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Pain Management: Chronic Pain Resources

There are a wide variety of resources available to help you and your family meet the challenges of chronic pain. This list is by no means a complete one; it is designed as a starting point to help you identify sources of help.

American Chronic Pain Association (ACPA)
P.O. Box 850
Rocklin, CA 95677-0850
ACPA@pacbell.net
http://www.theacpa.org/
Tel: 916-632-0922; 800-533-3231
Fax: 916-632-3208

American Pain Society (APS)
4700 W. Lake Ave.
Glenview, IL 60026
Tel: 847-375-4715
Fax: 877-734-8758
http://www.ampainsoc.org/

Arthritis Foundation
1330 West Peachtree Street
Atlanta, GA 30309
Tel: 404-872-7100; 800-283-7800
http://www.arthritis.org/

Fibromyalgia Network
P.O. Box 31750
Tucson, AZ 85751-1750
Tel: 800-853-2929

The Mayday Fund
c/o SPG
136 West 21st Street, 6th Floor
New York, NY 10011
Tel: 212-366-6970
Fax: 212-366-6979
mayday@maydayfund.org
http://www.painandhealth.org

National Cancer Institute (NCI)
National Institutes of Health, DHHS
6116 Executive Boulevard, Ste. 3036A, MSC 8322
Bethesda, MD 20892-8322
Tel: 800-4-CANCER (422-6237) 800-332-8615 (TTY)
cancer.gov_staff@mail.nih.gov
http://cancer.gov

National Chronic Pain Outreach Association (NCPOA)
P.O. Box 274
Millboro, VA 24460
Tel: 540-862-9437
Fax: 540-862-9485
ncpoa@cfw.com
http://www.chronicpain.org

National Fibromyalgia Association
2200 N. Glassell Street, Suite A
Orange, CA 92865
Tel: 714-921-0150

National Foundation for the Treatment of Pain
P.O. Box 70045
Houston, TX 77270
Tel: 713-862-9332
Fax: 713-862-9346
markgordon@paincare.org
http://www.paincare.org

National Headache Foundation
820 N. Orleans; Suite 217
Chicago, IL 60610-3132
Tel: 773-388-6399; 888-NHF-5552 (643-5552)
Fax: 773-525-7357
info@headaches.org
http://www.headaches.org

Neurofibromatosis, Inc. (NF Inc.)
9320 Annapolis Road
Suite 300
Lanham, MD 20706-3124
Tel: 301-918-4600; 800-942-6825
Fax: 301-918-0009
info@nfinc.org
http://www.nfinc.org

National Multiple Sclerosis Society
733 Third Avenue
6th Floor
New York, NY 10017-3288
Tel: 212-986-3240; 800-344-4867 (FIGHTMS)
Fax: 212-986-7981
nat@nmss.org
http://www.nationalmssociety.org

National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
Tel: 203-744-0100; 800-999-NORD (6673)
Fax: 203-798-2291
orphan@rarediseases.org
http://www.rarediseases.org

Trigeminal Neuralgia Association
2801 SW Archer Road
Suite C
Gainesville, FL 32608
Tel: 352-376-9955
Fax: 352-376-8688
tnanational@tna-support.org
http://www.tna-support.org

United Cerebral Palsy (UCP)
1600 L Street, NW; Suite 700
Washington, DC 20036
Tel: 202-776-0406; 800-USA-5UCP (872-5827)
Fax: 202-776-0414
national@ucp.org
http://www.ucp.org

Worldwide Education & Awareness for Movement Disorders (WE MOVE)
204 West 84th Street
New York, NY 10024
Tel: 800-437-MOV2 (6682); 212-875-8312
Fax: 212-875-8389
wemove@wemove.org
http://www.wemove.org

Reviewed by the doctors at The Cleveland Clinic.

WebMD Medical Reference provided in collaboration with the Cleveland Clinic

Edited by Tracy C. Shuman, MD on November 01, 2004
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TOPAMAX is approved for migraine prevention in adults only.
TOPAMAX is not used to stop a migraine after it starts.

IMPORTANT SAFETY INFORMATION

Serious risks associated with TOPAMAX include lowered bicarbonate levels in the blood resulting in an increase in the acidity of the blood (metabolic acidosis). Symptoms could include hyperventilation (rapid, deep breathing), tiredness, loss of appetite, irregular heartbeat or changes in the level of alertness. Call your doctor immediately if you get these symptoms. Your doctor may want to do simple blood tests. Chronic, untreated metabolic acidosis may increase the risk for kidney stones or bone disease.

Other serious risks include decreased sweating, increased body temperature, kidney stones, sleepiness, dizziness, confusion, difficulty concentrating, and increased eye pressure (glaucoma). Call your doctor immediately if you have any decrease in vision or eye pain. These problems can lead to blindness if not treated right away.

More common side effects are tingling in arms and legs, loss of appetite, tiredness, nausea, diarrhea, taste change and weight loss.

Tell your doctor about other medications you take. Please see full U.S. Prescribing Information.

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WebMD does not endorse any specific product, service, or treatment.

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