User Reviews for Orilissa oral

When I started taking Orilissa about 4 months ago, there was almost no information out there that wasn’t produced/reported by the company but my doctor told me Orilissa or surgery so I decided I would try it. The first month was hell - I had severe endo pain, and I felt run down and crappy the whole time. Towards the end of the first month maybe 3 weeks in is when the side effects took over (but the pain did subside). First it was hot flashes, naseua, weakness, and headaches. I constantly felt like I had a fever so when the flashes hit I wanted to crawl out of my skin. The only way I could describe it was that I felt like how cancer patients must feel like after chemo. In the second month, those side effects got more manageable but the insomnia hit me like a ton of bricks. I’m a student who gets up early to go to the gym then is in class at school for sometimes over 12 hours - I should be damn tired but I could never sleep. I would be up into the morning, sleep for maybe 2-3 hours if I was lucky. I would either be dead ass tired and unable to sleep or never tired enough to sleep - that was the scariest feeling... knowing I was tired and needed to sleep but feeling like I was very away at all hours for days on end. I felt like a crazy person and I couldn’t turn it off. In month three the insomnia got slightly better but the naseua came back and I started feeling stiff all the time. Now, I’m still feeling sickly most of the time (nauseous, feverish and almost faint, hot flashes, insomnia, headaches, achy body, and almost feeling neurotic) but the worst part is, on top of that, I can feel my endo pain creeping back in as well. It’s one thing to put up with the side effects of the drug is working, but if my pain is coming back you bet I’m calling my doctor and getting off this whirlwind of a medication.Read More Read Less

Cons: Severe hot flashes, horrible insomnia... I haven’t slept in months since taking this. Feeling dizzy and light headed. Pros: slight pain in my ovaries. Very minimal since taking drug.

I am 37 yrs old and have been dealing with endometriosis since I was 14. I had my first Lupron injection when I was 15. The side effects where awful. I started taking the 150mg after I had a salpingo-oophorectomy in Sept. I had my uterus removed previously at the age of 29. I still have my right ovary so the doctors thought Orilissa was a good option for me. For the first month I had no side effects but around the 2nd week of month two they hit me like a ton of bricks I felt horrible and my whole body aches. My head felt like it was gonna explode and I had absolutely no energy. I am seriously thinking about stopping the medicine because they are so bad. The company is great though in helping you get the medicine. Read More Read Less

Just started my second week of orilissa. So far the only side effect that I've experienced is mild hot flashes. I should also mention that I've has a partial hysterectomy due to endometriosis and I'm on the lower dose. So far the medicine seems to work great. But it's still really early in my treatment.

I've been on it for 1 month so far. The company did help with the cost but that's not why I posting. I've experienced the headaches, the joint/bone pain. The joint pain is almost unbearable. I could hardly walk let alone move. I felt lost in my own skin. I still felt my daily endometriosis pain plus the drug side effects. I'm still wrestling with the choice of continuing to take it. Is this drug really the best they can do. I'm miserable! I wish I had waiting a little before deciding this was best choice. Just beware!!!!Read More Read Less

Like everyone mentioned this medicine it’s new, and its not lot of reviews out there , however this is my second month using, i dont have any pain at all, but the headache, nausea and the hot flashes make it so difficult! And im also late on the cycle, im guessing that because of ORILISSA!

First of all this drug costs an arm and a leg to get. I was only able to use it for 1 month because the side effects made me want to crawl out of my skin. My endometriosis pain decreased somewhat but you are definitely paying it forward with the hot flashes, nausea, and headaches. Be careful when considering this drug, it might be very useful for pain but you'll be experiencing a whole slew of menopause side effects.

This medication works but it comes at price. My endo pain completely disappeared while on Orlissa, however I started to feel like I was in the wrong body. My entire body felt off, I couldn't focus or sleep and the hot flashes and nausea were outrageous. I had surgery in March and my symptoms were back less than 6 months later which is when I went on the Orlissa 200mg 2x a day. I really wish this worked for me, and in fact it did, but I couldn't deal with the side effects. Ive been off for a few days now and Im starting to feel more and more like myself again. Be careful with this, I felt fine on Orlissa for about 3 weeks, it sneaks up on you and before you know it you will be ready to shave your hair off, only way I can describe the feeling was like I put on a shoe 10 times too small...but thats how my body felt, it felt like I was in the wrong body like my skin didn't fit...if that makes sense? I hope this helps anyone who is experiencing this too, I know this medication is very new and there are no reviews on it anywhere. So if you start taking it please please please be careful and if you feel off its not you and you are not crazy it is the medication. Read More Read Less