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Congenital Hydrocephalus - Other Places To Get Help


National Institute of Neurological Disorders and Stroke
NIH Neurological Institute
P.O. Box 5801
Bethesda, MD  20824
Phone: 1-800-352-9424
Phone: (301) 496-5751
TDD: (301) 468-5981
Web Address:

The National Institute of Neurological Disorders and Stroke (NINDS), a part of the National Institutes of Health, is the leading U.S. federal government agency supporting research on brain and nervous system disorders. It provides the public with educational materials and information about these disorders.

American Association of Neurological Surgeons:
5550 Meadowbrook Drive
Rolling Meadows, IL 60008
Phone: 1-888-566-AANS (1-888-566-2267)
(847) 378-0500
Web Address: is the public Web site of the American Association of Neurological Surgeons. You'll find information about the prevention, diagnosis, treatment, and rehabilitation of conditions that affect the entire nervous system including the spinal column, spinal cord, brain, and peripheral nerves.

Hydrocephalus Association
870 Market Street
Suite 705
San Francisco, CA  94102
Phone: 1-888-598-3789
(415) 732-7040
Fax: (415) 732-7044
Web Address:

The goal of the Hydrocephalus Association is to ensure that families and individuals dealing with the complex issues of hydrocephalus receive personal support, comprehensive educational materials, and ongoing quality health care. This nonprofit group promotes the importance of medical research. And it has many services and resources for both members and nonmembers.

National Hydrocephalus Foundation (NHF)
12413 Centralia Road
Lakewood, CA  90715-1653
Phone: 1-888-857-3434
(562) 924-6666
Web Address:

The National Hydrocephalus Foundation (NHF) is a not-for-profit public service organization that aims to increase public awareness and knowledge of hydrocephalus. The organization also promotes and supports research on the cause, treatment, and prevention of hydrocephalus. In addition to providing the public with informational pamphlets, the NHF maintains a reference library and videos on hydrocephalus, offers support groups, and publishes the quarterly newsletter LIFE LINE.

WebMD Medical Reference from Healthwise

Last Updated: January 24, 2012
This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.
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