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3.7 Overall Rating

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Most voted positive review

18 People found this comment helpful

I have suffered with RA for 27 years. I am currently 51. I have never had a day off from pain or experienced remission. The day Enbrel was FDA approved, I started the shots. Since then, I have tried (and failed) every single biologic from Remicaide to Xeljanz. I have had both wrists fused, one hand completely reconstructed, corneal melts, pleural effusion in both lungs, heart surgery to remove 2 l...

Most voted negative review

4 People found this comment helpful

I just started taking this medication last week. I have been receiving infusions(Actemera) for over 2 years now. I was doing ok on the infusions but my Dr. felt I have plateaued on the infusion treatment and wanted me to improve more. I am hoping this will improve my present condition to a higher level of functioning. Time will tell

Shared reviews and ratings

Undecided. | 55-64 | Female | On medication for 2 to less than 5 years | Patient
9/1/2022
Condition: Rheumatoid Arthritis
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

Started rinvoq 2019. Before this drug I tried too many others and suffered various side effects. First drug that allowed me to function 70% of old normal. I've had diverticulitis IDK 6 x in 3 years and taken cipro which is a whole other problem. Side note do not consume corn on the cob, nuts in any form if you have diverticulitis. Rinvoq yes it helps with seropositive RA I am 57 not on any other meds and cannot tolerate Rinvoq 15 mg more than 2 x a week. I've been off it 5 weeks due to diverticulitis and now a kidney infection. Surprisingly I feel my mood has lifted. I did not realize I was depressed I just wasn't feeling any joy when I was on it. Next pcp visit I will talk to my pcp. My rheumatologist routinely dismisses any side effects I bring up from Rinvoq. I do wonder now that I haven't taken it for over a month and feel no RA symptoms if when and how much I will take again. It does work, but the mood...yuck and diverticulitis... I think my body needs a break. I informed my rheumatologist I use this 15 mg every other day and he agreed. All drugs for RA have side effects we just have to decide which one works best for us. I will say I had to quit alcohol and junk food. I can really feel the harm I'm doing to my body when I make poor choices so which much reluctance I abstain from them. I don't use any OTC Tylenol herbal products or nsaids. They all cause unwanted symptoms when taken with Rinvoq. This is a very strong drug IMO. I'm on cipro now and can only tolerated divided 250 mg pills anymore and I'm vomiting. Be careful and pay attention to your body.Read More Read Less

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Rinvoq | 45-54 | Female | On medication for 1 to 6 months | Patient
6/13/2022
Condition: Rheumatoid Arthritis
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

This med definitely helped with my joint pain within days, but the side effects (unbelievable acne, major fatigue and for me I became so depressed). I only saw this side effect mentioned by a few users, but I’m telling you that I could not get out of bed for a week! I ended up stopping the med after 31 days. My acne cleared up in a week, my mood has stabilized and I have my energy back. I also have my pain back! Ugh. It just wasn’t worth it for me.

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Anne1241 | 55-64 | Female | On medication for 2 to less than 5 years | Patient
6/12/2022
Condition: Rheumatoid Arthritis
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

I had a stroke while on this medication. No risk factors: not obese, non-smoker, no diabetes, no atrial fibrillation, nothing. The new black box warning says there's a risk of heart attack or stroke if you're over 50 with pre-existing conditions, but I didn't have any. Please be very, very careful with Rinvoq.

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Amos Biggs | Male | On medication for 1 to less than 2 years | Patient
6/11/2022
Condition: Psoriasis associated with Arthritis
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

I have Psoriatic Arthritis and been on Rinvoq for 14 months. I would likely be far worse if not on it but it has not brought remission. I have much less fatigue and over all improvement of function and close to normal life but definitely not pain free. Flares still happen but usually they are self induced from over-doing activity and work. Psoriasis is completely gone but I get occasional swollen acne like blemishes. I started on Rinvoq and methotrexate. Felt better dropping the methotrexate and just using Rinvoq. Read More Read Less

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KMC | 35-44 | Male | On medication for less than 1 month | Patient
5/31/2022
Condition: Atopic Dermatitis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

My skin stopped itching after taking the first pill. I am also taking Methotrexate which prevented my eczema from reaching those extreme symptoms but my skin still wasn't progressing the way I would've liked. My skin texture began to be softer in week 2. Then finally the red skin starts to recede by week 3. Rinvoq has worked for me where Dupixient hasn't

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RB | 55-64 | Female | On medication for 1 to 6 months | Patient
5/24/2022
Condition: Rheumatoid Arthritis
Overall rating 1.7
Effectiveness
Ease of Use
Satisfaction

I was taking methotrexate($67 a month) for 14 years. I still had a little pain and inflammation in my joints. My rheumatologist prescribed Rinvoq ($6,300 a month). I took it for 3 months. The first 3 weeks, it worked because I still had methotrexate in my body but after that my pain came back a lot stronger! Finally I went back to methotrexate but for some reason methotrexate did not work as good anymore as it worked before I started taking Rinvoq. I am totally disabled to the point that I can’t even do simple things I used to do before I took Rinvoq. I think Rinvoq changed something in my body that is not repairable. This is a very bad drug. Read More Read Less

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Finnish Lady | 45-54 | Female | On medication for 6 months to less than 1 year | Patient
3/30/2022
Condition: Rheumatoid Arthritis
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

A miracle drug for me, a 54 year old woman. Absolutely no side effects, just a general feeling of wellness. I had years of struggle: morning stiffness, tears, swollen joints, punctures and intra-articular cortisone shots with thick needles every three or four months. Sometimes I had difficulties just chewing food, opening car doors, walking or getting up from seats, the floor or the bath tub. My smaller joints are pointing to various directions but that doesn't bother me at all. I can still pick things with my crooked fingers, work and enjoy life without corrective surgeries. I've tried all kinds of diets, drugs and remedies like sulfasalazine, general painkillers, herbal extracts, Arava, Methotrexate and Xeljanz for 20+ years for my sero- and citruline positive, erosive RA without significant results. The Finnish Social Insurance Institution covers most of the expenses for approved RA meds; currently I pay around 635 $/year (the maximum annual "own risk" sum in Finland) for Rinvoq. The only cons I've noticed are 20 lb weight gain (may also be because of sitting by the computer 24/7 due to Covid and Ukraine) and increased total cholesterol levels (rising slowly, now reaching 263 mg/dl). I don't need extra meds as the triglyceride level is within normal range, the HDL/LDL ratio is ok, I exercise daily and eat proper food, I don't have any symptoms, other illnesses, high BMI or a family history of cardiovascular events. Rinvoq has made my life much easier. I usually take Sunday off (without telling my doctor) just to give my body some rest. I addition, I take a vegan Omega fatty acid capsule plus multivitamin and magnesium pills from Monday to Saturday. All the best from a happy camper.Read More Read Less

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Barbara | 55-64 | Female | On medication for 2 to less than 5 years | Patient
3/1/2022
Condition: Rheumatoid Arthritis
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I started on Rinvoq late July 2019 and noticed fatigue greatly improved in just a few weeks! By three months my inflammation factor was within normal ranges. I stopped for five weeks after total knee replacement surgery August 2020, and Covid January 2021, Covid January 2022. My one issue is the scalp acne that runs a 4-5 week schedule. It is cycling constantly! My rheumatologist monitors my lab factors which include blood counts.

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Anonymous | 55-64 | Female | On medication for 2 to less than 5 years | Patient
2/18/2022
Condition: Rheumatoid Arthritis
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

Caused me to have severe neutropenia

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Mm | 19-24 | Female | On medication for 1 to 6 months | Patient
2/8/2022
Condition: Rheumatoid Arthritis
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

It's only early days, 5 weeks but it has not been good. Extreme tiredness to the point of falling asleep during the day - tried taking the dose in the evening but it has made little difference. Huge increase in muscle pain and fatigue. Increased swelling in feet and ankles. Acne on scalp and face. Headaches. Joint pain where I don't usually have much problems. Overall I am considerably worse.

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Reds | 19-24 | Female | On medication for 1 to 6 months | Patient
12/28/2021
Condition: Rheumatoid Arthritis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I started Rinvoq four months ago and a few days after starting this drug I could feel the difference in my joints!! For the last tw to three years I had a terrible flare up to the point where I needed assistance getting dress , bathing , hair .. I was on prednisone for years and gained so may weight and I had to keep getting the prednisone dosage higher due to the pain I was in. One day I saw the commercial on TV about Rinvoq and I researched this medicine and asked my RA physician about it . It was the best choice I made , my lab work has been good numbers fell unbelievable!! My personal opinion about this medicine and all medicine have some kind of side affects and personally I think it depends on a person overall health conditions and other meds that are being taken along with this medicine. Thank God that I don’t have any other health issues and I work really hard at keeping my immune system strong. I was a home health aide for hospice for 32 years and I had to retire due to the joint pain and stiffness in my body. Rinvoq does work but like any medicine you have to give a chance. Good luck to everyone!!Read More Read Less

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Kaitlyn | 55-64 | Female | On medication for 1 to 6 months | Patient
10/2/2021
Condition: Rheumatoid Arthritis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

Was diagnosed with rheumatoid arthritis and psoriatic arthritis two years ago. Methotrexate and Sulfasalazine nearly killed me with side effects and little improvement in pain. Was put on Rinvoq six weeks ago. Life changing. Pain reduced by 90 %. A little intestinal distress that has levelled off now, no other side effects noticed.

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Anonymous | Patient
8/9/2021
Condition: Rheumatoid Arthritis
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

I got very ill. Twice. I tried again because my ra felt better. But I had severe chest and stomach pains. Scared the crap out of me 2nd time. Throwing up water. Never again. I really was hoping it would work well. But I have gotten sick from most biologics I've taken in last 4 or 5 years sadly.

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Livelovelaugh | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
8/3/2021
Condition: Rheumatoid Arthritis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

Pretty much pain free. Feel tired a lot so I take naps. Also feel weakness but I probably have to exercise more. Recently noticed unusual bruising from nowhere. Other than that, so thankful for this medication.

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Gracie | 65-74 | Female | On medication for 1 to less than 2 years | Patient
7/31/2021
Condition: Rheumatoid Arthritis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I don’t know why, but I selected five stars across the board in my previous post but it was changed to four stars when it was approved and posted, so I am re-posting this one with the max stars.

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Gracie | 65-74 | Female | On medication for 1 to less than 2 years |
7/30/2021
Condition: Rheumatoid Arthritis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I am 65.5 and was diagnosed with RA about 5-6 years ago. I ran the gamut of all the usual drugs. Tried about every DMARD with every crappy side effect. Tried Humira as my first biologic and it worked great until about 12 months in when it triggered horrid pustular psoriasis on my feet and hands. Went off Humira. Began on Rinvoq about a year ago. I am living a near-normal existence for the first time in several years. It’s crazy how a certain drug will work well for one person but not another. ??Read More Read Less

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Michelle | 45-54 | Female | On medication for 1 to 6 months | Patient
6/8/2021
Condition: Rheumatoid Arthritis
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

I am 54 years old and had JRA when I was 13. I have tried almost every drug available. I have rheumatoid arthritis and psoriatic arthritis. I have been on Rinvoq for almost 5 months. About a month ago, my psoriasis got much worse. I have so many spots I look like I have chicken pocks. Last week my feet and lower legs became red as if I had a bad sunburn. I contacted my doctor and he said to stop taking it immediately. It is as if I got a chemical burn from it. My feet are still sore to the touch and starting to peel. I will never use this medication again. I am afraid other things will show up that were damaged by this medication. I am happy it works for some, but it definitely didn't work well enough to endure all this.Read More Read Less

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LiDai | 55-64 | Female | On medication for 1 to 6 months | Patient
6/4/2021
Condition: Rheumatoid Arthritis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I just made a rave review on Rinvoq and forgot to add aside from morning range LOL, Rinvoq is my #1.

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LisDai | 55-64 | Female | On medication for 1 to 6 months | Patient
6/4/2021
Condition: Rheumatoid Arthritis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

Initially I had issues with this medication. Explosive diarrhea, no kidding. It seemed the medication was too strong for my system. After a week of the above I went off it for a day. Then, taking it every other day became tolerable. That being said Rinvoq is the best RA drug I've been on AND the only one which has a marked difference in my life. Finally getting back on track and what a ride it's been!

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jaywhy | 45-54 | Male | On medication for less than 1 month | Patient
6/1/2021
Condition: Rheumatoid Arthritis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

Benefits: pain is under control and I've been able to cut back on prednisone. Concerns: bruising on my upper arms appeared, with no cause. Sleep walking is a development since taking Rinvoq. Summary: Three weeks into treatment, the removal of pain is outweighing the concerns so far.

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