Aerialist Shadow Duffy just knew it was weak muscles, but doctors blamed her MG on everything from strokes to a tumor. “My face stopped working,” she says.
Shadow Duffy outfitted an old bus into her home on wheels. With a disability like MG, she wanted to be less stressed about bills and more self-sufficient.
Most doctors don't encounter myasthenia gravis patients, Alexis Rodriguez says. So he started a support group with education in mind.
For Shawna Barnes, MG affects her daily life, but her husband says she’s an example “of what’s possible if you have the right attitude and support.”
It felt like somebody had a voodoo doll of me and they kept manipulating different parts of the voodoo doll or sticking pins in it.
– Shadow Duffy
We want [people] to have a better understanding that this is an autoimmune neuromuscular disease. It has nothing to do with being lazy or that you're crazy.
– Alexis Rodriguez, MG Georgia
There's a grief component because you grieve the person that you were, and then just feeling like a burden, honestly, because I do require so much help.
– Shawna Barnes
After living with myasthenia gravis for over 20 years, SeAndrea Collins has learned how to manage her condition and still do the things she loves.
Myasthenia gravis didn’t stop Charlotte Laycock from summiting one of the world’s tallest mountains. Read her story here.
An expert shares his perspective on how to get to remission with myasthenia gravis.
Life with a chronic illness can take a toll on your work, social life, and family. Read one woman’s story about how to manage well-being with myasthenia gravis.