given an injection of benedryl it went to the lower part of my back. Tightness of the chest, I had a quick ambulance ride to the nearest emergency dept. The next infusion, started having same reaction, and was given benedryl again, still had problems. The last infusion, was given predisone three days prior to the infusion, and tapered off after it. Again..... when infusion was started, again had the same reactions as the last two times. My specialist has now completely stopped the infusions and is putting me back on HumiraRead More Read Less

In 2013 my intestines ruptured and almost died more than once from this and spent 3 wks mostly in ICU. I developed a fistula to the skin and 15 mths later had it repaired. Have taken the treatment now for 22 months. It started out every 8 wks and because of sever joint pain and breathing difficulty they had to move it to every 6 wks. I had to postpone my treatment due to death in family and boy did I pay for it with pain and my breathing and nothing seems to help. I can't say with certainty but in the last 6 months I have had a heart attack, pneumonia and as of yesterday I was diagnosed with Congestive Heart Failure. I do have to say that it has helped my Crohn's Disease but having to stay away from anyone and everyone of fear of getting sick is hard, and if it does come down to the things that have happened in the last 6 months is due to this medication, I will rethink my treatment.Read More Read Less

Took it twice. First time it was like a miracle. Went from 4 pain pills a day to none in just over a month. 2 yrs later I started it again, and after a few weeks I felt like I was going to die. I was in pain everywhere all the time, and in the morning it took me an hour before I could close my hands into a fist. Mentioned this to my MD, and he told me to stop Remicade. I was having an allergic reaction to the mouse proteins in the drug. He recommended Humira instead, but I've never gone back. It took me almost a year to recover from the effects of the reaction to Remicade, and I'm not looking forward to ever having to deal with that again.Read More Read Less

Three loading doses went fine. Increased one vial for 4th dose to hopefully get full eight weeks. Didn't work. Went for 5th dose at six weeks and increased again. As soon as it hit my system I started itching and broke out in hives. On to the next. So far my immune system has fought off everything and come back stronger than before.

Was dx'd in 2000. After several flare-ups, hospital stays and various meds that were not working, my GI started me on Remicade May 2013. I received my treatments every 8 weeks. For the most part, I feel great however I am experiencing hair loss (in a very noticeable way) in the last year. To the point that hair injections, biotin, and using Nioxin is not helping. My concern is that I don't want to stop my remicade treatments but I don't want to go bald either. Can anyone share if this has been an issue and what has been helpful for you? I wasn't aware of this side effect until recently but I feel so much better with remicade and I don't want to stop. But I am not wearing wigs and not feeling very confident or pretty. Please share positive feedback if you have it.Read More Read Less

Let me start by saying my 15 year old daughter is the patient with ulcerative colitus (severe) At the present she has been in the hospital for 9 days. After her colonscopy yesterday Remicade was our only hope before they did surgery. 12 hours after the meds, no bleeding, no pain. Im cautious, but so extremely happy. I pray she continues to thrive with this medicine.

I take steroids with my infusion every 8 weeks and take an anti-histamine each time. Its been a huge improvement to my overall health. I just have to deal with the sitting in I.V. therapy for 2+ hrs. not my favorite part.

I've been getting infusions of remicade for over a year. at first it worked miraculously and i entered remission(i was also taking mp 6 with it)(i still continued my infusions.) after maybe 4 months of remission i began showing symptoms again, and they put me on a medication i had taken before remicade, prednisone(terrible!!), and continued my remicade infusions. eventually, my condition improved enough to take me off of the prednisone and just stay on the remicade. now, im building up a resistance to remicade, and they put me back on mp 6, and im continuing the remicade, but on a higher dose. im terrified that i wont be able to be on it anymore. it allows me the freedom to not have any diet restrictions and almost live my life as if i didnt have UC. while i feel gravely guilty at the bills my parents receive for it, i dont know where i would be without it.Read More Read Less

I have been diagnosed with UC for 9 years. Started Remicade 2 years ago. I love it. I don't mind going every 6 weeks. I get to sit and relax in the hospital for 2 hours and focus on my computer. No big deal. Much better quality of life after enduring severe symptoms with the only relief being a ton of Prednisone.

I've had 12 infusions so far, stared out with 200 mg every eight weeks and it relieved a lot of my symptoms ( pain and stiffness) but not completely, a lot better than before but there was still a lot of pain and stiffness although a bit more manageable. We increased the dose to 400 mg and it has worked wonderfully, I still get little reminders here and there on a daily basis that the RA still there but overall I feel extremely happy and blessed to have come across this drug, hope it continues to be this effective for a long time. Would definitely recommend it to anybody suffering from this disease, thankfully no side effects so far, I pray that it stays this way.... It's tough sitting there for a 2 hour infusion but hard to complain when it's so effective.Read More Read Less

Upon 3rd infusion had a terrible reaction, BP shot up to 210/186 and excruciating lower back pains and chest pressure. Was sent to ER, which was fortunately across the street. Dr said he will not give me Remicade again.

My arthritis seems to be getting worse in my fingers. More knots have come up on all of the joints. Plus my fingers are very painful. Also, my right ankle is painful now. This is very recent. I thought that Remicade was supposed to slow the progress of arthritis. In my case, it has not.

Five years ago I was in a wheel chair with so much pain it was difficult to walk. I saw several specialists who gave me a total of 10 cortisone shots. The pain always returned. I went to Web MD and discovered I had RA. I asked for an arthritis MD. After several oral pills I went on Remicade infusions every 6 weeks. What a difference!! I am pain free. I'm 81 yrs old and I work at my business half days. Remicade is a great drug for me. I hope I can take it for years to come.

It is a very good treatment for me. No side effects so far. Have been pain free.