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3.7 Overall Rating

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46 People found this comment helpful

Ever since I've been on herceptin just by itself (without taxotere and carboplatin) I've been in constant joint pain; shoulders, elbows, fingers, hips and feet nothing helps! I feel like a little old lady with arthritis but I'm only 43. Does anyone else feel this way?

Shared reviews and ratings

ymum | 65-74 | Female | On medication for 1 to less than 2 years | Patient
6/25/2011
Condition: HER2 Positive Breast Cancer
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

Had my treatments 2 and a half years ago and I still don't have my strength back. Still hard to walk very far without getting weak in my legs and have to set down.

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kp | 45-54 | Female | On medication for 6 months to less than 1 year | Patient
5/27/2011
Condition: HER2 Positive Breast Cancer
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction
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JenB | 35-44 | Female | On medication for 6 months to less than 1 year | Patient
5/23/2011
Condition: HER2 Positive Breast Cancer
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

I'm glad there is something for those of us with E&P negative breast cancer. I'm done with chemo but will receive Herceptic for 5 more months. I have insomnia and muscle/joint aches but other than that no major side affects.

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Anonymous | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
4/3/2011
Condition: HER2 Positive Breast Cancer
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

mugas ok main complaint sore knees and feet.

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Pearl | 55-64 | Female | On medication for 1 to less than 2 years | Patient
3/5/2011
Condition: HER2 Positive Breast Cancer
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

Diagnosed 2/8/10, stage 1V, metastatic breast cancer, ER, PR Neg. HER2 positive. Began chemo & Herceptin Infusions 3/1/10. had 8 chemo treatments every 3 weeks and Herceptin every 2nd and 3rd week for 6 months & now have Herceptin every 3 weeks. Scanned after every 2 cycles and began to show shrinkage in the first scan. I had cancer in my right breast, lymph nodes, liver and bone. 2.8 cm in breast and 3.1 in my liver. No sign of either after the 6th chemo treatment but went ahead and did 2 more cycles to make sure. 9/8/10 = lumpectomy on right breast and on 3/1/11 began my 2nd year with Herceptin and am told that I will need to continue with Herceptin indefinitely. Combined with the chemo gave great results with the tumors in the breast & liver, but not without severe side effects. EXXXXXXtreme fatigue, severe muscle & joint pain continues to this day, very brittle and thin fingernails. Of course I lost my hair everywhere and the only place it did not return is in my nose. The hair on top of my head is thick, curly and gray with darker roots. No radiation so far. Continuing with Herceptin infusions indefinitely every 3 weeks. Read More Read Less

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louiebaby | 35-44 | Female | On medication for 1 to less than 2 years | Caregiver
1/9/2011
Condition: HER2 Positive Breast Cancer
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

My mum was diagnosed with Paget's disease of the nipple 4 years ago. We additionally found out that she was Her2+. She was placed on herceptin for 52 weeks. We completed the treatment 18 months ago, and she seems to be fine.

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emdm1987@aol,com | 55-64 | On medication for 1 to less than 2 years | Patient
12/23/2010
Condition: HER2 Positive Breast Cancer
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction
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DebraD | 45-54 | Female | On medication for 5 to less than 10 years | Patient
12/22/2010
Condition: HER2 Positive Breast Cancer
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I have used Herceptin off and on for 6 yrs, since I became metastatic 4 yrs ago. I do have some mild side effects: some foot swelling and mild body aches. I had an allergic rx with the first dose, but have been fine since. I have a very aggressive form of bc-IBC, and I believe that Herceptin has kept me going all this time, along with chemo intermittently.

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swankc | 55-64 | Female | Patient
12/21/2010
Condition: HER2 Positive Breast Cancer
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

IV every three weeks for 17 treatments; no side effects that I'm aware of.

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SurvivorRunner | 25-34 | Female | On medication for 1 to less than 2 years | Patient
12/8/2010
Condition: HER2 Positive Breast Cancer
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I received Herceptin IV for 17 treatments, over the course of a year from October 2008-October 2009. It was easy to tolerate and I didn't notice any problems taking it at all. I am thankful that it is available for triple positive women like myself.

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Bonniebeth | 45-54 | Female | On medication for 6 months to less than 1 year | Patient
11/11/2010
Condition: HER2 Positive Breast Cancer
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I was diagnosed in April 2009 with spread to the lymphnodes. I had a lumpectomy and 13 nodes removed, only 2 positive. They had to go back into my breast 3 more times over the next month until they got clean margins. My breast is now very deformed, but it's still there! I did 3 rounds of chemo and started heceptin. I had to stop herceptin after 3 months because of the muga results. After 4 months I went back on and am now only 2 infusions away from being done. 52 treatments is alot, but if it reduces my rate of reoccurance, the weight gain, fatigue and back and joint pain will have been worth it. Read More Read Less

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Anonymous | 45-54 | Female | On medication for 6 months to less than 1 year | Patient
11/8/2010
Condition: HER2 Positive Breast Cancer
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I don't really know if the drug is working the chemo was ok for 6 mths now con't with Hercepin for another 6 mths. worse complaint is swelling, legs and feet and numbness in the toes.... how do you get rid of the swelling.... gained at least 20 lbs over the course of chemo.... no hair anywhere !!! Will finally see my doctor in 2 weeks ( haven't seen her since she sent me for treatment) maybe i'll get some answers then... Everyother doctor i've seen keeps telling me the same stuff you can read on line. I wish they would get they heads out of the books and give me some realy information not statistics.....Read More Read Less

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Anonymous | 45-54 | Female | On medication for 1 to 6 months | Patient
10/18/2010
Condition: HER2 Positive Breast Cancer
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I have been on Herceptin for 5 weeks and truly it is so easily tolerated. It is givn weekly along with chemo every 2nd week and the results are amazing: after 2 treatments my tumor has shrunk by over 1/2. No side effects but I remain very active in mind and body...the whole key is a good attitude and a fighting spirit. I will remain on Herceptin for a total of 20 weeks then surgery (lumpectomy) radiation and Herceptin for a yr. This journey is soooo doable, not a bowl of cherries but the results and outcome make it worthwhile. I am grateful and happy to be over being scared.Read More Read Less

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Anonymous | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
9/30/2010
Condition: HER2 Positive Breast Cancer
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I have had a masectomy in Nov 2009 chemo, radiotherapy and will be taking Herceptin until March next year. I find the Herceptin is well tolerated except for joint and bone pain...very severe. I feel like an old lady. However I have been assured that I will improve after I finish treatment. I am very thankful for Herceptin.

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Anonymous | 35-44 | Female | Patient
9/23/2010
Condition: HER2 Positive Breast Cancer
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

Her2+/ER/Pr-. Ductal with a <2mm tumor. Onc put me on Herceptin for a year b/c I'm young/ help prevent recurrence. I do get rapid heartbeats but I have for years and saw Cardiologist who ran tests and said unrelated.

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louisefig | 55-64 | Female | On medication for 1 to less than 2 years | Patient
7/9/2010
Condition: HER2 Positive Breast Cancer
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

2003 diagnosed with HER 2 +, node positive. Mastectomy, Chemo, and Herception for 1 yr. Now 2010, Zero sexual tolerance, Neg for breast cancer/ or any cancer. Lost all my hair off the top of my head, will now need to buy wig. Chemo killed everything, except my soul.

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crantode | 55-64 | On medication for 5 to less than 10 years | Patient
5/19/2010
Condition: HER2 Positive Breast Cancer
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

I have been on Herceptin for the past 6 years after having breast cancer 4 times. This drug works very well. So if your doctor has you on this drug stay with it as long as you can. If your heart can take it the worst thing I can say is sometimes it is a drag to have to go for treatment every three week, and your nails become brittle. Other than that it is a wnderful drug for those of us with HER2 breast cancer. I hope this is helpful for you.

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kojack | 45-54 | Female | On medication for 1 to 6 months | Patient
5/12/2010
Condition: HER2 Positive Breast Cancer
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

i get really sleepy, my body aches, my vision is blurred,and my bowels dont move normally. i also take femara this drug i have to take one pill every day for five years and the herceptin every three weeks.

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[email protected] | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
3/24/2010
Condition: HER2 Positive Breast Cancer
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

i have had no side affects except for indigestion

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thtremom | 55-64 | Female | On medication for 1 to less than 2 years | Patient
3/9/2010
Condition: HER2 Positive Breast Cancer
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I had no side effects from the Herceptin alone - had my last infusion 3 weeks ago. It was a breeze compare to the chemo and radiation.

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