Skip to content
My WebMD Sign In, Sign Up

Multiple Sclerosis Health Center

Font Size

Work & Multiple Sclerosis

Experts describe strategies that help multiple sclerosis patients cope with symptoms of the disease.
By
WebMD Feature
Reviewed by Louise Chang, MD

How to handle workplace issues when you have multiple sclerosis.

Elissa Levy, a 37-year-old with secondary progressive multiple sclerosis (MS), is living proof of the unpredictability of this progressive neurological disease that affects the central nervous system.

Recommended Related to Multiple Sclerosis

Finding Help for Multiple Sclerosis

Our expert answers questions about multiple sclerosis symptoms, diagnosis and treatments. Click here to read and participate. Ask WebMD's Multiple Sclerosis Expert  

Read the Finding Help for Multiple Sclerosis article > >

Soon after being diagnosed in January 2002, her physical status plummeted quickly. The former fitness buff who regularly skied and jogged describes the overwhelming MS-induced fatigue that plagued her almost daily. "Sometimes my eyes hurt too much to watch TV," Levy tells WebMD.

During that period, she traded her running shoes for a cane, broke off a relationship with someone she had once considered marrying, and relinquished a long-sought full-time position as director of a new charter school, taking up part-time work instead.

Then, just as quickly as the symptoms struck, they abated. "I had tried all the drugs on the market for MS. As a last resort, I even did chemotherapy." She found relief through an experimental drug (not yet approved by the FDA for MS).

Now, for the second time in three years, she's had to evaluate her future. "I still dream about going for a jog. But now I can walk home from a movie 20 blocks, instead of taking a cab," Levy says. She is back to work full time, sometimes pulling 12-hour days. And she's re-established a relationship with her old boyfriend.

Through the ups and downs of the disease, people with MS must go on with their lives. Very often, that means making long-range decisions about how to live, from employment to recreation -- and being open to re-evaluating them as needed. In addition to these "big picture" decisions, practicing seemingly small lifestyle strategies can make the disease more manageable.

Working With MS

Like many others with MS, Levy was forced to make decisions about her professional life. Among the questions she faced: Do I tell my employer and, if so, when? Can I continue working? What accommodations will I need?

New laws, ever-increasing resources, and improved attitudes are making these decisions easier. Currently, 43% of adults who have had MS for 12 years retain employment, according to an ongoing nationwide study sponsored by the National Multiple Sclerosis Society (NMSS).

But some experts believe that percentage could be higher. "Employers may have preconceived ideas about what a person with disabilities can do. It takes time to change attitudinal barriers. There's still work to be done," says Steve Nissen, director of employment programs at the NMSS.

That's why, for now, it's generally up to the employee with MS to initiate any discussions involving disclosure or accommodation requests in the workplace.

Nissen considers disclosure -- the whens, whos, and hows of it -- one of the most difficult aspects of working with MS, or any disability.

Before disclosing, Nissen suggests the following: "Ask yourself: 'What's going on to make you think it's time to disclose? Are you having new or different symptoms that's posing a challenge at work? Are you having trouble meeting deadlines, or missing time?'"

Today on WebMD

brain and teriflunomide molecule
ARTICLE
neural fiber
ARTICLE
 
white blood cells
VIDEO
linguini with asparagus and mushrooms
ARTICLE
 
brain scan
ARTICLE
worried woman
ARTICLE
 
person writin in a notebook
ARTICLE
couple embracing
ARTICLE
 
man with cane
SLIDESHOW
skull and neck xray
ARTICLE
 
Stressed man
ARTICLE
doctor feeling patients neck
ASSESSMENT
 

WebMD Special Sections