I have generalized MG with extreme fatigue , I have been taking 60mg every 4 hours since 2003. It has allowed me to continue working as a GM but I still require rest by end of week lots of rest.
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3 People found this comment helpful
Muscle and joint ache, lethargic.
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Paul | 45-54 | Male | On medication for 1 to 6 months | Patient
10/1/2011
Condition: Myasthenia Gravis
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
Took care of the Myasthenia Gravis by the third day but, I have had cramping and leg twitches at night. Finding it hard to sleep Taking 120mg every 4 hours
12
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Renee | 45-54 | Female | On medication for less than 1 month | Patient
3/10/2011
Condition: Other
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction
This is very upsetting to the stomach. For 2 1/2 weeks I walked around with cramps and feeling like I had the flu. This was before I read the side effects. I finally decided not to take the medicine and see how I would feel. The first day I felt 80% better. We will see how things go from there. Over all this is one drug I won't miss.
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Anonymous | 55-64 | Male | On medication for 1 to 6 months | Patient
1/13/2011
Condition: Myasthenia Gravis
Overall rating 1.7
Effectiveness
Ease of Use
Satisfaction
Prescribed by neurologist for possible myasthenia gravis. Tests by an electrodiagnostic consultant indicated not myathenia gravis. Told to stop taking med. On it a total of three months. Am a blood donar, gallons up until now. They banned me from doing so because of the pyridostigmine bromide.
3
2
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ocdano | 65-74 | Male | On medication for 1 to 6 months | Patient
1/10/2011
Condition: Myasthenia Gravis
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction
Throat is somewaht constricted.. some difficulty swallowing. intermittent speech slurring.. frequent urination.. urine color is Bright yellow
7
1
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Jenny | 35-44 | Female | On medication for 10 years or more | Patient
12/9/2010
Condition: Myasthenia Gravis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
As soon as I took the first dose I could speak again.I take 1 60 mg pill every 4 hours I am awake.The side effects vary for me eye watering somedays,runny nosesweatind diareeah.I have been taking this medication for 10 years and it definetly changed my life
13
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scott | Male | On medication for less than 1 month | Patient
1/11/2010
Condition: Myasthenia Gravis
Overall rating 1.3
Effectiveness
Ease of Use
Satisfaction
Muscle and joint ache, lethargic.
3
3
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sleepy eyes | 25-34 | Female | On medication for 6 months to less than 1 year | Patient
12/24/2009
Condition: Myasthenia Gravis
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction
I have been taking this medicine for almost a year and it has really helps.I have been living with my MG for about four years and my sympton are double vision, slurred speech,diffculties swallowing and breathing.When I take my meds on time the meds work great!!!
15
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Anonymous | 19-24 | Female | On medication for 2 to less than 5 years | Patient
9/28/2009
Condition: Myasthenia Gravis
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction
I have had many side affects with this pill after taking for 3 years. At first it didnt seem to work but after my surgery i felt a lot better and now i dont think i need it anymore. doctor suggested i stay on it but im having major stomach problems i feel nauseous and dizzy.
5
1
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Jim | 45-54 | Male | On medication for less than 1 month | Patient
9/22/2009
Condition: Myasthenia Gravis
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction
I have been taking this for 3 weeks now. My MG was severe as far as eyes concerned, I had severe double vision and very droopy eye lids. The eyelids cleared up quickly. I am taking 1 slow release daily and (2) 60mg 4 times daily. My vision has not gotten as good as I had hoped but at least I can open my eyes.Getting the dosage to the correct level it seems is trial and error. I have not had any severe side effects.
19
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Anonymous | 55-64 | Male | On medication for 1 to 6 months | Patient
9/8/2009
Condition: Myasthenia Gravis
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction
I'm taking 150mg. daily in 1/2 (60mg)tablet doses for 4months now. It has helped muscle strength and drooping lid. Attempting incresed dosage has caused excess saliva, muscle cramps, charley horses.
13
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Anonymous | 45-54 | Male | Patient
8/29/2009
Condition: Myasthenia Gravis
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction
still trying to find correct dosage
5
2
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Anonymous | 45-54 | Male | On medication for 10 years or more | Patient
5/26/2009
Condition: Myasthenia Gravis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
I've been taking this medication for over 13 years with mixed results and side effects, but overall it helps control my MG symptoms.
14
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sg | 55-64 | Female | On medication for less than 1 month | Patient
11/26/2008
Condition: Myasthenia Gravis
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction
I started taking 1/2 tablet 3 times a day for a week. Drooping eye improved. Muscle weakness improved slightly. Vision cleared markedly. Increased to full tablet twice a day. Started getting face twitching. Stomach cramps, nausea, diarhea, foot and leg cramps, blood sugar elevated. All this within 1 1/2 weeks of using. I may go back down to half tabs twice a day if the side effects can be reduced, but still be effective. Disappointed in the side effects!
23
1
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charlie tuna | 35-44 | Male | On medication for less than 1 month | Patient
10/25/2008
Condition: Myasthenia Gravis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
has periods of fading towards the end of the day. it is good for up to 5-6 hours then looses it's effectiveness
17
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mestenon | 75 or over | Female | On medication for 10 years or more | Patient
10/19/2008
Condition: Myasthenia Gravis
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction
Have used it for many years (15+) and am not sure it is doing anything for me anymore. My age is 86, female
13
1
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alex anderson | 19-24 | Male | On medication for 1 to 6 months | Patient
3/26/2008
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
duchenne md- paralyzed digestive system- medication has improved my digestive system functions 100%
5
2
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Joanie425 | 25-34 | Female | On medication for 1 to less than 2 years | Patient
12/12/2007
Condition: Myasthenia Gravis
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction
This medication is supposed to strengthen muscles. I have not noticed any change. If I don't take it with food I get severe stomach cramps, sweat, can't breathe, can't talk, can't swallow. I get the WORST charlie horses in every part of my body. I can actually say I hate taking this medicine. I had a droopy eyelid before I was diagnosed with MG. It has gone away. That is the only good thing that has come out of me taking this medicine. I asked my former dr if there was anything else for me to take and she pretty much told me "No". I feel better when I don't take my medicine.Read More Read Less
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