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2.4 Overall Rating

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Most voted positive review

19 People found this comment helpful

ug 2007. In oct 2007 my echogram for heart murmur was ok. In oct 2008 the echogram showed something wrong with the heart. I am now in the process of waiting to see a surgeon for a valve replacement. In Aug 2008 when I had the IV I swelled in the face the next day but it was gone on the second day. I have had more problems with diarreha and swallowing food. Also I have gottenn a terrific pain...

Most voted negative review

3 People found this comment helpful

On Monday, Sep 10, 2007 the nurse put the Boniva injected in my arm, but I don't think the Boniva was put into a vein, because on Tuesday my arm hurt, swelled, and had fever to the touch. Called my Dr. and talked to the nurse that injected me and was told to put a heat pad on my arm and it should fell better. But on Wednesday after sleeping with a heat pad on my arm, my whole body ached. Every ...

Shared reviews and ratings

bette | 75 or over | Female | On medication for less than 1 month | Patient
11/29/2009
Condition: Decreased Bone Mass Following Menopause
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction

I have just taken my first treatment of boniva and have had no ill effects. I did as the nurse ask me to do,plenty fo fluids more calcium also more vita d3 .Am wondering how long do I do those things.

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lynda | 55-64 | Female | Patient
11/21/2009
Condition: Decreased Bone Mass Following Menopause
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

I have been taking it for awhile, but I still have a hip that is going bad/ since my last treatment two days ago, I have had quite abit of pain in my hip, but I still am confident it is better to use it then not

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BluRydge | 55-64 | Female | On medication for 1 to 6 months | Patient
10/6/2009
Condition: Other
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

I ended up with osteoporosis because of a nutritional deficiency caused by an unrelated health issue. I'm now on megadoses of Vit. D (once a week) and calcium supplements. I've been on Evista for years, and in June of this year (2009) started Boniva infusions. I had no problems with the first infusion, no side effects, etc. My second infusion was appx. two weeks ago. This time I immediately experienced a horrible metallic taste in my mouth resulting in nausea and heaving but that was over in a couple of minutes. That's been the only side effect I've experienced so far...no fever, no aches and pains, stiffness...nothing. I don't know why I would taste anything from an infusion but that's what happened. I also have no idea Why it happened the second time but not the first. But if that's the only side effect I have to deal with every three months, it's well worth that small amount of discomfort if the drug improves my bone health. I can't offer an opinion as to Boniva's effectiveness or my satisfaction with the drug because of the time factor involved before any results (or lack thereof) can be realized.Read More Read Less

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KIKI | 45-54 | Female | On medication for less than 1 month | Patient
10/4/2009
Condition: Decreased Bone Mass Following Menopause
Overall rating 1.3
Effectiveness
Ease of Use
Satisfaction

After just taking one Boniva pill, I experienced diarrhea, muscle aches and pains as well as joint pain. It started the very next night and I have had only little relief three days later. My back and joints still hurt and I feel run down as if I had a severe flu. I was reluctant to take this medication and I wish my doctor had disussed potential side efffects more clearly before precribing this medication. A pharmacist informed me afterwards that the medication is very corrosive to the stomach and causes significant side effects in some people immediately and for some people years later. I am appalled that such a medication is given without specific discussion of the harmful effects. From the information I have seen so far it appears that the side effects don't outweigh the benefits for many people. There seems to be limited effectiveness and people are put through intense pains for little benefit. I had Chemo in 2005 for four months and the side effects are similar. With such wide ranging negative effects on the stomach and digestive system, muscles and joints, and potentially more serious consequences in terms of swallowing problems and ulcers etc., this medication should come with prominent and multiple warnings so people can make an informed decision about taking it. I will discontinue it immediately and hope that it has not caused longterm damage. I would not recommend it without extreme caution.Read More Read Less

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kdcjeep | 45-54 | Female | On medication for 6 months to less than 1 year | Patient
9/1/2009
Condition: Decreased Bone Mass Following Menopause
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I had my first injection in August 2009...I was on the monthly pill, but the injection was more reasonable...No side effects, and I am starting to notice a difference since I started taking Boniva 8 months ago...I am a patient & caregiver...

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lilly | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
7/18/2009
Condition: Decreased Bone Mass Following Menopause
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

I also a fiberomalgia patient...I live with severe pain anyway. no pain pill helps!!! My bone, muscle, & joint pain is so bad now I can hardly get out of bed. I am going to discontiue the iv..........

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Anonymous | 65-74 | Female | On medication for 6 months to less than 1 year | Patient
7/11/2009
Condition: Decreased Bone Mass Following Menopause
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction

I was taking an oral medication for years, and had no real problems. The ease of the IV drew me to Boniva. I have really severe pains in my shoulders and my arms. The doctor says they are not related. They only started after the first injection so I'm convinced there is a relationship between the drug and the pain. I'll NEVER use it again.Beware Boniva!

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miss emily | 65-74 | Female | On medication for 1 to 6 months | Patient
7/10/2009
Condition: Decreased Bone Mass Following Menopause
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

I have received only one infusion of the Boniva IV. I had been taking the oral Boniva with no side effects. With the infusion I have been experiencing a reaction in my thigh bones of both legs. It feels like I have run a marathon when ever I do anything that involves walking. I cannot find this side effect anywhere to be able to describe it to the doctor. He keeps saying "what does it feel like?" I don't have any other descriptions.

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Jane | 65-74 | Female | On medication for 2 to less than 5 years | Patient
7/1/2009
Condition: Decreased Bone Mass Following Menopause
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I started on IV in 2006 & this year had another bone scan & my bone mass has increased. Although I had some doubts,It is doing its job.

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Anonymous | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
1/23/2009
Condition: Decreased Bone Mass Following Menopause
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction
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Anonymous | 65-74 | Female | Patient
1/2/2009
Condition: Decreased Bone Mass Following Menopause
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

aittle back pain continues,also i feel more soreness in my stomach

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Maggie | 75 or over | Female | On medication for 1 to less than 2 years | Patient
11/19/2008
Condition: Decreased Bone Mass Following Menopause
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

ug 2007. In oct 2007 my echogram for heart murmur was ok. In oct 2008 the echogram showed something wrong with the heart. I am now in the process of waiting to see a surgeon for a valve replacement. In Aug 2008 when I had the IV I swelled in the face the next day but it was gone on the second day. I have had more problems with diarreha and swallowing food. Also I have gottenn a terrific pain in the left leg which has been ckd for blood clots. I am wondering if anyone has had the same symptons. It was really noticed by my thyroid doctor before I took my shot in Aug 2008. ThanksRead More Read Less

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hedwik | 45-54 | Female | On medication for 1 to 6 months | Patient
11/11/2008
Condition: Decreased Bone Mass Following Menopause
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

I had an awful time after the first IV Boniva infusion, had fever, chills and 5 days of horrible bone pain and weakness. I never thought i would do this again but the doc said... the first time is worst and it will likely be better. NOt. I did not have the fever, chills second time but this is my 5th day of feelin awful, it is improving but i will never do this again. Few years, i bet these meds are taken off the market

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Anonymous | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
9/6/2008
Condition: Decreased Bone Mass Following Menopause
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction

I have multiple medical problems-breast ca with chemo x 6 months ,inflammatory & osteoarthritis ,Degenerative disc disease- (my whole spine ) ,fibromyalgia ,lyme arthritis ,diverticulitis and a few more problems i won't go into. After taking the IV Boniva for the 3rd time,my body went into an inflammatory response that i have never experienced! It affected my eyes & lungs to my suprise and fear!! I have never felt this way in my life! I was very fearful for my well being. As i was coping with this,..the most scarey part of the inflammation,...i was also having to deal with the massive pain throughout my body...my doctors were trying to individually treat me....not connecting the dots together as i eventually did! I had told each doctor that the only difference in my life was the boniva i was taking...no one put 2 and 2 together till i did!This has definitely stopped me from ever taking this drug again!!!I can't find anything saying this is a side affect,...but i will keep looking on the internet. It has taken me 2 months to feel better again and i'm not yet back to my old self. I just know it scared me to death and people need to know that this could possibly happen to them!! (By the way...i had no side affects the 1st IV, the 2nd IV i can remember not feeling great-body pain etc,...but it went away after 2 wks,..but it was never like the 3rd time!!!) I will take a chance with my bones and not take the drug and eat more healthy!!! Good Luck!Read More Read Less

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[email protected] | 45-54 | Female | On medication for 2 to less than 5 years | Patient
7/7/2008
Condition: Decreased Bone Mass Following Menopause
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

fevers day of the IV. Now I have a tooth that needs to be taken out, no chance of restoring. I'm afraid of osteonecrosis. Any new info or suggestions. 2 yrs before i was on Aredia for 6 mos& 2 yrs before that Actonel (i lost 4 pts) I'm scared of this jaw death/ please advise of any new info Thanks

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Achesnpains | 55-64 | Female | On medication for 1 to less than 2 years | Patient
4/15/2008
Condition: Decreased Bone Mass Following Menopause
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

My first and only Boniva injection resulted in severe, long-lasting side effects. I had a low-grade fever, aches and pains in places I never had pain before. I was nauseated, dry heaving, and had great difficulty walking. I had difficulty swallowing, and I felt inflamed everywhere. Pain would migrate from joint to joint, sharp in intensity. After the three months was over, my doctor switched me to the monthly pill. Unfortunately, the side effects are the same. I will never take this poison again and urge everyone to research this drug before taking it. Get your information from PATIENTS, not the so-called professionals. I am sure that when more males take this drug and report its severe side effects, Roche and the medical profession will decide that, yes, something is very wrong with Boniva. BEWARE BONIVA!!! Read More Read Less

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Diana | 65-74 | Female | On medication for 1 to less than 2 years | Caregiver
4/14/2008
Condition: Decreased Bone Mass Following Menopause
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

My mother is 87 years old. She has received a # of infusions over the past 2 years. Normally, she has had no side effects; however, this last one on April 7, took its toll. She awoke the following morning with back pain & has continued with severe back pain for an entire week. Hopefully, it will resolve soon; she is thinking that she will probably not take the med. again. Worse than her former rib fractures she says! She hasn't had a recent bone density study to evaluate the progress either. Read More Read Less

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Anonymous | 65-74 | Female | On medication for 1 to less than 2 years | Patient
3/14/2008
Condition: Decreased Bone Mass Following Menopause
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

I've been on Boniva IV for a full year. No problems with side-effects. However, after a bone density scan, I showed no improvement in my bone density; even a small loss. This was very disappointing for me.

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Jenny | 65-74 | Female | On medication for 1 to 6 months | Patient
3/2/2008
Condition: Decreased Bone Mass Following Menopause
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

I had my first Boniva IV in September, 2007. My appetite was poor, following it, with stomach distress. I was very weak with severe pains in my hips and legs. Unfortunately, I didn't tie these symptoms to the Boniva. I had my second Boniva IV on January 8, 2008. That one knocked me to my knees. By the time I got home, my husband had to help me to the bed. I was having severe abdominal pain and weakness. It is now March 1, and I am still having severe side effects. Added to the stomach and abdominal pain is diarhhea after any thing I eat. A snack or a full meal. And I'm having to deal with all of this with little help from pain meds. I have a pain management doctor, and I have called and asked for his help and to have an appointment. He refuses to give me help and refuses to talk with me on the telephone. My internal specialist says that she doesn't "deal" with pain. I have paid $1,000 out of pocket for each of the IVs. I feel totally abandoned by my doctors. I would get in a pit of snakes sooner than I would ever let anyone give me another Boniva IV. I am in pain 24/7. I also went to my gastrointologist and had a CAT scan and colonoscopy. The pain is so bad that I thought surely I must have something very serious. His diagnosis, when he pulled up the information on Boniva IV, was that all symptoms are rare side effects to the Boniva. The tests showed that I had no condition that would cause these side effect. It's now March 1, so I am looking for at least another month or more of this suffering. I had breast cancer and chemo in 1996. I am MUCH sicker from the Boniva than I was with chemo. And I thought the chemo would kill me.Read More Read Less

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Donitta | 45-54 | Female | On medication for less than 1 month | Patient
11/19/2007
Condition: Decreased Bone Mass Following Menopause
Overall rating 1.7
Effectiveness
Ease of Use
Satisfaction

The medication went under the site where injected and burned so bad. Swollen and Red and my hands hurt real bad. If given in the vein correctly you dont even know you got it but if not in the vein very painful. My doctor told me to put heat nothing has helped.

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