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Porphyria

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

American Porphyria Foundation

National network. Founded 1981. Supports research, provides education and information to the public, patients and physicians. Networks porphyria patients and support groups. Quarterly newsletter, pen pal program, phone network and group development guidelines available. Donation $35/yr.
Write:
American Porphyria Foundation
4900 Woodway Drive, Ste 780
Houston, TX 77056-1837
Voice: 713-266-9617 (Mon.-Fri., 9am-4pm CST)
Fax: 713-840-9552
Website: http://www.porphyriafoundation.com
E-mail: porphyrus@aol.com
Verified: 9/2/2011

WebMD Medical Reference from the American Self-Help Clearinghouse

Last Updated: February 25, 2014
This information is provided as a resource and does not constitute an endorsement for any group.  It is the responsibility of the reader to decide whether a group is appropriate for his/her needs.  For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.   

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