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Information and Resources

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Eosinophilic Esophagitis

Important
It is possible that the main title of the report Eosinophilic Esophagitis is not the name you expected.

Disorder Subdivisions

None

General Discussion

Eosinophilic esophagitis (EE) is a chronic disorder of the digestive system in which large numbers of a particular type of white blood cell called eosinophils are present in the esophagus. The esophagus is the tube that carries food from the mouth to the stomach. Eosinophils are an important part of the immune system and play a role in fighting infection. This condition is characterized by vomiting, stomach or chest pain, failure to thrive (particularly in children), and difficulty swallowing.

Resources

Oley Foundation
214 Hun Memorial MC-28
Albany Medical Center
Albany, NY 12208-3478
USA
Tel: (518)262-5079
Fax: (518)262-5528
Tel: (800)776-6539
Email: dahlr@mail.amc.edu
Internet: http://www.oley.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/AboutGARD.aspx

Campaign Urging Research for Eosinophilic Disease (CURED)
PO Box 32
Lincolnshire, IL 60069
Tel: (847)793-0071
Email: ellyn@curedfoundation.org
Internet: http://www.curedfoundation.org

Cincinnati Center for Eosinophilic Disorders
Cincinnati Children's Hospital Medical Center
3333 Burnet Avenue
MLC 2010
Cincinnati, OH 45229-3039
Tel: (513)636-2233
Fax: (513)636-9069
Tel: (800)344-2462
TDD: (513)636-4900
Email: cced@cchmc.org
Internet: http://www.cincinnatichildrens.org/eosinophils

American Partnership for Eosinophilic Disorders
PO Box 29545
Atlanta, GA 30359
Tel: (713)493-7749
Fax: (713)493-7749
Email: mail@apfed.org
Internet: http://www.apfed.org

For a Complete Report:

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org
Last Updated: �3/12/2009
Copyright �2006, 2009�National Organization for Rare Disorders, Inc.

WebMD Medical Reference from the National Organization of Rare Disorders

Last Updated: May 16, 2012

This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.