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38 People found this comment helpful

I have had lupus for over 25 yrs . Have dealt with Chronic kidney failure for 15. Tried lg. dosages of prednisone and IV cytoxin for over 2 yrs. Many anti-inflammatory drugs. Then Cell-Cept. I would be on dialysis & transplant list had this drug not been used. It has stabilized my creatinine level at around 2. I take 2000 mg. daily. I have less joint pain now and function better than 2...

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Anonymous | 55-64 | Female | On medication for 10 years or more | Patient
4/19/2008
Condition: Prevent of Transplant Rejection
Overall rating 5.0
Effectiveness
Ease of Use
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Anonymous | 45-54 | Female | On medication for 6 months to less than 1 year | Patient
4/18/2008
Condition: Diffuse Proliferative Lupus Nephritis-A Kidney Disease
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

Don't underestimate how immunocompromised this medication leaves you. Although the Cellcept was by far more effective than any other medication we tried I'm not sure it was worth it. I took 1500 mg/day and after about six months I came down with a very severe case of shingles on my head, face and eye that landed me in the hospital and affected my vision. We discontinued the Cellcept when that happened. The positives I can say for the medication are that it di help the lupus symptoms and after about a two week adjustment period of stomach pain and intermittant nausea I adjusted to it well and wasn't bothered by any more side effects. Read More Read Less

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me | 25-34 | Female | On medication for 2 to less than 5 years | Patient
3/27/2008
Condition: Prevent Kidney Transplant Rejection
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

since my trnansplant, i've been on cellcept and prograf. i've had random, sometimes frequent diarrhea and cramping, usually in the morning. my dr said it was the cellcept and suggested immodium as needed and that eliminates the symptoms in minutes when i'm having a bad day. i have also realized on cellcept, it's best for me to avoid certain foods and my symptoms occur less frequently.

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Anonymous |
3/7/2008
Condition: Other
Overall rating 5.0
Effectiveness
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I have been taking CellCept for minimal change disease/nephrotic syndrome. I have experienced minimal side effects and have seen great improvement over the last year.

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magmcd | 35-44 | Female | On medication for 2 to less than 5 years | Patient
2/2/2008
Condition: Other
Overall rating 4.3
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kevin | 45-54 | Male | On medication for 1 to 6 months | Patient
1/16/2008
Condition: Prevention of Liver Transplant Rejection
Overall rating 3.7
Effectiveness
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after transplant was put on prograf and cellcept. I contracted cmv, was taken off cellcept. I was put back on cellcept because liver enzymes were up. I cant tell any difference.

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survivorj106 | 45-54 | Female | On medication for 2 to less than 5 years | Patient
1/11/2008
Condition: Prevent Kidney Transplant Rejection
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

The only thing that I notice with taking cellcept is that it make me sleepy,and some change in my eyesight my doctor does want me to drive at night. It will be 2 years at the end this month. My hair has grown back, but when I was on dialysis my hair was horrible I wore an wig. After the tranplant I pulled the wig off and just cut the rest of that dry brittle hair off, like I said above it grown back. I been an hairstylist for 20 years.

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Dr. CMS | 45-54 | Female | On medication for 1 to 6 months | Patient
12/28/2007
Condition: Other
Overall rating 1.7
Effectiveness
Ease of Use
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I was prescribed CellCept for severe, progressive, ocular MG in early Oct. I have been on the drug 3 months but have developed severe taste perversion, ageusia, a horrible sick, mold/dead salmon taste in my mouth, nausea, abdominal pain, and diarrhea. If I eat a banana it tastes like I am eating the skin/peel of a bananna. The GI intolerance is going to make me stop taking the drug. I have no appetite and have lost weight. My ocular MG is better, but I am also taking high dose steroids. Rest is my best medicine. Read More Read Less

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Anonymous |
12/3/2007
Condition: Diffuse Proliferative Lupus Nephritis-A Kidney Disease
Overall rating 4.0
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Anonymous | 25-34 | Male | On medication for 1 to less than 2 years | Patient
11/11/2007
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I developed a very rare problem with swelling in the optic nerve in my eye. Tests showed it was an autoimmune problem. I was put on a steroid to reduce the swelling in the optic nerve. Imuran made me very very sick so I was put on Cellcept knowing it had never been used in any case similar to mine, but it seems to have worked very well up to this point and has gotten me off the steroid I have been on.

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Anonymous | 55-64 | Female | On medication for 1 to 6 months | Patient
10/31/2007
Condition: Prevention of Cardiac Transplant Rejection
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

After being on imuran for 11 years post heart transplant, my Dr. switched me to cellcept. I had a bad time on it. I felt nauseus most of the time, lost 20 pounds & felt light headed most of the time. I went back on the imuran.

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Anonymous | 55-64 | Female | On medication for 2 to less than 5 years | Patient
10/31/2007
Condition: Other
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

CellCept replaced prednisone as treatment for autoimmune hepatitus after finding I was allergic to all normal treatments for this disease. I have had no adverse effects.

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Vic F | 65-74 | Male | On medication for 1 to less than 2 years | Patient
10/27/2007
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

My Doctor is using CellCept to treat my MG. Other Meds did not work. This works very well.

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balletmom | 55-64 | Female | On medication for 1 to less than 2 years | Patient
10/22/2007
Condition: Other
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

I have Chronic Hep C and rheumatoid arthritis. Cellcept is the one drug both my doctors agree on. It seems to help the rheumatoid.

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[email protected] | 55-64 | Female | On medication for 1 to 6 months | Patient
10/3/2007
Condition: Other
Overall rating 3.7
Effectiveness
Ease of Use
Satisfaction

I have tempral arteritis, been on prednisone for 18 months. Dr trying to get me off it with using cellcept.

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Anonymous |
9/21/2007
Condition: Other
Overall rating 3.7
Effectiveness
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I'm losing my hair. Wanted some info on this.

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