User Reviews for CellCept oral

The only side effect i had using this drug is swelling of my ankles and feet.

i have lupus for 21 years. attacks my lungs. on predisone too. started this 4 weeks ago. i feel better mentally and physically too though i now have nodules all over my stomach. going to have blood work tommorrow and dr on monday. hope it is not the tumors that are a side effect. but if anyone can get them it will be me. feldene worked for me about 15 years ago but nothing since. i do go in to remission on my own. this flare is going on 2 years though. tired..joints aching and fat..round face..better fat and alive than skinny and dead. just worried tonight. Read More Read Less

3 yrs. ago, I was diagnosed with Myasthenia Gravis, a rare autoimmune disease. I still take Mestinon but much less (down to only 2 60mg tablets as needed) and I am hoping to be able to get off the Prednisone, of which I'm taking 10MG every other day. So far, I've seen little or no side effects from the Cellcept. COST is huge and next year I will be on Medicare and I cannot qualify for any drug programs; this is going to be a big problem. I fortunately haven't lost my hair, which was one of my worries. I've been encouraged by most of what I've read by others about this drug. I only have my blood tested every 3 mos. and tests have been good. My MG office treats up to 300 patients and I feel confident that I'm getting the best treatment out there. Imuran was tried 1st but I did have a violent reaction to it. Many say they would like to hear back but since we can't give our email addresses, how is that possible?? Read More Read Less

I have vasculitis of the skin and have had tried various medications, such as Dapsone and Methotrexate which did not help. Cellcept has helped immensely. I have been on this drug for about one year and my doctor is already looking to decrease my dosage. I currently am taking 2000mg daily. The only problem with this medication is the cost of it. I have very good insurance, but the cost is still quite high. But its worth it. The only side effects I have been having is the diarrhea and fatigue. Otherwise, feeling great and living a great life! Read More Read Less

Kidney/Pancreas transplant in 2003. On Cellcept from start. Went on generic 1 year ago. Doing OK. Dr has 7 KP transplant patients who got sick on generic. Kidney patients doing OK. Trying to get back on name brand. Will increase cost $500 a month, with insurance. May have to switch to Myfortic.

i have desqumative intisitial penotitis luug diease been on cellcept about 2 mounths hopeful this one will work no cure or treament for what i have.sied effects have been tired,hair loss swelling of feet,hands,and face very bad mood swings, but if it helps me in the long run it will be worth it.

I have had lupus for over 25 yrs . Have dealt with Chronic kidney failure for 15. Tried lg. dosages of prednisone and IV cytoxin for over 2 yrs. Many anti-inflammatory drugs. Then Cell-Cept. I would be on dialysis & transplant list had this drug not been used. It has stabilized my creatinine level at around 2. I take 2000 mg. daily. I have less joint pain now and function better than 20 yrs. ago. For those who are experiencing diarrea - once your system has gotten used to the med and your condition improves - often a lower dosage helps prevent diarrea. I also found that the generic version (possibly something in the coating) caused stomach "rolling" and distress and switched back to original Cell-Cept. This drug is a life saver, but lots of bloodwork will be necessary. Lupus is livable. I am a walking example and so thankful to be alive. Read More Read Less

It all seems to be going well.I'm taking 200 mg daily with 5mg. prograf.No complaints.

I have SLE. Was diagnosed in August 2005. Went to the doctor to get a cream for the skin rash on my face. When they told me that I had SLE, I cried. My daughter had just turned 9 months and the fact of dying soon scared me. My stage of lupus is currently at 2 and have taken CellCept since November 2006. The worst side effect of this medication for me is the hair loss. I wear bandanas and hats to cover this side effect since I am only 33 years old. Wigs do not help me due to the fact that they itch alot. The fatigue wears on me alot too. My doctor is weaning me off of prednisone also. Kind of scared to because the hair I have left is from using the steroids. My doctor has told me that I will probably start to lose my hair again. Another side effect is loss of sexual desire. My husband feels neglected by me due to the fact of not having a sex drive like we used to when we were first married. Just being tired all the time, going to school full time, and taking care of the family adds on to all the fatigue from this medication. And not feeling "sexy" anymore due to the hair loss has really put a damper on my poor husband. He does everything in his power to make me feel wanted and loved . He has been my backbone since going thru this whole ordeal...Read More Read Less

MYASTHIMINA GRAVIS

I had shortness of breath, weakness, month usher or sores, rapid heart beat, skin rash and drowness.

Feet tingling, lips tingling, hands tingling. Discomfort in sensitive areas of body

I'v been taking CellCept for Hypersensitivity pneumonitis, a lung disease. I take 2000mg a day. For me it has been a life saver, I went from hardly being able to breath which made me unable to walk very well to breathing normally and able to lead a much better life. It hasn't cured me but I feel a lot better. I do have side effects mainly feeling sick, stomach cramps, diarrhoea and loss of appetite. I also feel tired but it is worth taking the drug for being able to breath and I feel there is a future now which I didn't before.Read More Read Less

notting bad to say feel fine a little tried sometime.

I have had no side effects at all.. Taken it for 27months

I had some kind of reaction to this medication. By the fifth day I felt like I had a severe case of the flu. I was dizzy, weak, stomach pain, and sore throat.

I have taken cellcept for almost 4 years for Lupus SLE. It has been the best immunosuppressive with the least side effects (has helped me to greatly reduce the prednisone). However, I have that it has caused some stomach problems (stomach upset and diarrhea). I need to be on this drug but wished the stomach issues would go away. Overall this is much better than prednisone. One more thing, the cellcept didn't fully help my Lupus. I found that I need Rituxan as well. That is what saved me, the Rituxan.Read More Read Less

everytime i take this medicine it takes me down alot

I am on 3000mg/day for suffering from a bad SLE flare (Kidneys). Side effects not too bad, manageable. Did come down with painful shingles that put me out of work for almost 2 weeks. Couldn't wear clothes around the area of my hip and lower back. Fortunate it wasn't on my face, regardless, VERY painful. Cried a lot. Leg swelling was pretty bad, had to be put on a dieuretic which didn't do much. Lost a lot of hair and gained tons of weigh, but probably bc of the 60mg of prednisone I was on as well. Doc is considering Cytoxin but I am trying to wait as the progress is better just really slow and I am worried about becoming infertile. Had increased protein and cholesterol. Word of advice too, WATCH your diet! I noticed when I changed my diet, I get better. God bless to all who are going through any type of illness. It's never easy.Read More Read Less