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Genetic Disorders and Birth Defects continued...

Fraxa Research Foundation
(Fragile X)
45 Pleasant St., Newburyport, MA 01950
Phone: (978) 462-1866
www.fraxa.org/

Huntington's Disease Society of America
505 Eighth Avenue, Suite 902
New York, NY 10018
1-800-345-HDSA
E-mail: hdsainfo@hdsa.org
www.hdsa.org/

March of Dimes Resource Center
1275 Mamaroneck Avenue
White Plains, NY 10605
888/MODIMES 

(914) 997-4488
www.modimes.org

National Down Syndrome Congress
National Center
1370 Center Drive, Suite 102
Atlanta, GA 30338
1-800-232-NDSC or 770.604.9500
E-Mail: info@ndsccenter.org
http://www.ndsccenter.org/

National Easter Seal Society
230 West Monroe St.
Suite 1800
Chicago, IL 60606-4802
1-800-221-6827 or (312) 726-6200
www.easter-seals.org/site/PageServer

National Hemophilia Foundation
116 West 32nd Street, 11th Floor
New York, NY 10001
1-800-42-HANDI or (212) 328-3700
E-mail: info@hemophilia.org
www.hemophilia.org/

Polycystic Kidney Disease (PKD) Foundation
9221 Ward Parkway, Suite 400
Kansas City, MO 64114-3367
1-800-PKD-CURE
E-mail: pkdcure@pkdcure.org
www.pkdcure.org

Spina Bifida Association of America
4590 MacArthur Blvd., NW, Suite 250
Washington, DC 20007-4226
800/621-3141
202/944-3285
E-mail: sbaa@sbaa.org
www.sbaa.org

The National Organization for Rare Disorders, Inc.
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813-1968
203/744-0100
800/999-6673
E-mail: orphan@rarediseases.org
www.rarediseases.org

Child's Safety

Auto Safety Hotline
1-800-424-9153

www-odi.nhtsa.dot.gov/ivoq/
For car seat information

Consumer Product Safety Hotline
1-800-638-2772

www.cpsc.gov
For information about toys, appliances, furniture and other household products

Family Services

American Academy of Family Physicians
Attn: Special Projects Dept.
11400 Tomahawk Creek Parkway
Leawood, KS 66211-2672
E-mail@familydoctor.org
www.familydoctor.org

Child Care Bureau
U.S. Department of Health and Human Services
Administration for Children and Families
Office of Public Affairs
370 L'Enfant Promenade, SW 5th Floor
Washington, DC 20447
(202) 690-6782
http://www.acf.hhs.gov/programs/ccb/

Family Voices National Office
3701 San Mateo Blvd NE, Suite 103
Albuquerque, NM 87110
(505) 872-4774 or (888) 835-5669
E-mail: kidshealth@familyvoices.org
www.familyvoices.org

U.S. Department of Agriculture
Food and Nutrition Service
3101 Park Center Drive
Alexandria, VA 22302
www.fns.usda.gov/
Information on nutrition assistance programs

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