Your friendships enrich your life. They’re good for your health, too. Studies show that people who have good friends and good relationships are healthier, happier and may live longer. That’s why maintaining your social life might be the perfect supplement to your ulcerative colitis care.
“Whether you have IBD or not, social isolation is not healthy for human beings,” says Marci Reiss, a licensed clinical social worker and founder and president of the IBD Support Foundation.
During a flare, you might feel like hiding at home, but ulcerative colitis doesn’t mean your social life and relationships have to end. Managing your friendships while managing your condition is a balancing act that you can learn.
You’re close with your friends, so it might help to tell them about your condition. That doesn’t mean you have to tell everyone, and you don’t have to tell them everything.
“Bathroom talk -- diarrhea, urgency -- is not easy to share, and no one is ever coached in how to explain this to people,” Reiss says. Her advice? Carefully choose whom you tell and exactly what you tell them.
SPEAKER: When you have
your need for a bathroom break
can be urgent and unpredictable,
making it hard to be
out and about.
UC affects the large intestine,
like sudden diarrhea, pain, gas,
and sometimes bleeding.
You may feel like you need to go
There are steps you can take
to manage your symptoms so
that you don't have to give up
on going out.
With some advanced planning
and organizing, you can get on
with your life
and not let UC cramp your style.
Find out ahead of time where
nearby bathrooms are located
in case you need one.
There are even apps for that.
Have a go bag packed
with healthy snacks, water,
If you're eating out,
check the menu before you get
That way you can stay hydrated.
Eat foods that do not cause
And stay on your medication
Bring a change of clothes
wipes so that if you need them,
they're right there with you.
Order a free restroom
request card online.
You can get it from the Crohn's
and Colitis Foundation.
Show the card to shop owners,
It lets them know you need
to use the bathroom
for medical reasons.
Consider telling friends,
family, and colleagues
about your UC.
Check reputable online resources
about tackling the subject
and jot down or think
through how you'd like
to approach it.
It may feel like something
you don't want to get into.
But if you're out with friends
and family, they can help find
a bathroom or get you home
if your UC kicks up.
If you're traveling,
research where you're going
ahead of time.
If you're going abroad,
in the local language
to ask for help
or find a bathroom.
Understand the local customs
so you can anticipate what you
need to do to get help when you
You don't have to tell
your employer or school
about your UC.
But if you do, be aware of where
they must accommodate your needs
according to guidelines
Stress doesn't cause UC,
but it may trigger a flare.
Learn techniques to handle
your stress, whether it's
meditation, yoga, breathing
exercises, or even just
listening to music you love.
UC doesn't always have to mean
your daily activities.
In many people, the symptoms
are mild to moderate.
And there are treatments that
There may be times when you need
to adjust your schedule
or plans, but you can often get
out and about comfortably even
You might feel that telling your friends you have ulcerative colitis is the same as telling them you have chronic diarrhea, but, says Reiss, “people don’t know what you don’t tell them.” You have all the control in how much you choose to share. “You can put on a happy face and say, ‘I’ve got this stomach thing that acts up once in a while, and I’m just not up for going out tonight.’”
With your most trusted friends, you might choose to share more. It could bring just the support you need. When Susie Janowski of Pocatello, ID, told her friends about her ulcerative colitis, she got an outpouring of support. “Anything you could do for a person, they did for me,” she said. “It makes you realize you’re not alone.”
If you’re not ready to talk about your condition with your friends, find someone you can share with. Support groups for ulcerative colitis and IBD are readily available on social media and in real life. “It’s amazingly therapeutic,” says Reiss. Sometimes group members get so comfortable and enjoy sharing so much, she says, “it’s like a comedy show in our support group.”
Janowski, a self-described “social butterfly,” is a co-leader of her online support network. “There are a lot of good people in those groups. They’re very supportive; they try to help you out and share their experiences so that you can know what to expect with colitis.”
A word of caution about support groups: They should be supported by a health professional. “I’ve heard people in support groups convince others to stop meds, start meds, try this diet instead, definitely have surgery, or definitely not have surgery,” Reiss says. “The firsthand experience of another person who’s lived it is powerful, but it can be harmful.”
Telling your oldest, dearest friend that you have ulcerative colitis is one thing. Sharing that information with a boyfriend of girlfriend might feel like quite another. “If it’s someone you want to pursue a relationship with, you’ll need to tell them, because you need someone who can support you through this,” says Reiss.
It’s probably not the kind of thing you want to discuss on a first date, but you don’t want to save it till after the engagement either.
“It’s probably sometime after the third date, but long before things become serious,” Reiss says. “There’s a point where it’s a meaningful enough relationship that you need to share because this is a big part of your life, but at the same time you’re not so far into the relationship that the listener is going to feel betrayed that you withheld something so big.”
Reiss recommends not going into too much detail at the beginning. Share what you need to share at first and answer any questions they have. You can offer more details as things progress.
“If somebody bolts because they can’t handle it, yes, that’s painful,” Reiss says, “but consider it a blessing because that wasn’t the right person for you.”
Out and About
Once you’ve shared with your friends what you’re facing, planning social activities becomes more about logistics and less about trying to lie low. These tips might help:
- Be in control of when you arrive and when you leave. You don’t want to rely on others for a ride home if you need to get out in a hurry.
- Choose locations where you know you’ll have a clean, comfortable bathroom if you need it.
- Scope out bathroom locations when you arrive.
- Carry flushable wipes with you.
- Ask your doctor about over-the-counter medications, such as anti-diarrheals, anti-gas medications, or digestive aids, that you can take before any can’t-be-missed social activities.
- If you can’t go out, but want to see your friends, ask them to come to you.
Ulcerative colitis may make your social life more challenging, but it shouldn’t make it feel impossible. If it does, talk to your doctor about how well your treatment is working for you.
As you venture back out into the social world, Reiss recommends that you remember this: “You are so much more than your disease.”