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Spina Bifida

Important
It is possible that the main title of the report Spina Bifida is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Neural Tube Defect
  • SB

Disorder Subdivisions

  • Spina Bifida Cystica
  • Spina Bifida Occulta

General Discussion

Spina bifida is characterized by incomplete closure of certain bones of the spinal column (vertebrae), leaving a portion of the spinal cord exposed. Part of the contents of the spinal canal may protrude through this opening. In the most severe form, rachischisis, the opening is extensive. Spina bifida may cause difficulties with bladder control, walking and/or other functions, depending on the severity of associated symptoms.

Resources

March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)997-4488
Fax: (914)997-4763
Tel: (888)663-4637
Email: Askus@marchofdimes.com
Internet: http://www.marchofdimes.com

Spina Bifida Association of America
4590 MacArthur Boulevard NW
Suite 250
Washington, DC 20007-4226
Tel: (202)944-3285
Fax: (202)944-3295
Tel: (800)621-3141
Email: sbaa@sbaa.org
Internet: http://www.sbaa.org

Easter Seals
230 W. Monroe St.
Suite 1800
Chicago, IL 60606-4802
Tel: (312)726-6200
Fax: (312)726-1494
Tel: (800)221-6827
TDD: (312)726-4258
Email: info@easterseals.com
Internet: http://www.easterseals.com

International Federation for Spina Bifida and Hydrocephalus
Cellebroersstraat 16
Brussels, B1000
Belgium
Tel: 32025020413
Fax: 32025021129
Email: info@ifglobal.org
Internet: http://www.ifglobal.org

NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/

Spina Bifida and Hydrocephalus Canada
Suite 647-167 av. Lombard Avenue
Winnipeg
MB
R3B 0V3
Canada
Tel: 2049253650
Fax: 2049253654
Tel: 8005659488
Email: info@sbhac.ca
Internet: http://www.sbhac.ca

Shine
42 Park Road
Peterborough, PE1 2UQ
United Kingdom
Tel: 01733555988
Fax: 08454507755
Email: info@shinecharity.org.uk
Internet: http://www.shinecharity.org.uk/

Birth Defect Research for Children, Inc.
976 Lake Baldwin Lane
Orlando, FL 32814
USA
Tel: (407)895-0802
Email: staff@birthdefects.org
Internet: http://www.birthdefects.org

Pathways Awareness Foundation
2591 Compass Rd
Suite 100
Glenview, IL 60026
USA
Tel: (847)510-5633
Tel: (800)955-2445
Email: friends@pathwaysawareness.org
Internet: http://www.pathwaysawareness.org

Christopher & Dana Reeve Foundation
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
USA
Tel: (973)379-2690
Fax: (973)912-9433
Tel: (800)225-0292
Email: prc@ChristopherReeve.org
Internet: http://www.christopherreeve.org

New Horizons Un-Limited, Inc.
811 East Wisconsin Ave
P.O. Box 510034
Milwaukee, WI 53203
USA
Tel: (414)299-0124
Fax: (414)347-1977
Email: horizons@new-horizons.org
Internet: http://www.new-horizons.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Spina Bifida & Hydrocephalus Association of Ontario
555 Richmond St W
PO Box 103
Ste 1006
Toronto, Ontario, M5V 3B1
Canada
Tel: 4162141056
Fax: 4162141446
Tel: 8003871575
Email: provinivial@sbhao.on.ca
Internet: http://www.sbhao.on.ca

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

Spina Bifida Hydrocephalus Queensland
PO Box 8022
Woolloongabba
Queensland, 4102
Australia
Tel: (07) 3844 4600
Fax: (07) 3844 4601
Email: info@sbhqueensland.org.au
Internet: http://www.spinabifida.org

Chiari & Syringomyelia Foundation
29 Crest Loop
Melville, NY 11747
Tel: (718)966-2593
Internet: http://www.CSFinfo.org

Fetal Hope Foundation
9786 South Holland Street
Littleton, CO 80127
USA
Tel: (303)932-0553
Tel: (877)789-4673
Email: info@fetalhope.org
Internet: http://www.fetalhope.org

Medical Home Portal
Dept. of Pediatrics
University of Utah
P.O. Box 581289
Salt Lake City, UT 84158
Tel: (801)587-9978
Fax: (801)581-3899
Email: mindy.tueller@utah.edu
Internet: http://www.medicalhomeportal.org

For a Complete Report:

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  9/23/2007
Copyright  1984, 1985, 1986, 1987, 1988, 1989, 1990, 1991, 1992, 1993, 1999, 2006, 2007 National Organization for Rare Disorders, Inc.

WebMD Medical Reference from the National Organization of Rare Disorders

Last Updated: September 04, 2014
This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

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