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Cancer Genetics Overview (PDQ®): Genetics - Health Professional Information [NCI] - Genetic Resources

Table 4. Ethical, Legal, and Social Implications; Policy; and Legislation Information

ResourceDescription
bioethics.netLinks to articles on genetics and bioethics.
Bioethics Resources on the WebLinks to bioethics resources.
DNA Patent DatabaseSearchable database of U.S. DNA-based patents and patent applications issued by the U.S. Patent and Patent Applications Trademark Office.
Ethical, Legal, and Social Issues (U.S. Department of Energy) Information, articles, and links on a wide range of genetics issues.
Genethics.caInformation on the social, ethical, and policy issues associated with genetic and genomic knowledge and technology.
Genetic Information Nondiscrimination Act (GINA) of 2008 (National Human Genome Research Institute [NHGRI])Fact sheet that describes genetic discrimination and GINA for the public.
GINA: An Overview (Coalition for Genetic Fairness)Describes GINA's protections, including a history of the legislation, key examples, and definitions.
GINA of 2008 Information for Researchers and Health Care Professionals (NHGRI)Fact sheet that describes GINA for researchers and health professionals.
Genetics and Public Policy CenterInformation on public policy related to human genetic technologies for the public, media, and policy makers.
Genome Technology and Reproduction: Values and Public Policy and Communities of Color and Genetics Policy ProjectTwo subprojects combined to form a 5-year project designed to provide policy recommendations based on public perceptions and responses to the explosion of genetic information and technology.
HumGen InternationalComprehensive international database on the legal, social, and ethical aspects of human genetics.
National Conference of State Legislatures Genetic Technologies ProjectResources on a variety of genetics public policy and related issues for state legislators, legislative staff, and other policy makers.
National Information Resource on Ethics and Human Genetics (Georgetown University)Links to resources and databases on ethics and human genetics. Also includesannotated bibliographieson various genetics and ethics issues.
National Society of Genetic Counselors Code of EthicsA statement to clarify and guide the ethical conduct of genetic counselors.
Policy and Legislation Database (NHGRI)Searchable database of federal and state laws/statutes, federal legislative materials, and federal administrative and executive materials about privacy of genetic information/confidentiality; informed consent; insurance and employment discrimination; genetic testing and counseling; and commercialization and patenting.
THOMAS Legislative Information (The Library of Congress)Searchable database of U.S. legislation (current and previous Congresses).
Your Genes, Your Choices: Exploring the Issues Raised by Genetic ResearchDescription of the Human Genome Project, the science behind it, and the ethical, legal, and social issues raised by the project.
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