User Reviews for CellCept oral

I am taking this for Lupus Nephritis. I am taking 1500mg twice daily. The first couple days of taking this drug was horrible. I was getting body aches, frequent urination, chills, insomnia, negative mood changes, chest pain, and indigestion. Now, with the same dosage, I feel like my body has adjust to it. However, I still get indigestion, body aches, and insomnia. I am hoping to decrease the amount I am taking.

Just started on Cell Cept for MS, so I can't review it yet. I read the reviews and there is only one for MS. Just wondering if anyone on this drug for MS has the same side effects. I'm a little nervous about taking this.

I use 1000 mg twice daily along with an IVIG every 2 weeks for MG. I have been on it for about 7 years. I tried to get off it and after a couple of months I hit bottom again and it took 6 months to stabilize me. I tried mestinon when I was first diagnosed and it was horrible, I spent most of my time in the bathroom and I had to becareful not to miss a dose. I have missed a dose of the cell cept and I am okay.

I have had MG for 40yrs. Started cellcept 500mg 1xday to try and get off prednisone. Side affects horrible. 1Xday fatigue, frequent urination, loss bladder control at night. 2x loss of balance, increase libido, dizziness. 3x nightmares, depression, sleep insomnia,constipation, brain foggy and can't see for fixed focus such as reading. 4x day suicide thoughts, bad taste, sore gums, hair loss. Dr. brought me down to 2x a day, some side affects left and some stayed. After 6 months of trying Cellcept I am off now, Thank God! Off 2 weeks now and side affect symptoms are almost all gone. I have spoken to someone else on Cellcept for MG and she hasn't had hardly any side effects. Talk too your Dr. frequently when starting this med. and make sure you get regular blood testing and be honest with your Dr. I have a wonderful neurologist, who worked with me and we both said this is not for me.Read More Read Less

Have taken this med for 7 years as a result of my kidney transplant - it has worked very well

I haven't really had any problems with the medication except extreme loss of appetite but I don't really mind that. I take 1500 mg daily.

Have MG and are using 2000mg daily. Also will start plasma exchange this week. So far not much improvment. I am told not to expect much help for a year.

None First time user.

caused stomache pain and bone pain .stopped about 6 months into treatment. from time to time this situation re-appears. could be just the flare ups from my immune system working in over-drive.

just have to take to many pills i take 10 a day i use this medication for a skin diease

Taking for Inclusive Body Myositis. Have some side effects that are tolerable. Taking along with Prednisone.Now used for seven months. So far, so good.

I have terrible not flashes and at times develop sub sternal chest pain non radiating. When I stop the drug, the discomfort goes away. I'm a very healthy 54y/o nurse.

Myasthenia Gravis..i have been on cellcept for 7 weeks and am experiencing nausea vomiting and dry heaves. my neuro says it too late to blame it on the cellcept. i have had 6 mo of igiv with no help. imuran which almost killed me. prednisone that made me fat. my bad days outnumber the good ones. how long to i have to take this med to see results?? any info would be welcome.thanks

I have only been on the generic version of this med for 3 weeks. I have a diagnosis of SLE with Kidney involvement. I have only one kidney at this point and my Dr is trying to save it. I have been falling asleep randomly (which makes driving scary), fatigue, shakes, and constipation. I am hoping the symptoms go away soon and are only temporary. My skin rashes have not improve nor have my other Lupus symptoms. Not sure how long this should take, Dr. says everyone is different.

I commenced on 2 capsules a day, then after 3 months increased to 3 capsules per day. The next day I developed a blisterly rash on both arms and backs of both legs and bottom. After stopping the medication the rash finally went away. I am now on1 capsule a day only with no problems.

Cellcept has cleared up 30 years of Lichen planus in my mouth. The only side effect is being a bit more tired.

nuephrotic syndrome not transplant

i take 2000 mg per day for autoimmune disease (sjorgens and/or VKH syndrome) It has been a fairly effective immunosuppressive with much less side effects than prednisone. without it i'd now be in bed or using massive doses of prednisone which is a bad drug in the long run. just started on medicare....my part d provider doenot want to cover it-say it is not approved by FDA for my illness. i will fight them best i can!!!