The diet is very high in fat and low in carbohydrates. When fat is the primary source of calories, ketones are formed. The diet must be followed very strictly and requires a significant commitment to work effectively. Children on the diet often will not gain weight or grow much during the time the diet is in use. After that, however, growth is expected and should be carefully monitored.
If you have been diagnosed with epilepsy, you will have many questions. One of the first will probably be, "How can my epilepsy be treated?" There is no single answer to this question. That is because doctors have identified hundreds of different epilepsy syndromes, which involve many different types of seizures.
Your epilepsy may be inherited, or it may not. One study has found that some people with epilepsy have inherited an abnormally active version of a gene that makes them resistant to drugs...
The diet has been used mostly in children with difficult-to-control, generalized epilepsies -- such as those with the Lennox-Gastaut syndrome. Lennox-Gastaut is a generalized epilepsy which is characterized by drop attacks or tonic-clonic attacks (with violent, rhythmic convulsions) and often occurs in children with other neurological conditions, such as paralysis and mental retardation. It's often very resistant to treatment. In this group of individuals, the diet can be as successful as medications. Thus, it is most often recommended for children ages 2 through 10 or 12 who have been diagnosed with a generalized type of epilepsy, and who have failed to respond to a variety of drugs. Recent studies have shown that the diet may also be effective in those with partial seizures.
The diet is typically started with a period of fasting that lasts until the body produces a moderate to large amount of ketones. This initiation period usually takes place in the hospital, so that the individual can be monitored for potential side effects such as vomiting, low blood sugar, dehydration, and seizures. Medications may also be adjusted during this period to prevent sedation (the tranquilizing effect of medications), another common side effect.
A two-month trial period is suggested for deciding whether the diet is effective. If it is, it is typically continued for two years. During this time, individuals are often able to lessen the amount of medication they take for seizures. Many children seem happier and more alert on the diet, even before medication is significantly lessened.
People on a ketogenic diet should be monitored by a dietitian, nurse and doctor -- particularly a neurologist -- familiar with its use. Specialized epilepsy clinics are available to monitor a person on this diet.