User Reviews for Tysabri intravenous

Between the 2nd and 3rd infusions I became nauseous, couldn't eat, and lost 10 lbs. Before taking the 3rd treatment I checked with the doctor and he said it should be okay. After the 3rd treatment I was in bed for almost three weeks and barely able to move. I made three trips to the emergency room and spent a total of 5 nights in the hospital. After taking the 3rd treatment I had to be put on short-term disability and now I am having trouble with my vision, which I was not having beforehand. My doctor swore it couldn't be the medicine, I had to have some kind of virus or infection. I have been to an urologist, gastroenterologist, physical therapist, and I can't remember all the others. My medical and prescription bills after insurance have been almost $1500.00. I didn't have any of these symptoms before this treatment. When we talked with the doctor before beginning this medication his concern was for the JC virus, nothing like this was mentioned. He still won't admit the medicine caused this. But it can't be anything but, because I the week I was in the hospital they ran every test imaginable trying to find what was wrong with me and everything came back negative. We had such high hopes for this medicine but it has set us back financially and physically. Congrats to those who are taking it and are having success, but please proceed with caution if you are considering this medication. Read More Read Less

I had my third dose yesterday unfortunately I had a severe reaction I went into anafelactic shock and nearly died I was realy surprised because I had no reaction to the first two doses it was doing great I regained my eyesite and my energy it was like a wonder drug I have found out you can have a reaction up to your 6 th dose although uncommon but be aware I hope you have no reactions as it is a wonderfull drug good luck

I have been on Tysabri for 5 1/2 years withouy a break or holiday. I started with Copaxon, moved on to Rebif, and the other on. I was averaging 1 re-laps every 3 months nothing was working. I was hesitant to start Tysabri because of the side effects, you know death. But after a month of research a with input from my doctor I switched. Now id 5 1/2 years I average 1-2 relapses a year. Tysabri is a blessing in my life.

Although I tested positive for the JCV virus, I chose to start the Tysabri. I was previously on Rebif, had 2 new brain lesions on my last MRI with it, and because of a fear of needles (3 times subcu per week), and the glowing results of Tysabri, I have had 8 infusions so far, and I believe that I am doing better on the Tysabri. I am entering the time period that my risks for PML are increasing, and YES, I am leery, but I put everything in God's hands. Everyone please pray for me. Thank you.

I have been on/off Tysabri for the last 3 years. I had to take a break due to pregnancy inwhich I took 2 treatments not knowing I was pregnant and I am proud to say I have a healthy baby girl. By my second treatment my numbness and pains started to decrease. It is very easy to use if you can withstand having an IV inserted. The only downfall for me, the medicine lasts 28-29 days and until my next appt I will endure some aches and pains.

it gave me my independance back

i was on tysobi for two years.and now i have no vaines left.so i am getting the drug in a power port in my chest it does help.

Tysabri has given me much improved quality of life. I have had relapsing remitting MS since 2003. Tysabri involves a trip to the hospital for an infusion every 28 days. It is a very supportive environment to discus symptoms with other patients and concerns with the support nursing staff. My tolerance for heat has greatly improved. I still live and sleep in aircon, but I am no longer drained a sick after an hour in temperatures above 33C. I can actually go for a long walk on a hot day. At first after taking Tysabri I was always quite scattered for a day or two afterwards. Two years on, I am often able to work on the same day that I have the Tysabri infusion. I have also found Tysabri helps me manage fatigue better. I have been able to return to the gym and work out for around 1hour x 5 times a week. I have not experienced nausea or dizziness. I did develop heart palpitations and shortness of breath while having my first few infusions, but this coincided with the development of a misfiring nerve in my heart for which I had a heart ablation operation. I have had increased sensitivity to light since having taken Tysabri. I found I had the JC virus which means I will have to seriously consider if I can continue with this medication long term. But there is nothing on the market that will give that same quality of life I receive by taking Tysabri. Read More Read Less

I am JC Virus neg so I will continue drug. I have spasms in my legs and back and must have Botox shots. I wish the drug would help with pain. BUT, I have not had a major attack since starting the drug. Dr. wants me to stay with the plan even if I become positive which I don't think I want to do. Tried Gilenia but had to get off because the tips of my feet were actually red and they thought I had a reaction. It went away but a year after being on Tysabri, it is back. Wasn't the pill after all but we have to figure out what this is. I and my Dr. had hope that Tysabri would help my symptoms in addition to avoiding the attacks.Read More Read Less

Well, I went from Copaxone to Tysabri, as I felt the Copaxone was not doing a thing for me. I had my first infusion last Friday and aside from not being able to find a vein in my hand at first, the process goes smooth and you can use it as a time to relax, as you're there for a little over 2 hours, one hour for the infusion and one hour for them to monitor you. I was a little nervous at first, but once the IV was in and the medicine was administered, I just read my NOOK and the hours went by pretty quick. I was only a little tired afterwards, but I've been more fatigued without treatment and I felt pretty normal the rest of the day, though I did take it easy. The rest of the weekend I felt fine as well. I notice, even after my first infusion, that I have a little more energy and the spasticity in my leg doesn't seem as bad. Psychological? I don't know. But whatever is causing it, I won't question it and will enjoy feeling well. I'm only on this a short time until BG-12 comes out due to the fact I am JC positive, but until then, I hope I continue to see results as this is the most effective medication out there to date. Read More Read Less

I have been on Tysabri for almost a year now. Just had treatment on Monday, but am fighting shingles at this time. I have tested positive for the JC virus and just had another MRI last month. WIll see my Dr. next month to discuss results and begin paperwork to retire on a Medical retirement. Have had MS for just over 20 years and have been slowly getting worse in the last 18 months. Overall I'm very satisfied with Tysabri.

First medication that has helped with decreasing my active lesions.

I'm hoping my MRI 's show no new lesions and that I can remain ambulatory

I have experienced bladder & urinary tract nfection several times following Tysabri infusions.

One of the best drugs out there. Over 6 years with out a relapse.

as i had very few symptoms to start with but keep getting new spots in my brain during the time i took two other medications, and none sence Tysabri and according to the MRI's at least one of the spots went away, so I can only say good things about Tysabri. I,ve tested posative for the JC Virus twice and have been on Tysabri about 4 years now. my experience with Tysabri has been good and hope it stays that away.

It has been very good but I cannot find out what the symptoms are for pml. I have had a fever for three days and want to be sure it is not related

I understand Tysabri works well for many who have M.S. but it was absolutely horrible for me. I developed Rheumatoid Arthritis during treatment and then at the end of 6 month into treatment I had an MRI and there was no evidence of lesion reduction. Therefor my Neurologist decided to take me off of Tysabri. I did not do well on Copaxone or Rebif either so My Neuro wanted to try Rituxan because I developed R.A. in addition to my stubborn and aggressive M.S. I did my first infusion yesterday. No adverse reactions and I am doing fine. The initial steroid injection has help reduce some inflammation but I know that's just temporary. I am eager to find out if the Rituxan works for me. I have a good feeling about it because all the T-cell modulating drugs dont seem to work for me and Rituxan is a B-cell modulator and has shown effective for people with stubborn cases of M.S. and effective for R.A. which I have both so I do have high hopes but trying to remain realistic and know that it may not work.Read More Read Less