User Reviews for Entocort EC oral

I was prescribed to take Entocort 3mg at 3x a day. Taking it along with Asacol and a 30 day enema for ulcerative colitis/ulcerative proctitis was an interesting experience. After taking this regiment for one day the symptoms stopped. I was pleased with how it worked....but....a 6 week supply of Entocort Oral cost me $2300. Now that is INSANE. The enema was $1100 and the Asacol that I have to take for probably the rest of my life costs $800 for a 30 day supply. Now That Is Really INSANE. If left untreated, complications will arise. Needless to say, I know what I may die of. Normally conditions such as this are serious and debilitating. Having to go the bathroom every 35 to 40 minutes all day long. You can't work and pay for these meds if you spend most of your time in the bathroom because you will still have to use the bathroom time to time during flareups even with taking the medication. The cost needs to go down.Read More Read Less

It has worked okish for me I've been on it for 6 months. Now I'm having horrible water retention. In 4 days I've gained 27 lbs. The only logical thing that can cause this is Entocort. Drs put me on lasix and is trying to wein me off slowly which didn't help anything. So I've stopped altogether. So far the lasix is working better and I've lost 20 lbs of the 27 I've gained since this started. Please talk to your doctor about length of time they want you on it and coming off. It's riduculisly expense. At 3 a day retail price is $1500.00 yes that's in American dollars. Read More Read Less

na

i am unable to take it in the morning like my doctor wants me to it makes me sleepy

55 year old female. This med stopped the symptoms of Microscopic colitis. HOWEVER it put 50 lbs on me. I bloated the first week and started putting on at least a 1/2 lb a day. My feet swelled. I had to but a wide sized shoe. I was thirsty all the time and had a sugar and salt craving the entire time. I took 1 three x per day. I'd rather have the symptoms. I took the weight off in 3 mos.

I had a bout of colitis I was given this prescription, which was very expensive even with insurance. The Dr said I should feel better within 2 days. The diarreha stopped on the 2nd day, I have cut down to 1 a day and ready to stop. No side affects.

worked to stop the pain & diareha.Nausea,extreme appetite,fuzzy vision,sugar is up and down.Weight gain and bloating.Very bad sore throat after 2 mos swollen glands..viral infection.....pain in belly

worked very well. It is very expensive and I do not have drug insurance As a senior citizen and on a budget I cannot afford it.

This medication truly works BUT. it's so very expensive,I'm on medicare and I can't afford to get refills. I think paying over $300 for a 30 day supply is insane!

This medication has been a benefit to my son's health the only drawback is the price.The insurance company refused to pay the cost was $1264.00 for a 30 day supply we were unable to pay this unbelieveable price.

I think its helping the pain and diarea. i cant stand the dry mouth, and my appetite has increased (a little too much).

very good

I have been on this drug for 8 years, every time I try to get off of it I end up in the same place--the bathroom...not fun going 25 to 30 times a day. The only side effects I've noticed are very easy bruising(especially my arms) and a longer healing time. I can't imagine not taking this drug! I started with 3 every am..I now take 1 or 2 and 3 only when I have a bad flare-up.

I have had CD for 14 years now and non of the 5-ASA (Pentasa, Rafasal etc.) drugs do any thing for me. Obviously systemic stroids work like a dream but have horrible side effects that made me resemble the hunchback of Notre Dame. Have been taking Budeson once a year for about 7 years and it works realy well for me, not as good as the regular steriods but with almost no side effects , a slight headache the first week or so, no buffulo hump, moon face or excess facial hair (yuck), usually feel much better after 1-2 weeks , very impotant to carry out the full treatment as doctor ordered otherwise relapse comes very quicly and sometimes worse than before when on steriods. Read More Read Less

Entocort has put my continual diaherra in remission. I am very pleases with the performance.

I am a 40 year old female and was put on Entocort for microscopic colitis. It began to work almost immediately, but I also had some increasingly bad side effects. I am writing this to tell others to listen to their bodies-if something feels off, see your doctor immediately. I got the tiredness and bloating first, then the bruising. I had bloodwork done, and my sugar levels had gone up and I got mild hypothyroidism. I told my doctor, who said to start taking 2 rather than 3 pills, and maybe go down to 1. In the meantime, I started bruising easily. Finally, I ended up in the ER with DVT and a PE (blood clots in my leg and lungs). I cannot say for sure that these are all related, but I do know I did not have these problems before beginning Entocort. I have heard it works wonders for some, but if you are one of the unlucky ones, you could have serious side effects. I say this again, listen to you body. I do not want any others to go through what I did.Read More Read Less

I have had a lot of success with Entocort. I have Ulcerative Colitis rather than Crohn's Disease, so my experience could be completely different. In the Spring of 2009, I became very ill and was in a very bad flare up. The Doctor put me on 3 pills of Entocort a day for 30 days, 2 a day for 30 days, and then 1 a day for 30 days. This worked extremely well. For those of you struggling with results from this medication, I have a few comments to make about my time on Entocort and how I think it is more effective. I did not drink ANY alcohol. I have found that any alcohol (even just a single drink) makes symptoms MUCH worse and made it difficult for the medication to work to its full potential. I also stopped taking any kind of oral mesalamine, but continued using the suppository, Canasa. This obviously is not professional medical advice and I encourage you to speak with your Doctor about this. Lastly, I started supplementing with Cod Liver Oil. The Vitamin D in the Cod Liver Oil did wonders for my colon/large intestine. I was symptom free for about 14 months until just recently I've had to go back onto Entocort due to recent stress. I am not, by any means, a Cod Liver Oil sales/spokesperson, however; I do feel that supplementing with the gel caps have greatly contributed to my success of staying in remission. Check with your Doctor to see what he/she thinks of this supplementation as it REALLY has worked well for me.Read More Read Less

I have been on this medication for about 5 years now. I 1st took it about 8-9 years ago and it didn't work very well. But as my crohn's has gone from mild to severe, I was asked by my Dr. to try it again. The 2nd time around it has worked very well. I also am on Remicade infusions every 2 months. Without the 2 drugs, I would probably be stuck in a nursing home.