If you have a loved one with ankylosing spondylitis, remind them that they’re still a needed part of your family. AS can feel like a burden, and people who have it go through a lot. Sometimes they may struggle to see themselves as valuable and lovable. I try to look at my husband’s AS like another member of the family. One that, while not invited or welcome, does deserve to be acknowledged, treated with kindness, and understood inside and out. And caregivers, remember to find your own space to vent and rest. You feel the weight of AS, too. Just differently.
-- Auldyn Matthews, an AS advocate in Pittsburgh