Although public health experts like to point out that overall
rates of death from cancer have not budged, some cancers are a lot more
survivable than others. More than ever, a diagnosis of cancer today isn't
necessarily the death sentence it may have been a 20 years ago.
"For some adult cancers, the survival rate can be as high
as 70%," says Lindsay Nohr, executive director of Fertile Hope, a nonprofit
group that educates cancer patients about how treatment may affect their
ability to have children. "For some pediatric cancers, the cure rate can be
The clinical utility of the test refers to the likelihood that the test will, by prompting an intervention, result in an improved health outcome. The clinical utility of a genetic test is based on the health benefits related to the interventions offered to people with positive test results. Theoretically, there are at least five strategies that might improve the health outcome of people with a genetic susceptibility to cancer:
Correction of the underlying genetic defect (not currently available)...
The simple goal of survival for many cancer patients becomes so
all-encompassing that many survivors are badly under prepared to a return to
Life After Survival
"People should have information about the psychosocial
issues that they're going to face when they walk out of the hospital door,"
says Susan Nessim, founder of Cancervive, a group that aims to assist people
who have experienced cancer deal with return to normal life. She also is author
of Can Survive: Reclaiming Your Life After Cancer.
"Your relationship to everyone around you is going to
change," says Nessim, who is a survivor of rhabdomyosarcoma, a childhood
cancer of the muscles, which she developed in 1975 at age 17. "You may find
yourself cutting off relationships that aren't working. You may want to change
jobs because you've had this meaningful, life-changing experience.
"Once you finish treatment, people start moving away from
you because they assume you're fine now," she says. "I was often was
told, 'You look great, you've got your hair back, so just get on with your
life.' But it's not that easy. Many of us are not prepared for the fact that
everything isn't going to be what is was."
Beyond the difficulties of cancer treatment lie the more
mundane problems of life as a survivor. Many cancer survivors have trouble
keeping health coverage.
"It's common for a cancer survivor's health insurance
premium to go up so high they can't afford coverage," says Nessim. "Or
certain scans or procedures won't be allowed under the plan, so in one way or
another, they get cut out of coverage."