Hunter syndrome, also called mucopolysaccharidosis II or MPS II, is a rare disease that's passed on in families. It usually affects only boys. Their bodies can't break down a kind of sugar that builds bones, skin, tendons, and other tissue. Those sugars build up in their cells and damage many parts of the body, including the brain. Exactly what happens is different for every person.
When your son has Hunter syndrome, there are things you can do to help him play, have friends, and do some of the things that other kids do, even though he may look different from his pals.
Last November, Dennis and Kimberly Quaid's newborn twins received about 1,000 times the recommended dose of heparin, a drug used to flush out medication IV lines and prevent blood clotting problems, when they were hospitalized for staph infections at Cedars Sinai Medical Center in Los Angeles.
Shortly after the twins were released from the hospital last year (they are now doing fine), Dennis and Kimberly set up The Quaid Foundation (www.thequaidfoundation.org), dedicated to reducing medical mistakes...