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Down Syndrome - Other Places To Get Help


Centers for Disease Control and Prevention (CDC): National Center on Birth Defects and Developmental Disabilities (NCBDDD)
1600 Clifton Road, MS E-87
Atlanta, GA  30333
Phone: 1-800-CDC-INFO (1-800-232-4636)
TDD: 1-888-232-6348
Web Address:

NCBDDD aims to find the cause of and prevent birth defects and developmental disabilities. This agency works to help people of all ages with disabilities live to the fullest. The website has information on many topics, including genetics, autism, ADHD, fetal alcohol spectrum disorders, diabetes and pregnancy, blood disorders, and hearing loss.

March of Dimes
1275 Mamaroneck Avenue
White Plains, NY  10605
Phone: (914) 997-4488
Web Address:

The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's website has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care.

National Dissemination Center for Children with Disabilities
1825 Connecticut Avenue NW
Suite 700
Washington, DC  20009
Phone: 1-800-695-0285 (voice/TTY)
(202) 884-8200 (voice/TTY)
Fax: (202) 884-8441
Web Address:

The National Dissemination Center for Children with Disabilities (NICHCY) is the national information and referral center that provides information on disabilities and disability-related issues for families and professionals. The focus is on children and youth, birth to age 22.

National Down Syndrome Congress (NDSC)
1370 Center Drive
Suite 102
Atlanta, GA  30338
Phone: 1-800-232-NDSC (1-800-232-6372)
(770) 604-9500
Web Address:

The National Down Syndrome Congress (NDSC) is a national advocacy organization and a major source of information, support, and empowerment for people with Down syndrome and their families. NDSC's goal is to create a climate in which all people will recognize and embrace the value and dignity of those with Down syndrome. NDSC can provide information on the nearest Down syndrome clinic in your area.

National Down Syndrome Society
666 Broadway, 8th floor
New York, NY  10012
Phone: 1-800-221-4602
Web Address:

The National Down Syndrome Society (NDSS) wants to help people with Down syndrome enhance their quality of life, realize their life aspirations, and become valued members of the community. NDSS advocates for research, policies, and education to help people with Down Syndrome. The Web site has information about health care, school and community life, the transition to adulthood, behavior management, family issues, friendships, and more.


WebMD Medical Reference from Healthwise

Last Updated: August 07, 2012
This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.
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