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    Spina Bifida

    Important
    It is possible that the main title of the report Spina Bifida is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

    Synonyms

    • Neural Tube Defect
    • SB

    Disorder Subdivisions

    • Spina Bifida Cystica
    • Spina Bifida Occulta

    General Discussion

    Spina bifida is characterized by incomplete closure of certain bones of the spinal column (vertebrae), leaving a portion of the spinal cord exposed. Part of the contents of the spinal canal may protrude through this opening. In the most severe form, rachischisis, the opening is extensive. Spina bifida may cause difficulties with bladder control, walking and/or other functions, depending on the severity of associated symptoms.

    Resources

    March of Dimes Birth Defects Foundation
    1275 Mamaroneck Avenue
    White Plains, NY 10605
    Tel: (914)997-4488
    Fax: (914)997-4763
    Tel: (888)663-4637
    Email: Askus@marchofdimes.com
    Internet: http://www.marchofdimes.com

    Spina Bifida Association of America
    4590 MacArthur Boulevard NW
    Suite 250
    Washington, DC 20007-4226
    Tel: (202)944-3285
    Fax: (202)944-3295
    Tel: (800)621-3141
    Email: sbaa@sbaa.org
    Internet: http://www.sbaa.org

    Easter Seals
    230 W. Monroe St.
    Suite 1800
    Chicago, IL 60606-4802
    Tel: (312)726-6200
    Fax: (312)726-1494
    Tel: (800)221-6827
    TDD: (312)726-4258
    Email: info@easterseals.com
    Internet: http://www.easterseals.com

    International Federation for Spina Bifida and Hydrocephalus
    Cellebroersstraat 16
    Brussels, B1000
    Belgium
    Tel: 32025020413
    Fax: 32025021129
    Email: info@ifglobal.org
    Internet: http://www.ifglobal.org

    NIH/National Institute of Neurological Disorders and Stroke
    P.O. Box 5801
    Bethesda, MD 20824
    Tel: (301)496-5751
    Fax: (301)402-2186
    Tel: (800)352-9424
    TDD: (301)468-5981
    Internet: http://www.ninds.nih.gov/

    Spina Bifida and Hydrocephalus Canada
    Suite 647-167 av. Lombard Avenue
    Winnipeg
    MB
    R3B 0V3
    Canada
    Tel: 2049253650
    Fax: 2049253654
    Tel: 8005659488
    Email: info@sbhac.ca
    Internet: http://www.sbhac.ca

    Shine
    42 Park Road
    Peterborough, PE1 2UQ
    United Kingdom
    Tel: 01733555988
    Fax: 08454507755
    Email: info@shinecharity.org.uk
    Internet: http://www.shinecharity.org.uk/

    Birth Defect Research for Children, Inc.
    976 Lake Baldwin Lane
    Orlando, FL 32814
    USA
    Tel: (407)895-0802
    Email: staff@birthdefects.org
    Internet: http://www.birthdefects.org

    Pathways Awareness Foundation
    2591 Compass Rd
    Suite 100
    Glenview, IL 60026
    USA
    Tel: (847)510-5633
    Tel: (800)955-2445
    Email: friends@pathwaysawareness.org
    Internet: http://www.pathwaysawareness.org

    Christopher & Dana Reeve Foundation
    636 Morris Turnpike, Suite 3A
    Short Hills, NJ 07078
    USA
    Tel: (973)379-2690
    Fax: (973)912-9433
    Tel: (800)225-0292
    Email: prc@ChristopherReeve.org
    Internet: http://www.christopherreeve.org

    New Horizons Un-Limited, Inc.
    811 East Wisconsin Ave
    P.O. Box 510034
    Milwaukee, WI 53203
    USA
    Tel: (414)299-0124
    Fax: (414)347-1977
    Email: horizons@new-horizons.org
    Internet: http://www.new-horizons.org

    Genetic and Rare Diseases (GARD) Information Center
    PO Box 8126
    Gaithersburg, MD 20898-8126
    Tel: (301)251-4925
    Fax: (301)251-4911
    Tel: (888)205-2311
    TDD: (888)205-3223
    Internet: http://rarediseases.info.nih.gov/GARD/

    Spina Bifida & Hydrocephalus Association of Ontario
    555 Richmond St W
    PO Box 103
    Ste 1006
    Toronto, Ontario, M5V 3B1
    Canada
    Tel: 4162141056
    Fax: 4162141446
    Tel: 8003871575
    Email: provinivial@sbhao.on.ca
    Internet: http://www.sbhao.on.ca

    Madisons Foundation
    PO Box 241956
    Los Angeles, CA 90024
    Tel: (310)264-0826
    Fax: (310)264-4766
    Email: getinfo@madisonsfoundation.org
    Internet: http://www.madisonsfoundation.org

    Spina Bifida Hydrocephalus Queensland
    PO Box 8022
    Woolloongabba
    Queensland, 4102
    Australia
    Tel: (07) 3844 4600
    Fax: (07) 3844 4601
    Email: info@sbhqueensland.org.au
    Internet: http://www.spinabifida.org

    Chiari & Syringomyelia Foundation
    29 Crest Loop
    Melville, NY 11747
    Tel: (718)966-2593
    Internet: http://www.CSFinfo.org

    Fetal Hope Foundation
    9786 South Holland Street
    Littleton, CO 80127
    USA
    Tel: (303)932-0553
    Tel: (877)789-4673
    Email: info@fetalhope.org
    Internet: http://www.fetalhope.org

    Medical Home Portal
    Dept. of Pediatrics
    University of Utah
    P.O. Box 581289
    Salt Lake City, UT 84158
    Tel: (801)587-9978
    Fax: (801)581-3899
    Email: mindy.tueller@utah.edu
    Internet: http://www.medicalhomeportal.org

    For a Complete Report:

    This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

    The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

    It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

    This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

    For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

    Last Updated: 9/23/2007
    Copyright 1984, 1985, 1986, 1987, 1988, 1989, 1990, 1991, 1992, 1993, 1999, 2006, 2007 National Organization for Rare Disorders, Inc.

    WebMD Medical Reference from the National Organization for Rare Disorders

    Last Updated: May 28, 2015
    This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

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