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Dystonia
Important
It is possible that the main title of the report Dystoniais not the name you expected.
Synonyms
- Torsion Dystonia
Disorder Subdivisions
- Generalized Dystonia
- Primary Dystonia
- Early-onset Dystonia
- Childhood-onset Dystonia
- Dopa-responsive Dystonia (DRD)
- Focal Dystonia
- Blepharospasm (Benign Essential Blepharospasm[BEB])
- Cervical Dystonia (Spasmodic Torticollis[ST])
- Oromandibular Dystonia
- Writer’s Cramp
- Paroxysmal Dystonia
- Paroxysmal Kinesigenic Dystonia (PKD)
- Paroxysmal Dystonia Choreathetosis
- Spasmodic Torticollis (Cervical Dystonia)
- Spasmodic Dysphonia (SD)
- X-Linked Dystonia-parkinsonism
- Late-onset Dystonia
- Secondary Dystonia
- Tardive Dyskinesia
- Tardive Dystonia
- Myoclonic Dystonia
- Rapid-onset Dystonia-parkinsonism (RDP)
- Segmental Dystonia
General Discussion
Dystonia is a group of movement disorders that vary in their symptoms, causes, progression, and treatments. This group of neurological conditions is generally characterized by involuntary muscle contractions that force the body into abnormal, sometimes painful, movements and positions (postures).
Dystonia may be focal (affecting an isolated body part), segmental (affecting adjacent body areas, or generalized (affecting many major muscle groups simultaneously). There are many different causes for dystonia. Genetic as well as non-genetic factors contribute to all forms of dystonia. The most characteristic finding associated with dystonia is twisting, repetitive movements that affect the neck, torso, limbs, eyes, face, vocal chords, and/or a combination of these muscle groups.
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Resources
WE MOVE (Worldwide Education and Awareness for Movement Disorders)
204 West 84th Street
New York
NY
10024
USA
Tel: (212)875-8312
Fax: (212)875-8389
wemove@wemove.org
http://www.wemove.org
National Spasmodic Dysphonia Association
300 Park Boulevard
Suite 301
Itasca
IL
60143
Fax: (630)250-4505
800: (800)795-6732
nsda@dysphonia.org
http://www.dysphonia.org
Dystonia Medical Research Foundation
1 East Wacker Drive
Suite 2810
Chicago
IL
60601-1905
United States
Tel: (312)755-0198
Fax: (312)803-0138
800: (800)377-3978
dystonia@dystonia-foundation.org
http://www.dystonia-foundation.org
National Institute of Neurological Disorders and Stroke (NINDS)
31 Center Drive
8A07
Bethesda
MD
20892-2540
Tel: (301)496-5751
Fax: (301)402-2186
800: (800)352-9424
braininfo@ninds.nih.gov
http://www.ninds.nih.gov/
Dystonia Society
89 Albert Embankment
London
Intl
SE1 7TP
United Kingdom
Tel: 0845 458 6211
Fax: 0845 458 6311
800: 0845 458 6322
info@dystonia.org.uk
http://www.dystonia.org.uk
Organization For Anti-Convulsant Syndrome
PO Box 772
Pilling
Preston
Intl
PR3 6WW
UK
Tel: 01253 790000
Fax: 01253 790000
Janet.oacs@btinternet.com
http://www.oacs-uk.co.uk/
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay
WI
54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
800: (877)336-5333
mums@netnet.net
http://www.netnet.net/mums/
Spasmodic Torticollis Dystonia, Inc
PO Box 28
Mukwonago
WI
53149
Tel: (262)560-9534
Fax: (262)560-9535
800: (888)445-4588
info@spasmodictorticollis.org
http://www.spasmodictorticollis.org
American Association of Neurological Surgeons
5550 Meadowbrook Drive
Rolling Meadows
IL
60008-3852
Tel: (847)378-0500
Fax: (847)378-0600
800: (888)566-2267
info@aans.org
http://www.NeurosurgeryToday.org and http://www.AANS.org
For a Complete Report:
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org
Last Updated: 2/4/2008
Copyright 1984, 1985, 1986, 1987, 1988, 1989, 1990, 1991, 1992, 1998, 1999, 2000, 2001, 2002, 2003, 2008 National Organization for Rare Disorders, Inc.
WebMD Medical Reference from the National Organization of Rare Disorders
