User Reviews for dapsone oral

I have purpura vasculitis. I'm taking 75 mg of Dapsone a day along with prednisone(decreasing prednisone - down to 10 mg per day. My vasculitis symptoms have all gone away. But I will remain on Dapsone for a long period of time per my physician.

Treating my rather rare disease has been difficult. I am 26 yrs old and am the only patient my doc sees with this condition. Oral steroids worked for a while then became unresponsive, so I've been on Dapsone for about 6mo now. So far no real side effects to report ( but we did just increase the dose also, so we'll see...) but I am frustrated because I also see no real improvement in my PG. I can report that while it is still not healing, the immense pain has been better, and I consider this a victory in itself.Read More Read Less

two years ago, i was given dapsone after a brown recluse spider bite, woke up after the third dose, with severe chest pain sweating,nausea and diarrhea now wear a allergic alert necklace. (venom went systemic)

Ohh I am allergic to Dapsone, it is very bad and dangerous for me, it could help me from skin problem while I had vasculitis on my fingers but it made me have skin problem instead.

been taking for dh for about 3 years. Was covered in itchy rash for about 15 years. Used to take 100mg a day now I take about 25mg a week. Work great! Med used to be bulk--90 tablets for $13.00 Now it is packaged and cost $65.00 for 60 tablets, Wish the drug companies could have an outbreak of DH so they could see how much we depend on it for our sanity.

its help me with my condition

My blisters were gone, but the packaging is very difficult. Called the Co. 2x but this year they are very hard to open. My husband is strong and he had a hard time.

I was diagnosed with dH about 5 years ago, prob had it much longer without knowing. Dapsone worked great, relieved itching in 24 hrs. Now take 100mg every 4 to 5 days and this avoids major flare ups though I still get itchy and uncomfortable feeling if I take any gluten foods. I try to be gluten free but that is almost impossible to achieve, Very concerned to read that Dapsone may not be available - would not know what to do if I could not get it, itching is intolerable! I often get dizzy, short of breath and feeling "unwell" but this is better than the itch! I also have blood tests at least annually, so far all is well.Read More Read Less

I was diagnosed with Dermatitis Herpetiformis in 1979.I was covered head to toe in burning blisters. After starting on Dapsone & a Sulfa cream, my condition cleared very rapidly. I have had no side effects. My doctor keeps aclose eye on all my labs. Some mild anemia which he thinks may be the Dapsone. I continue to take 100 mg daily. Change in diet did very little. Only problem is pharmacey had to track down a manufacturer. They were only able to find one.

I would like to change my last post about the packaging. It is rather easy to open! Just had to think out of the box! I've always tried to push the pill through and now I peel the foil on the back side off. So much easier. Would have been better if the had put the instuctions to open on the box!

The pill itself is hard to get out because of the packaging. Other than that it has cleared up my rather rare skin disease. I was started out on Prednisone and now Dapsone. It has been working great! As it says, take as directed and don't mess up. The side effects will kick in for sure.

Diagnosed with Dermatitis Herpetiformis in about 1968. Initial dose 200mg per day . Very effective at clearing skin blisters but severe headaches associated with the medication. Went on gluten free diet in about 1970. Reduced dosage to nil over 8 years. Now have to take Dapsone occasionally even though very strict with diet. Presumably more sensitive to gluten than I once was and some cross contamination in some manufactured foods that should be gluten free. Does everyone now know that everyone with dH should be gluten free even if no gut symptoms?Read More Read Less

I have taken this drug for 5 years. It helped alot for the first1-3 years but now I am in a "holding pattern"; not getting worse or improving. I have blisters in my nose that impairs my breathing, scarred tissue in 1 eye, & redness in my mouth.

The Dapsone Cleared up my skin immediately, i have noticed an increase in exhaustion every day i remain on the drug. My pharmacist also said it was discontinued. I love the effectiveness to take care of my skin, but hate the feeling of being tired and lethargic all the time no matter what time of day i take the drug!

I was on a high dose of prednizone to combat bullous pemphigoid, which I'd had for several years before it was definitively diagnosed through a pathological exam, and as my doc reduced the prednizone, the blisters returned more in both quantity and frequency--not as bad as with no medication, but still not neat--and staying on high doses of prednizone just wasn't acceptable (too many side effects). I started on a low (25mg) dose of Dapsone and gradually that was increased to the current 100mg/day, and I am now off of prednizone altogether. I now have a blister or two perhaps as often as 2-3 weeks apart. While I notice no side effects of the Dapsone (and the side effects of the prednizone are going away), I have had some anemia problems associated with the Dapsone, which we are treating with vitamin B12 supplements--and watching through regular blood tests. I had also been told erroneously that Dapsone "is not available"--which turns out not to be true--an error for about a week in the computer system that Walgreens uses. It is available, but apparently not in loose form and only in the annoying blister packs. Re the blister packs: bend it back and forth at the segment lines a few times before separating them, and one edge will come loose, making it easier to peel back the paper to get to the pill. All in all, Dapsone has been a pretty OK drug--and not having to contend with multiple blisters here and there on my old body is great!Read More Read Less

I have been diagnosed with Linear IgA Bullous Dermatosis after years of suffering. The dapsone works, however, stress really plays a part in my outbreaks and their severity. I HATE the blister packs!

I have been taking this medication 100mg twice daily as needed for the last 20 years for dermetitis herpetiformis. I think the medication works well to alleviate the pain and appearance of blisters that come from this disease. I find it to be 97% effective in treating this disease. Only downfalls are extremem headaches and I have been hospitalized for methemoglobanemia a few times. (Where the oxygen is depleted from your blood and your skin takes on a bluish hue). Thats no fun. All & all a good product.Read More Read Less

I WAS DIAGNOSED WITH CELIAC SPRUE AND WITH THAT I HAD A SKIN RASH THE DAPSONE GOT RID OF THE RASH IN 2 DAYS THIS AFTER BEING MISDIAGNOSED FOR OVER 4 YEARS I WAS SO GLAD TO BE RID OF THIS RASH IT WAS VERY PAINFUL AND UGLY

Used to treat dermitis repediformis.works very well.I don't like the new packaging. With taking 3 tabs a day the blister packs are a pain.