I have been on Verzenio for 9 months. I have stage 4 Low Grade Serous Ovarian Carcinoma. I started out with the full recommended dose but they lowered it after the 1st month. The diarrhea is the worst!! Sometimes it's like 9 times a day so I take Imodium everyday. I also have nausea most days and extreme fatigue. My tumors and a couple lymph nodes are shrinking though like 3 cm, so I guess I will ...
They should rename this drug and either call it the diarrhea drug or parasite diet! Horrible side effects; extreme diarrhea, headaches, nausea, vomiting, stomach pain, extreme tiredness, and brain fog.
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CoachCrystal | 55-64 | Female | On medication for 1 to 6 months | Patient
1/2/2022
Condition: hormone receptor (HR)-positive, HER2-negative early-stage breast cancer
Overall rating 1.0
Effectiveness
Ease of Use
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I have been on this medication for 2 1/2 months and I either have horrible diarrhea or I take anti-diarrhea medicine and have painful constipation. I’m nauseous I have brain fog and I’m exhausted. This is no way to live. I am praying this gets better in the next two weeks. After three months of hell, I’m going to have to change medication or reduce the dose significantly. I can’t continue like this.
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Becky | 45-54 | Female | On medication for 1 to 6 months | Patient
11/19/2021
Condition: Hormone Receptor (HR)-Positive, HER2-Negative Advanced Breast Cancer in Woman
Overall rating 2.3
Effectiveness
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I’m glad to know others had the same experience. All that stuff for not a good result.
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Melinda | 55-64 | Female | On medication for 2 to less than 5 years | Patient
11/16/2021
Condition: Hormone Receptor (HR)-Positive, HER2-Negative Advanced Breast Cancer in Woman
Overall rating 4.7
Effectiveness
Ease of Use
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I have been on verzenio for 2 1/2 yrs tumor has shrunk 60% I am also on letrozole and xgeva my 3 bone mets are healed over the first month on verzenio was hard with the running to the bathroom had to stay in could not go anywhere but after that 1st month it is lots better . I am so thankful for this drug.
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Long haul | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
9/12/2021
Condition: Other
Overall rating 4.0
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Ease of Use
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Been on 9 months, battle diarrhea but is controllable. Kidney issues most concerning but is shrinking my tumors. Feel well most of the time, with fatigue and weird goose bumpy feeling. I am some what satisfied, hoping it works for another year or so then on to the next treatment plan.
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Kate | 55-64 | Female | On medication for 1 to 6 months | Patient
9/4/2021
Condition: Hormone Receptor (HR)-Positive, HER2-Negative Advanced Breast Cancer in Woman
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction
I agree with the other reviews. The side effects are horrible; it's like being on chemo that never ends. I started out on the full recommended dosage of 400mg/day. I spent my mornings in the bathroom and my afternoons in bed. This is about the 8th med that I've been on over my 10 yr 'adventure' with stage 4 breast cancer and it is the worst thing I've ever tried. And we don't even know if it's working. ??
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Margana | 45-54 | Female | On medication for 6 months to less than 1 year | Patient
8/2/2021
Condition: Hormone Receptor (HR)-Positive, HER2-Negative Advanced Breast Cancer in Woman
Overall rating 2.7
Effectiveness
Ease of Use
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As of today, I have been on Verzenio, (with monthly Faslodex shots) for 9 months so I thought I could give an accurate description of my experience taking this medication. When I took the very first pill, I broke out in a full torso rash that extended to my neck. The first pill was taken just days after having my double breast reconstruction and the rash caused some questions as to whether I was rejecting the implants. But the rash disappeared after a week and hasn't returned since. Then there is the diarrhea... it never really stops but it does eventually improve a bit. First months I had to take 7 Immodium pills a day now down to 2. I have many other symptoms but not sure if they are from the Verzenio or the Faslodex, but I can tell you that fatigue, nausea, headaches, broken blood vessels for no reason, and neuropathy can be awful. Truly though, the first three months were very difficult being that I still work 60 hours a week. Not a day went by that I wasn't sick although Medical Marijuana saved me daily. As bad as it is, it is still better than dying. Read More Read Less
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Lib | 45-54 | On medication for less than 1 month | Patient
1/7/2020
Condition: Hormone Receptor (HR)-Positive, HER2-Negative Advanced Breast Cancer in Woman
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction
They should rename this drug and either call it the diarrhea drug or parasite diet! Horrible side effects; extreme diarrhea, headaches, nausea, vomiting, stomach pain, extreme tiredness, and brain fog.
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