Skip to content

Lupus Health Center

Living with Lupus

Font Size
A
A
A

You have recently been diagnosed with a disease known as systemic lupus erythematosus (SLE). It has probably taken time to arrive at this diagnosis. Now that you know, you may feel relieved but also overwhelmed. You probably have a lot of questions about lupus.

You may have a mild or a more serious form, but no matter how severe your lupus is, you will need close medical supervision. You may also need to make lifestyle changes to keep your disease under control and feel as well as possible. At the beginning, you may feel some of these emotions:

Recommended Related to Lupus

Skin Care Tips for Lupus

Skin changes are common when you have lupus, but you don't have to let them get the best of you. Medical treatment can get rid of some. You can also protect your skin and use cover-up tricks to make them less visible.  

Read the Skin Care Tips for Lupus article > >

  • anger or depression over the loss of your former good health
  • uncertainty about what to tell family, friends, or coworkers
  • guilt for having lupus and the burden it may cause your family
  • fear that you may lose your job if you can no longer work regularly
  • fear that you may die

These are all normal feelings, and you are not alone in having them. You should give yourself time to adjust to your illness. This may or may not be easy for you. Discuss your feelings and concerns with your doctor and nurse and with your family and friends. Sometimes, talking with other people who have lupus is helpful. If you are having a hard time adjusting to your diagnosis, consider seeking the help of a counselor.

Many physical and emotional issues confront people with lupus, both in the beginning and throughout the course of their disease. The most common issues include the following.

Fatigue: Fatigue is a chronic problem that is usually accompanied by joint pain and stiffness. It can affect many aspects of your daily life.

Changes in personal appearance: You may experience changes in your personal appearance. Discoid lupus (a form of lupus) may cause sores, blotches, or scarring on the face, arms, shoulders, neck, or back. The medications for lupus can also sometimes change your appearance. For example, corticosteroids can cause weight gain, excessive hair growth, or swelling. Some drugs may cause hair loss. These changes in the way you look can be emotionally challenging to deal with.

1 | 2 | 3

Today on WebMD

grocery shopping list
And the memory problems that may come with it.
Lupus rash on nails
A detailed, visual guide.
 
sunburst filtering through leaves
You might be extra sensitive to UV light. Read on.
fruit drinks
For better focus in your life.
 
Woman rubbing shoulder
Slideshow
Bag of cosmetics
Video
 
young woman hiding face
Quiz
pregnant woman
Article
 
5 Lupus Risk Factors
Article
Young adult couple
Article
 
doctor advising patient
Article
sticky notes on face
Video
 

WebMD Special Sections