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    Dystonia

    Important
    It is possible that the main title of the report Dystonia is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

    Synonyms

    • Torsion Dystonia

    Disorder Subdivisions

    • Generalized Dystonia
    • Primary Dystonia
    • Early-onset Dystonia
    • Childhood-onset Dystonia
    • Dopa-responsive Dystonia (DRD)
    • Focal Dystonia
    • Blepharospasm (Benign Essential Blepharospasm[BEB])
    • Cervical Dystonia (Spasmodic Torticollis[ST])
    • Oromandibular Dystonia
    • Writer's Cramp
    • Paroxysmal Dystonia
    • Paroxysmal Kinesigenic Dystonia (PKD)
    • Paroxysmal Dystonia Choreathetosis
    • Spasmodic Torticollis (Cervical Dystonia)
    • Spasmodic Dysphonia (SD)
    • X-Linked Dystonia-parkinsonism
    • Late-onset Dystonia
    • Secondary Dystonia
    • Tardive Dyskinesia
    • Tardive Dystonia
    • Myoclonic Dystonia
    • Rapid-onset Dystonia-parkinsonism (RDP)
    • Segmental Dystonia

    General Discussion

    Dystonia is a group of movement disorders that vary in their symptoms, causes, progression, and treatments. This group of neurological conditions is generally characterized by involuntary muscle contractions that force the body into abnormal, sometimes painful, movements and positions (postures).

    Dystonia may be focal (affecting an isolated body part), segmental (affecting adjacent body areas, or generalized (affecting many major muscle groups simultaneously). There are many different causes for dystonia. Genetic as well as non-genetic factors contribute to all forms of dystonia. The most characteristic finding associated with dystonia is twisting, repetitive movements that affect the neck, torso, limbs, eyes, face, vocal chords, and/or a combination of these muscle groups.

    Resources

    WE MOVE (Worldwide Education and Awareness for Movement Disorders)
    5731 Mosholu Avenue
    Bronx, NY 10471
    USA
    Tel: (347)843-6132
    Fax: (718)601-5112
    Email: wemove@wemove.org
    Internet: http://www.wemove.org

    National Spasmodic Dysphonia Association
    300 Park Boulevard
    Suite 415
    Itasca, IL 60143
    Fax: (630)250-4505
    Tel: (800)795-6732
    Email: nsda@dysphonia.org
    Internet: http://www.dysphonia.org

    Dystonia Medical Research Foundation
    1 East Wacker Drive, Suite 2810 East Wacker Drive
    Suite 2810
    Chicago, IL 60601-1905
    United States
    Tel: (312)755-0198
    Fax: (312)803-0138
    Tel: (800)377-3978
    Email: dystonia@dystonia-foundation.org
    Internet: http://www.dystonia-foundation.org

    NIH/National Institute of Neurological Disorders and Stroke
    P.O. Box 5801
    Bethesda, MD 20824
    Tel: (301)496-5751
    Fax: (301)402-2186
    Tel: (800)352-9424
    TDD: (301)468-5981
    Internet: http://www.ninds.nih.gov/

    Dystonia Society
    89 Albert Embankment, 2nd Floor
    Vauxhall
    London, SE1 7TP
    United Kingdom
    Tel: 08454586211
    Fax: 08454586311
    Tel: 08454586322
    Email: angie@dystonia.org.uk
    Internet: http://www.dystonia.org.uk

    Genetic and Rare Diseases (GARD) Information Center
    PO Box 8126
    Gaithersburg, MD 20898-8126
    Tel: (301)251-4925
    Fax: (301)251-4911
    Tel: (888)205-2311
    TDD: (888)205-3223
    Internet: http://rarediseases.info.nih.gov/GARD/

    Spasmodic Torticollis ST/Dystonia, Inc.
    PO Box 28
    Mukwonago, WI 53149
    Tel: (262)560-9534
    Fax: (262)560-9535
    Tel: (888)445-4588
    Email: info@spasmodictorticollis.org
    Internet: http://www.spasmodictorticollis.org

    Child Neurology Foundation
    201 Chicago Ave, #200
    Minneapolis, MN 55415
    USA
    Tel: (952)641-6100
    Fax: (952)881-6276
    Tel: (877)263-5430
    Email: jstone@childneurologyfoundation.org
    Internet: http://www.childneurologyfoundation.org

    Bachmann-Strauss Dystonia & Parkinson Foundation
    551 Fifth Avenue
    Suite 520
    New York, NY 10176
    Tel: (212)682-9900
    Fax: (212)682-6156
    Internet: http://www.dystonia-parkinson.org

    Movement Disorder Society
    555 E. Wells Street
    Suite 1100
    Milwaukee, WI 53202-3823
    Tel: (414)276-2145
    Fax: (414)276-3349
    Email: info@movementdisorders.org
    Internet: http://www.movementdisorders.org

    American Dystonia Society
    17 Suffolk Lane
    Suite 1
    Princeton Junction, NJ 08550
    Tel: (310)237-5478
    Fax: (609)275-5663
    Email: info@dystonia.us
    Internet: http://www.dystonia.us

    For a Complete Report:

    This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

    The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

    It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

    This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

    For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

    Last Updated: 2/4/2008
    Copyright 1984, 1985, 1986, 1987, 1988, 1989, 1990, 1991, 1992, 1998, 1999, 2000, 2001, 2002, 2003, 2008 National Organization for Rare Disorders, Inc.

    WebMD Medical Reference from the National Organization for Rare Disorders

    Last Updated: May 28, 2015
    This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

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