This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
National. Provides support via their online Parents Forum, also has annual conferences, links to resources and information.
ICAN, Albert Einstein Medical Ctr.
c/o Tanya Bardakjian, Genetics, Levy 2W, 5501 OldYorkRd.
Philadelphia, PA 19141
Online. 633 members. Founded 2000. Support, education and understanding for those with microphthalmia (abnormally small eyes) and their families.