Hepatitis Health Center
Living With Hepatitis C
If you just found out that you have hepatitis C, remember two things.
First, you probably have decades of a healthy life ahead of you. Second, living
with any chronic disease can make you
feel isolated. It's important to get support.
"When people first get diagnosed, they feel infectious," says Alan
Franciscus, executive director of the Hepatitis C Support Project in San
Francisco. "They often look at themselves as a disease more than as a
person."
To get past that feeling, get the right type of support -- both medical and
emotional.
Medical Support for Hepatitis C
Start by finding a good doctor. Hepatitis C is a chronic disease, so you'll
probably be seeing your doctor for many years. Make sure to get someone you
like and who's an expert at treating hepatitis C.
"You need a doctor who understands the disease and who really has the time
to sit with you for 30 or 40 minutes and explain it," says Howard J. Worman,
MD, associate professor of medicine at Columbia University's College of
Physicians and Surgeons in New York. "If your doctor will only see you for
fifteen minutes, or if he or she isn't really explaining it, you should get a
new doctor."
Also, try to educate yourself. Learn about the disease and its treatments. Worman suggests you turn to reliable sources like the National Institutes of Health or the American Liver Foundation.
"Unfortunately, there are a lot of wacky books out there about hepatitis C," Worman tells WebMD.
Take care when getting treatment information from the Internet. "The problem is that no one regulates the information that's on the Internet," says Paul Berk, MD, professor of medicine at Mt. Sinai School of Medicine and Chairman of the American Liver Foundation. A lot of information on the Internet is based on anecdotes, which may have little to do with your own particular case.
"There's some good stuff out there and plenty of stuff that's not so good," says Berk.
WebMD Medical Reference
