I am a patient w/Hereditary Angioedema & have self-infused Cinryze every 3 days since September. I haven't had any side-effects from this medication and it has controlled my swelling episodes (unless I tried to infuse every 4 days upon which time I would swell). This medication is, in my humble opinion, is absolutely wonderful & the best treatment currently available for persons w/HAE! The only dr...
divine | 7-12 | Female | On medication for 1 to 6 months | Caregiver
10/21/2016
Condition: Prevention of Angioedema Attacks in Patient with Hereditary Angioedema
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction
Painful sticks for a 12 yrs old every 3 days. Depression and anger set in so we opt out of this medication and trusting God like we always did!!
1
Report this post
Pam_HAE_II | 35-44 | Female | On medication for 1 to 6 months | Patient
2/13/2010
Condition: Prevention of Angioedema Attacks in Patient with Hereditary Angioedema
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
I am a patient w/Hereditary Angioedema & have self-infused Cinryze every 3 days since September. I haven't had any side-effects from this medication and it has controlled my swelling episodes (unless I tried to infuse every 4 days upon which time I would swell). This medication is, in my humble opinion, is absolutely wonderful & the best treatment currently available for persons w/HAE! The only drawback is the expense (my Cinryze & supplies cost approximately $40,000 per month...thank goodness for insurance!). Read More Read Less
3
Report this post
Anonymous | 35-44 | Female | On medication for 1 to 6 months | Patient
2/27/2009
Condition: Prevention of Angioedema Attacks in Patient with Hereditary Angioedema
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction
i have hereditary angioedema and this is the best drug ever. it gives me headaches but compared to the edema it's worth it.
2
Report this post
Anonymous | 19-24 | Female | On medication for 1 to 6 months | Patient
2/16/2009
Condition: Prevention of Angioedema Attacks in Patient with Hereditary Angioedema
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
I have hereditary angiodema and I infuse with this medication. It is very effective. The best product on the market. A must have for all HAE patients.
IMPORTANT INFORMATION ABOUT USER-GENERATED CONTENT ON WEBMD
The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions.